Cheat Codes: A Sickle Cell Podcast

Warrior Takeover with Brian Goff, CEO of Agios Pharmaceuticals

Wed, 16 Sep 2026 07:01:00 +0000

In this special Sickle Cell Warrior Takeover of Cheat Codes, Kyle Smith and Shamonica Wiggins-Mayes sit down with Brian Goff, CEO of Agios Pharmaceuticals, for a candid conversation about the relationship between the sickle cell community and the biopharma industry. They discuss what meaningful partnership looks like, why trust must be earned over time, and how listening to people with lived experience can shape research, education, and drug development. Brian also reflects on what he has learned from the sickle cell community, while Kyle and Shamonica share what they want industry leaders to better understand about the realities of living with sickle cell disease.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Legends of Sickle Cell - Dr. Miguel Abboud (Arabic Edition)

Wed, 26 Aug 2026 07:01:00 +0000

This special episode of Cheat Codes marks the podcast's first-ever conversation in Arabic, expanding the global reach of sickle cell education and advocacy. Dr. Miguel Abboud, a pioneer in sickle cell disease and longtime leader at the American University of Beirut, joins Dr. Karim Osman for an in-depth discussion on care across the lifespan, research advancements, and challenges facing patients in the Arab world. Together, they explore newborn screening, access to treatment, and the future of sickle cell care for Arabic-speaking communities worldwide.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Legends of Sickle Cell - Dr. Miguel Abboud

Wed, 12 Aug 2026 07:01:00 +0000

In this inspiring Legends of Sickle Cell episode of Cheat Codes, Dr. Z and Dr. C sit down with Dr. Miguel Abboud, a global leader whose work has shaped modern sickle cell care for decades. Dr. Abboud shares the pivotal patient stories that guided his career, his groundbreaking contributions to transplantation, acute chest syndrome research, and stroke prevention, and the international perspective he brings from working across Lebanon, the United States, Africa, and India. He reflects on the mentors who influenced him, the ongoing challenges of access to care worldwide, and the urgent need to expand treatments to low- and middle-income countries. This is a powerful conversation with a true pioneer whose impact continues to guide the future of sickle cell medicine.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

Understanding How Treatments Get Approved - What It Means for You

Tue, 07 Jul 2026 07:00:00 +0000

Dr. Z and Dr. C sit down with Dr. Sarah Gheuens, Chief Medical Officer and Head of R&D at Agios Pharmaceuticals, to break down one of the most frequently heard but least understood terms in the treatment conversation: FDA approval. From the phases of clinical development and the role of regulators, to the difference between traditional and accelerated approval pathways, Dr. Gheuens demystifies the science and the process in plain language. They also discuss why asking questions of physicians about their care is one of the most important things a patient can do.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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REPLAY: Good Sickle Cell Care

Fri, 19 Jun 2026 07:00:00 +0000

To commemorate World Sickle Cell Day 2026, the Cheat Codes podcast is re-releasing this powerful live episode from the 2025 National Alliance of Sickle Cell Centers (NASCC) meeting. In this episode, Dr. Z and Dr. C are joined by a powerhouse panel: Dr. Payal Desai, Dr. Seethal Jacob, Dr. Pat McGann, and Dr. Andy Ellner to unpack what truly defines great sickle cell care. It's a topic well in line with the theme of this year's World Sickle Cell Day, "Closing the Survival Gap: Equity in Sickle Cell Care."

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. With each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

Sickle Cell in the Media: Scene & Heard - SCDAA Masterclass

Thu, 23 Apr 2026 07:00:00 +0000

This SCDAA Masterclass, a special episode of Cheat Codes, was recorded live at the Sickle Cell Disease Association of America, Inc. (SCDAA) 2025 Annual National Convention in Chicago and explores the portrayal of sickle cell disease in the media. Panelists share personal stories and discuss the importance of authentic representation, highlighting both the challenges and progress in raising awareness. The conversation emphasizes the power of storytelling to drive advocacy, reduce stigma, and humanize the experiences of those living with sickle cell disease. Listeners will hear insights from patients, filmmakers, and advocates on how media can shape public understanding and support for the sickle cell community. We also hear opening remarks from Brian Goff, CEO of Agios Pharmaceuticals.

Learn more about the Sickle Cell Disease Masterclass Series at https://scdaamasterclass.com/

To hear more episodes of Cheat Codes: A Sickle Cell Podcast, please visit https://www.bloodstreammedia.com/cheat-codes

Renal Complications with Sickle Cell Disease

Thu, 02 Apr 2026 07:00:00 +0000

In this powerful episode of Cheat Codes, Dr. Z and Dr. C sit down with Dr. Santosh Saraf, one of the leading experts on kidney disease in sickle cell, to break down why renal complications are so common yet often overlooked. Dr. Saraf walks listeners through the early warning signs, the importance of routine monitoring, and how albuminuria, creatinine, and cystatin C can signal kidney stress long before symptoms appear. The discussion explores how anemia, hemolysis, blood pressure, and even treatment choices influence long-term kidney health, along with emerging therapies that offer new hope for protection and repair. This is an essential conversation for anyone living with sickle cell disease or caring for someone who is.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Learnings from the Red Cell Revolution

Sat, 28 Feb 2026 08:00:00 +0000

This special crossover episode brings together advocates from PK deficiency, thalassemia, and sickle cell disease to share insights from the Red Cell Revolution and the powerful connections formed across rare hemolytic anemias. NinaMaria Badalamenti leads a heartfelt conversation with Jill Welle, Laurice Levine, and Cassandra Trimnell about the common challenges these communities face, from fatigue to stigma to navigating complex care. Together, they explore how collaboration, shared education, and collective advocacy strengthen each individual movement. The episode offers hope, perspective, and a reminder that these rare-disease communities are stronger together.

SHOW DESCRIPTION

Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates, and voices from the thalassemia community. Learn more about thalassemia by visiting RethinkThalassemia.com. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. Thal Pals is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

This podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions.

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Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

Health Related Quality of Life Metrics & Health Outcomes in SCD

Wed, 28 Jan 2026 08:00:00 +0000

In this episode of Cheat Codes, Dr. Z and Dr. C sit down with Dr. Nirmish Shah of Duke University for a deep dive into how technology, wearables, and patient-reported outcomes are transforming the way clinicians measure quality of life in sickle cell disease. Dr. Shah shares the evolution of his work tracking daily symptoms, passive data, and long-term trends, and explains how these insights can help predict complications, personalize care, and strengthen the patient–provider relationship. The conversation explores everything from AI-driven analytics to hospital-based monitoring, highlighting how data can support—not replace—the human side of medicine. This episode offers a fascinating look at the future of sickle cell care and the innovations shaping it today.

To hear the episode with Dr. Charles Jonassiant and Jude Jonassiant referenced in the episode, CLICK HERE.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Rising Stars in Sickle Cell: Dr. Sharl Azar

Wed, 17 Dec 2025 08:00:00 +0000

In this episode of Cheat Codes, Dr. Sharl Azar joins the hosts to discuss his journey from Oregon to leading the sickle cell program at Mass General in Boston. Dr. Azar shares the pivotal moments that inspired his passion for hematology and advocacy, including his work on groundbreaking legislation to improve care for sickle cell patients in Massachusetts. The conversation highlights the importance of community, systemic change, and the lived experiences of patients. Listeners will be inspired by Dr. Azar's commitment to equity, collaboration, and building a brighter future for those affected by sickle cell disease.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Driving Change: MiCaringHeart & the Fight for Sickle Cell Care

Wed, 19 Nov 2025 08:00:00 +0000

On this episode, Dr. Z and Dr. C welcome Shayan Siddiqui, founder of MiCaringHeart, to discuss his impactful work supporting sickle cell patients in Detroit. Shayan shares how his family's experiences inspired initiatives like Cabs for Kids, providing transportation to medical appointments, and Outsmart, offering free tutoring for children with chronic illnesses. The conversation highlights the challenges of healthcare access and the power of community-driven solutions.

For more information about MiCaringHeart, visit https://www.micaringheart.com/

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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'So What Did I Miss?': A Recap of the 2023/2024 NASCC Meeting

Wed, 05 Nov 2025 08:00:00 +0000

In this special episode of Cheat Codes, Dr. Z and Dr. C hand the co-hosting mic to Dr. Julie Kanter for a lively walk through the history of the National Alliance of Sickle Cell Centers (NASCC) annual meetings. Alongside Dr. Sophie Lanzkron, Dr. Francis Coyne, and Dr. Alexis Leonard, they revisit key moments from 2022's belly-dancing dinner to 2025's record-breaking Vermont gathering. The conversation covers how NASCC consensus topics like pain management, iron overload, gene therapy readiness, and defining a "sickle cell specialist" have evolved year-to-year. Packed with behind-the-scenes stories, professional insights, and a look at NASCC's growing impact, this episode captures how a community of experts is shaping the future of sickle cell care.

For more information on the National Alliance of Sickle Cell Centers (NASCC), please visit: https://sicklecellcenters.org/

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Rising Stars in Sickle Cell: Dr. Alyssa Schlenz

Wed, 22 Oct 2025 07:00:00 +0000

In this Rising Star episode from the NASCC meeting in Stowe, Vermont, Dr. Z and Dr. C spotlight Dr. Alyssa Schlenz, a psychologist transforming sickle cell care through early developmental screening and neuropsychological support. Dr. Schlenz shares her journey into the field, the critical role of prevention and early intervention, and the unique challenges faced by patients with neurodevelopmental disorders. She explains how routine, relationship-based screenings can identify issues early, reduce stigma, and improve long-term outcomes. This inspiring conversation highlights the power of psychology in comprehensive sickle cell care and the promising future being shaped by dedicated new leaders.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

Good Sickle Cell Care

Wed, 08 Oct 2025 07:00:00 +0000

In this live episode from the NASCC meeting in Stowe, Vermont, Dr. Z and Dr. C are joined by a powerhouse panel: Dr. Payal Desai, Dr. Seethal Jacob, Dr. Pat McGann, and Dr. Andy Ellner to unpack what truly defines great sickle cell care. The group explores the importance of comprehensive, continuous, and patient-centered models, from inpatient to outpatient settings, pediatrics to adulthood. They discuss integrating technology, clinical trials, and multidisciplinary teams to improve quality of life and prevent long-term complications. It's an insightful look at how collaboration, innovation, and trust are shaping the future of sickle cell treatment.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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History & Founding of NASCC

Wed, 24 Sep 2025 07:00:00 +0000

In this episode of Cheat Codes, Dr. Z and Dr. C sit down with Dr. Julie Kanter, Dr. Sophie Lanzkron, and Dr. Marsha Treadwell to spotlight the National Alliance of Sickle Cell Centers (NASCC). They explore how NASCC came to life, its mission to unite multidisciplinary teams, and its role in setting consensus guidelines for sickle cell care. From building a national registry to fostering collaboration between clinics, community organizations, and patients, the conversation captures a pivotal movement toward consistent, high-quality care nationwide. Listeners will hear how NASCC is shaping the present—and future—of sickle cell treatment.

For more information on the National Alliance of Sickle Cell Centers (NASCC), please visit: https://sicklecellcenters.org/

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Building Community in Patient Advocacy - One Warrior at a Time

Wed, 17 Sep 2025 07:00:00 +0000

In this episode of Cheat Codes, Dr. Z and Dr. C are joined by renowned advocates TaLana Hughes and Cassandra Trimnell to explore what "the sickle cell community" truly means. They discuss how patients, caregivers, providers, and allies form interconnected, and often overlapping, communities that bring hope, support, and change. From building trust to celebrating wins, the conversation highlights the power of connection, the importance of access to information, and how to find your "tribe" in the sickle cell space. Whether local or global, online or in person, community remains the heartbeat of progress in sickle cell disease.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Sickle Cell Advocacy: Stories, Struggles, and Self-Care

Wed, 14 May 2025 07:00:00 +0000

On this episode of Cheat Codes, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, is joined by sickle cell advocates Teonna Woolford, Cassandra Trimnell, and Rae Blaylark discuss the challenges and rewards of sickle cell advocacy. They delve into personal journeys, the nuances of advocacy, and the importance of self-care. The conversation highlights the power of community, the significance of setting boundaries, and the need for therapeutic support. The advocates also reflect on the impact of their work and offer advice for the next generation of sickle cell advocates.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Legends of Sickle Cell Disease: Dr. Isaac Odame's Journey

Wed, 16 Apr 2025 07:00:00 +0000

On this episode, Dr. Z and Dr. C. Callahan interview Dr. Isaac Odame, a leading figure in the field of sickle cell disease. Dr. Odame shares his life story, beginning in Ghana, his medical training in the UK, and his global contributions to sickle cell research, including involvement with the Global Sickle Cell Disease Network. The discussion covers his work in various countries, the challenges, and successes in treating sickle cell disease, and his family's influence on his career.

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Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

Championing Sickle Cell Care: A Talk with Dr. Wally Smith

Wed, 26 Mar 2025 07:00:00 +0000

Drs. Z and C welcome Dr. Wally Smith, a leading figure in sickle cell research from Virginia Commonwealth University, to discuss crucial issues affecting adults with sickle cell disease. They explore the neglect of adult patients, the need for dedicated centers, and the value of community health workers. Dr. Smith emphasizes the importance of holistic healthcare solutions, state-level policy initiatives, and community support to improve quality of life and outcomes for sickle cell patients.

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Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

Timmerman Hike: A Journey of Hope and Advocacy for Sickle Cell

Wed, 26 Feb 2025 08:00:00 +0000

On this inspiring episode of Cheat Codes, Dr. Z and Dr. C talk with an extraordinary group of individuals who embarked on a monumental climb up Mount Kilimanjaro to raise awareness and funds for sickle cell disease. Led by Dr. Alan Anderson and featuring sickle cell warrior Jimi Olaghere the group of Patrick Hines, MD, PhD, Eva Gallagher, PhD, and Audra Boscoe, PhD shares personal stories of perseverance, determination, and the powerful symbolism of their climb. They discuss the challenges they faced, both mental and physical, and the life-changing impact of their journey. With over $2 million raised, the episode concludes with a hopeful message for the future of sickle cell diagnosis and treatment in Sub-Saharan Africa. Audra Boscoe and Eva Gallagher are employees of Agios Pharmaceuticals.

SHOW DESCRIPTION

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Tabatha McGee Means Business

Mon, 21 Oct 2024 07:00:00 +0000

On this episode of Cheat Codes, Dr. Z and Dr. C are joined by Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia. Tabatha shares her remarkable journey from systems engineer to leading the foundation, driven by a personal mission to enhance the lives of sickle cell warriors. The discussion delves into innovative programs like the Sickle Cell Sanctuary, holistic care initiatives, and the importance of community engagement and advocacy. An inspiring talk on leadership, resilience, and the transformative power of compassion in the fight against sickle cell disease.

To visit the Sickle Cell Foundation of Georgia, click here.

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From Omaha to Global Health: Dr. Xu's Path in Hematology

Mon, 30 Sep 2024 07:00:00 +0000

On this episode, Dr. Z and Dr. C welcome Dr. Julia Xu, a rising star in the field of sickle cell disease. Dr. Xu shares her inspiring journey from Omaha, Nebraska, to her current role at the University of Pittsburgh. The discussion covers her extensive background in global health, her research on anemia in sickle cell disease, and the impactful mentors who have shaped her career.

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Empowering Lives: Dr. Simone Uwan's Journey with Sickle Cell Disease

Tue, 03 Sep 2024 07:00:00 +0000

In this special "Lunch and Learn" session sponsored by the Agios Diversity Council, Dr. Simone Uwan shares her inspiring journey living with and advocating for sickle cell disease. Dr. Uwan discusses her background, achievements in medicine and advocacy, and her personal experiences with misdiagnosis and the challenges faced by sickle cell patients. Highlighting critical insights from her books, she emphasizes the importance of medical management, patient empowerment, and the need for diverse treatment options in fighting this disease.

For more information, visit the Sickle Cell Medical Advocacy website.

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Janie Davis, Director of Patient Advocacy at Agios

Mon, 15 Jul 2024 07:00:00 +0000

Holly John, Agios' Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community.

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The Importance of Community-Based Organizations for the SCD Community

Fri, 28 Jun 2024 07:00:00 +0000

Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharmaceutical companies, and legislators.

Panelists Include:

Rae Blaylark (Sickle Cell Foundation of Minnesota) - Twitter/X - Facebook - LinkedIn - Instagram

Howard Ffrench (SCDAA Miami) - Facebook

TaLana Hughes (Sickle Cell Disease Association of Illinois) - LinkedIn - Facebook - Twitter/X

Tabatha McGee (Sickle Cell Foundation of Georgia, Inc.) - LinkedIn - YouTube - TikTok - Twitter/X - Instagram

Dr. Wanda Whitten-Shurney (SCDAA Michigan Chapter) - Instagram - Facebook - LinkedIn

DeMitrious Wyant - Website

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The Warrior Poet: A Rising Star: Dr. Alex Glaros

Mon, 27 May 2024 07:00:00 +0000

On this episode of Cheat Codes: A Sickle Cell Podcast, we're coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children's Hospital of Michigan.

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Voice Over:

The following Agios Supported podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. The guests on today's show were paid to participate in this podcast.

Revving Up for Clinical Trial Awareness in the Motor City

Mon, 22 Apr 2024 07:00:00 +0000

On this episode of Cheat Codes: A Sickle Cell Podcast, we're live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of the episode. Dr. Shurney was unable to attend the recording but made a special appearance. A must listen!

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Sickle Cell Advocacy with Miss Teen Virginia, Ayana Johnson

Wed, 27 Dec 2023 08:00:00 +0000

On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Ayana Johnson. In addition to being a sickle cell warrior, Ayana is also Miss Teen Virginia '22, a teen ambassador of the SCDAA and founder of Ay's Hope Cells.

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Replay: International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin

Tue, 24 Oct 2023 22:31:00 +0000

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language.

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Regina Hartfield of the SCDAA

Tue, 19 Sep 2023 15:59:00 +0000

hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA).

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REPLAY: RISE UP for Sickle Cell Disease - A Warrior Panel

Wed, 06 Sep 2023 15:16:00 +0000

http://On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios' phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions they may have or break down any myths that they have, about participating in a clinical trial. On this panel the docs speak with Teonna Woolford, Dominique Friends, Blaze Eppinger, Golie-Lorenzo Green & Tristian Jones.

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Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host featured in this episode have been compensated for their time.

Cayenne Wellness

Tue, 25 Jul 2023 07:00:00 +0000

On this episode, Dr. Z and Dr. C talk to Dr. Carolyn Rowley and Elle Colle about Cayenne Wellness. Their mission is to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care."

Learn more about Cayenne Wellness at https://cayennewellness.org

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Reproductive Health in Sickle Cell

Tue, 20 Jun 2023 07:00:00 +0000

On this episode, Dr. Z and Dr. C talk to "The Avengers" of Sickle Cell Disease aka Teonna Woolford, Cassandra Trimnell and Rae Blaylark about reproductive health in sickle cell disease.

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International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin

Tue, 23 May 2023 07:00:00 +0000

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Rising Stars in Sickle Cell: Dr. Oladipo Cole

Tue, 18 Apr 2023 16:02:00 +0000

On this episode, Dr. Z and Dr. C talk shop with a rising star in sickle cell disease. Dr. Oladipo Cole is a fellow at Washington University in St. Louis, MO. He also has sickle cell disease. Here he talks about his journey from child living with sickle cell disease to physician working in the disease state.

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Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

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Legends of Sickle Cell - Dr. Obiageli Nnodu

Mon, 20 Mar 2023 07:00:00 +0000

Dr. Z and Dr. C welcome "Sickle Cell Legend" Dr. Obiageli Nnodu to the program. Dr. Nnodu is the Director of Centre For Sickle Cell Disease Research & Training at the (CESRTA) University of Abuja in Nigeria.

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LIVE in New Orleans: A Red Cell Revolution

Mon, 27 Feb 2023 08:00:00 +0000

We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field.

We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire to find common ground with these communities and their treaters.

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Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Ahmar Zaidi, Kevin Kuo, Laurice Levine, Mike Callaghan, Cassandra Trimnell, Teonna Woolford, NinaMaria Badalamenti, Clarisse Lobo, Jill Welle, Tamara Schryver, Rae Blaylark, Ralph Colasanti, Rucha Shah, Alejandra Watson, Biree Andemariam, Charles Jonassaint, Sujit Sheth, Nirmish Shah have been compensated for their time.

Replay: Legends of Sickle Cell. The Momma Bears

Tue, 31 Jan 2023 08:00:00 +0000

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: "The Momma Bears". Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization.

Originally aired September 6, 2022.

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Getting to Know Doctors Ahmar Zaidi & Mike Callaghan

Mon, 12 Dec 2022 08:00:00 +0000

On this episode, we're turning our attention to our hosts: Dr. Ahmar Zaidi and Dr. Mike Callaghan. We'll get to know them a little better and learn about their journey into medicine and sickle cell disease.

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Biba Tinga, Sickle Cell Disease Association of Canada

Tue, 01 Nov 2022 07:00:00 +0000

Dr. Z and Dr. C are back! On this episode they speak with Biba Tinga, President & Executive Director of the Sickle Cell Disease Association of Canada. They also discuss the care of her son Ismaël who was diagnosed with the rare disease.

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A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium - Part 2

Tue, 25 Oct 2022 07:00:00 +0000

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Lametra Scott, Dr. Simone Uwan and Francine Baker.

The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted by a partnership of sickle cell CBOs, patients, caregivers and advisors, and is unique in that every session, presentation, panel and workgroup was chosen directly by the patient community to educate, empower and encourage ourselves and each other.

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A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium

Tue, 04 Oct 2022 07:00:00 +0000

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Tomia Austin and Mia Robinson.

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Legends of Sickle Cell. The Momma Bears

Tue, 06 Sep 2022 07:00:35 +0000

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Legends of Sickle Cell - Dr. Charles Jonassaint, Jude Jonassaint & Cassandra Trimnell

Tue, 02 Aug 2022 07:00:01 +0000

On this episode, Dr. Z and Dr. C speak with Cassandra Trimnell of Sickle Cell 101, Dr. Charles Jonassaint & Jude Jonassaint.

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Legends of Sickle Cell - Russell Ware, MD, PhD

Tue, 05 Jul 2022 07:00:00 +0000

On this episode, Dr. Z and Dr. C talk to Sickle Cell Legend Russell Ware, MD, PhD

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Show Notes:

Cheat Codes: A Sickle Cell Podcast

Warrior Takeover with Brian Goff, CEO of Agios Pharmaceuticals

Legends of Sickle Cell - Dr. Miguel Abboud (Arabic Edition)

Legends of Sickle Cell - Dr. Miguel Abboud

Understanding How Treatments Get Approved - What It Means for You

REPLAY: Good Sickle Cell Care

Sickle Cell in the Media: Scene & Heard - SCDAA Masterclass

Renal Complications with Sickle Cell Disease

Learnings from the Red Cell Revolution

Health Related Quality of Life Metrics & Health Outcomes in SCD

Rising Stars in Sickle Cell: Dr. Sharl Azar

Driving Change: MiCaringHeart & the Fight for Sickle Cell Care

'So What Did I Miss?': A Recap of the 2023/2024 NASCC Meeting

Rising Stars in Sickle Cell: Dr. Alyssa Schlenz

Good Sickle Cell Care

History & Founding of NASCC

Building Community in Patient Advocacy - One Warrior at a Time

Sickle Cell Advocacy: Stories, Struggles, and Self-Care

Legends of Sickle Cell Disease: Dr. Isaac Odame's Journey

Championing Sickle Cell Care: A Talk with Dr. Wally Smith

Timmerman Hike: A Journey of Hope and Advocacy for Sickle Cell

Tabatha McGee Means Business

From Omaha to Global Health: Dr. Xu's Path in Hematology

Empowering Lives: Dr. Simone Uwan's Journey with Sickle Cell Disease

Janie Davis, Director of Patient Advocacy at Agios

The Importance of Community-Based Organizations for the SCD Community

The Warrior Poet: A Rising Star: Dr. Alex Glaros

Revving Up for Clinical Trial Awareness in the Motor City

Sickle Cell Advocacy with Miss Teen Virginia, Ayana Johnson

Replay: International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin

Regina Hartfield of the SCDAA

REPLAY: RISE UP for Sickle Cell Disease - A Warrior Panel

Cayenne Wellness

Reproductive Health in Sickle Cell

International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin

Rising Stars in Sickle Cell: Dr. Oladipo Cole

Legends of Sickle Cell - Dr. Obiageli Nnodu

LIVE in New Orleans: A Red Cell Revolution

Replay: Legends of Sickle Cell. The Momma Bears

Getting to Know Doctors Ahmar Zaidi & Mike Callaghan

Biba Tinga, Sickle Cell Disease Association of Canada

A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium - Part 2

A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium

Legends of Sickle Cell. The Momma Bears

Legends of Sickle Cell - Dr. Charles Jonassaint, Jude Jonassaint & Cassandra Trimnell

Legends of Sickle Cell - Russell Ware, MD, PhD

RISE UP for Sickle Cell Disease - A Warrior Panel

Legends of Sickle Cell - Dr. Michael DeBaun & Shamonica Wiggins

#48 - "Soaring to the Sky" How Patient Navigators are Changing Sickle Cell with Dr. Wally Smith

#47 - "Reproductive Health in Sickle Cell" with Dr. Lydia Pecker

#46 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guest Sarah Gheuens, Chief Medical Officer at Agios Pharmaceuticals.

#45 - "Man in the Arena" A Conversation with Dr. Mark T. Gladwin

In Remembrance of Hertz Nazaire

Homegoing Expenses for Hertz

Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Zaidi | TEDxDetroit

#44 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guests Darrin Miles, Agios Chief Commercial Officer and Agios Head of Patient Advocacy, Holly John

#43 - "Can Gene Therapy Live Long and Prosper?" A Conversation with Dr. Mitch Weiss and Dr. Vijay Sankaran

#42 - Pediatric to Adult Care - Transitioning with Sickle Cell Disease w/ Dr. Nirmish Shah

#41 - Sickle Cell in Jamaica and Around the World w/ Graham Serjeant

#40 - Think COVID Through with Dr. Lewis Hsu.

#39 - "Just Get Out of My Way": Mapillar is Making Moves

#38 - You Bet Your Assay: A New Lab Test for Sickle Cell Disease

#37 - Impact Players on Third and Long: Santonio Holmes and Martenzie Johnson

What Just Happened - Best of Sickle Cell Conferences, #FSCDR21

#36 - This is Why We Call it Advanced Practice

#35 - Neighborly Love: Indiana is Changing the SCD Landscape

#34 - What Could be Better than Dr. Z - 2 Dr. Z's!

#33 - Sickle Cell Disease and the Community Based Organization: How Wanda and Gary Are Making a Difference

#32 - Motown-Sickle's Back Again: Dr. Ingrid Sarnaik's Legacy in Detroit

#31 - Covid-19 Myth-Busting with Dr. Mobeen Rathore

What Just Happened? - Best of Sickle Cell Conferences, #ASH20, Part 2 (pipeline therapies and new data for approved therapies)

What Just Happened? - Best of Sickle Cell Conferences, #ASH20, Part 1 (Curative Therapies)

#30 - Just Blaze: This Sickle Cell Advocate is on Fire

#29 - Kickin' it with Dr. Krish: How One Man is Changing the Way we Think About Sickle Cell Cures

#28 - Finding Opportunity in Crisis; How Phill Okwo is Making Us Better Doctors

#27 - SCD and Reproductive Health: Teonna Woolford is S(C)HRED-ding Through Disparities

#26 - Transforming Sickle Cell Care: A Fireside Chat with Dr. Julie Kanter

#25 - Sickle Cell Folklore with Dr. Elliott Vichinsky

#24 - Hertz Nazaire: PAINting away the PAIN

#23 - Implementation Science and SCD: Following the Playbook with Lewis Hsu