Michael is 24 years old with CF and 5 months post double lung transplant. Michael is from Nebraska, and loves fishing, hunting, exercising, and EMS. Michael also loves the outdoors and helping people. He was diagnosed at 4 months old and has a younger sister who is 20 years old, without CF.

• Michael never let's his CF stop him from doing the things he enjoys
• In 2001 Mike began to understand the severity to his CF, due to a collapsed lung.
• Michael believes that with a life threatening disease "feel lonely at times" is typical, so you need an outlet like exercise to feel better.
• Michael states"Post transplant, is the best I have felt. Ever… I can finally breathe and have a great outlook on life" and he is extremely thankful to the donor.
• Michael believes "if he keeps working hard and exercising he can keep his new lungs healthy and have a great quality of life" Life with a life threatening disease is "difficult"
• Michael is happy to wake up every morning and enjoy life and thankful to his donor and family everyday

This educational podcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

Adriane De Moerloose

Adriane is married with 3 children, and currently resides in North Carolina. She and her husband are the happy parents of 3 children. Alexis 7, Andrew 4.5, with CF, and Olivia who passed away 6 years ago from a rare heart disease. She currently enjoys running, biking, and hiking with her family. She also enjoys writing, listening to music and working out at the gym. She believes it is important to have inner strength and always be positive.

• Adriane and her husband, Peter, believed that they needed to "buckle down" and get ready for another battle when they found out their son, Andrew, was diagnosed with CF.
• She relied a lot on close friends and family. They also reached out to other parents who have children with CF.
• She focused on one thought: "How can I raise my child while he will be dealing with a chronic illness everyday"
• Andrew started to question his CF when he was 2.5-3 years old.
• Andrew's treatments are "Non-Negotiable"
• He has begun teaching his peers about his CF and his treatments. He is a 3 year old CF Advocate

To learn more about Adriane and the ways she manages her mental well being, please listen to her podcast. 

This educational podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

In this podcast we meet Will Schlucter, a 26 year-old CF patient who owns his own gym, Will Power Strength and Conditioning. After years during his youth of taking breaks during athletics, Will decided, as an adult, to push through his coughing, expand his limits, and leave his comfort zone while working out - which led to a love of training himself and other people.

This video podcast/vodcast was made possible through an unrestricted educational grant from Novartis to the Boomer Esiason Foundation.

Today, you will meet Brayden Merrill, a 14-year-old with cystic fibrosis who stays healthy by playing soccer, track, and cross country. For someone so young, he is very open about his disease and uses it as a reason to train harder – uses it to his advantage as a motivation. His younger brother Noah (8) also has CF, and Brayden does everything he can to be a good role model and to teach him how to stay healthy.

This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Today, we meet Sabrina Walker who is 30 years old living, breathing, and succeeding with cystic fibrosis in Anchorage, Alaska. Growing up, her parents encouraged her to stay active and play sports – not allowing her to make excuses about why CF would stop her. Sabrina's mom is the person who sparked her love of running in order to keep her lungs clear. Not only does Sabrina battle CF on a day-to-day basis, she is also a cancer survivor, wife, and mother who keeps a positive attitude through it all.

This video podcast/vodcast was made possible through an educational grant from Gilead to the Boomer Esiason Foundation.

Name: "Jumping the Fear with CF

Sponsor: Genentech

Callie Deanda,: 

• 20 years old with CF, athletic, attending college, and from Tennesse
• Hobbies include soccer (plays on varsity team), hiking, cross-stitching
• Watching Buffy & Vampire Slayer with friends and Callie is a huge Sporting Clays fan
• Callie believes that we all need to "jump the fear" with CF.you never know what's going to happen in life… big fear of the unknown things just happen so ENJOY!
• Family "24 hour rule" get over things in life and move forward…
• Callie and her family believe you should not get stuck in CF.
• CF opens doors!
• Callie loves life and always finds joy in life
• Callie's advice… "We all need people in life, we cannot do on our own

This podcast was made possible from an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

In this podcast, we hear from Jerry's CF medical team about his journey with CF and life post-transplant. They share how they work as a team to make patients with CF feel cared for and supported. For Jerry, because of the extensive amount of time he spends with them, his doctors and nurses at Columbia University Medical Center have become like extended family – a group of caring individuals who tirelessly work to make sure he has a long, successful life.

This video podcast/vodcast was made possible through an unrestricted educational grant made from Gilead to the Boomer Esiason Foundation.

In this podcast, we meet some of "Jerry's kids" – the young athletes he dedicates a great deal of his time to coaching in the sport of pole vault. Just as in his professional life, Jerry runs a tight ship… something his kids would heartily confirm. And it is that passion and dedication that inspires these athletes to work harder and longer than anyone else on the track. In turn, that hard work continues to inspire Jerry in his own life living with cystic fibrosis.

This video podcast/vodcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

In this podcast, Mary Cahill – mother to Jerry Cahill – sits down to discuss what it was like raising a CF child among her other "normal" children. She shares the story of his diagnosis and the subsequent decision that she and her husband made to treat Jerry the exact same as his siblings – encouraging him to play sports and get out and be as active as possible. This decision led Jerry to live an active, healthy, and successful life, enabling him to get to where he is today.

This educational video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Gunnar Esiason sat down with BEF CF Ambassador Jerry Cahill recently to find out more about his double lung transplant and the way his life has changed since he had the procedure 4 years ago. Jerry shares the many ways in which he has traded certain CF issues for complications that come along with any transplanted organs – and also reminds us that a transplant is not a cure; that he still has cystic fibrosis.

This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

In this podcast, we hear from 24-year-old, Gunnar Esiason. He discusses how important it is for people with cystic fibrosis to remain compliant – with their medications, treatments, nutrition, and exercise. Gunnar also points out that airway clearance is one of the most important things he does to stay healthy and – outside of using a vest, percussor, and exercising – that he uses a machine called a frequencer. Check out the video to learn more!

This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

“I felt guilty I didn’t have the disease.”

To Sydney Esiason, there is no bigger duty of a sibling than to be the other’s biggest fan and supporter. While Gunnar has been in the spotlight for the majority of his life because of cystic fibrosis, Sydney has been there right beside him, cheering him on – quite literally. The duo attended the same schools all the way through Boston College. Tune in to hear Sydney tell her story of growing up as a sister to someone with cystic fibrosis.

This podcast was made possible through an unrestricted educational grant from Novartis to the Boomer Esiason Foundation.

CF Podcast 153: CF, Living in Two Worlds, the Healthy and the Sick with Jen Eisenmann

 Today we meet Jen Eisenmann, a 44-year-old living, breathing, and succeeding with cystic fibrosis. Diagnosed at 12 months old, Jen grew up similarly to most other kids, other than having to take enzymes and do occasional chest percussions. Because her parents had never heard of cystic fibrosis, they were wary of her participation in athletics, and so directed her in the direction of music as an extracurricular activity.

*      At 22 years old, Jen visited a CF clinic for the first time.

*      She had, admittedly, been naïve about the seriousness of CF and the need to care for herself.

*      Her new doctors told her she had to change her ways to survive.

 Listen in to the latest CF podcast to hear Jen’s entire story.

 This CF Podcast was made possible through an unrestricted, education grant from Genentech to the Boomer Esiason Foundation.

Today, you will meet Amy Whelan, a 21 year old from Dublin, Ireland. She was diagnosed at two weeks old, when her identical twin was extremely ill.

*      Amy is studying anthropology and sociology in college.

*      She enjoys reading, writing, and watching movies.

*      Growing up, she did not have to do as many lung-based treatments. Now she has had to adjust to adding those treatments to her medical regime.

This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Today we meet Jessie Ennis, a 22 year old with CF who was born and raised in Dublin, Ireland. Because of a family history of the disease, Jessie's parents had her tested for CF before she was six weeks of age. In spite of CF, she had a relatively normal childhood - growing up with her brother and a series of foster kids - and remained healthy through high school. 

Now Jessie: 

• studies health and society in college,
• is currently visiting and working a summer job in San Diego,
• and has taken up surfing and skiing. 

To learn more about Jessie and the ways she manages her disease while pursuing her goals, please listen to her podcast here [insert link]. 

This educational podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

“Comfort With Your Feeding Tube”

The fourth episode of the Own Your Feeding Tube video podcast series discusses some of the social questions that tube feeders, or potential tube feeders, may have when it comes to a new feeding tube. Obviously, it’s a pretty noticeable device. I think the social hurdle was really the biggest one that I had to overcome. With that being said, once I realized the benefits of the feeding tube, especially in my life, it was an easy hurdle to get passed. Here, the message is that I really want you to own it. What is it? The feeding tube. If the feeding helping make your life easier, then don’t worry about what it looks like. You never know where it will lead you.

Today we meet 40 year old, Sean Sullivan, who was diagnosed with CF at 16 months after his parents grew concerned about his chronic cough and lack of weight gain. Sean is the oldest of six kids and is the only person in his family who has CF.

ï      He grew up extremely active – playing basketball, baseball, and swimming.

ï      His doctors encouraged his parents to treat him the same as their other children.

ï      From a young age, he learned to be not only medically compliant but also stick to an active lifestyle.

ï      Now 6 months post transplant, Sean is even more vigilant than ever while taking care of his disease and its new challenges.

This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

“What Can I expect From My New Feeding Tube?”

The second episode of the Own Your Feeding Tube video podcast series will show you how I have had to make a few lifestyle changes after I had my feeding tube placed.

I agree, it can seem like a lot of work and even a little scary at first, but I can honestly tell you that living a full, healthy life with both CF and feeding tube can be done. Here, you will see what I have done to overcome any challenges that a feeding tube may present.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Services.

“Normalcy with a Feeding Tube”

In the third episode of the Own Your Feeding Tube video podcast series, you will see how I have been able to maintain my physically active lifestyle. Prior to getting my feeding tube placed, I had a fear that my life would change drastically. It did, but for the better. My health drastically improved, plus I saw my energy and activity level sky rocket. I was in the gym and on the ice only 6 weeks after surgery. While the feeding tube does require a little extra work outside of the realm of normal cystic fibrosis responsibilities, I am more than willing to give a little hard work for such incredible gains.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Science.

Today, we meet Jillian McNulty, a 38 year old woman living, breathing, and succeeding with cystic fibrosis in Ireland. Growing up as one of four kids, she is outgoing and constantly challenges herself to stay on top of her disease. 

- During her childhood, Jillian was never hospitalized for an extended length of time. 

- In her early thirties, Jillian's health started to decline, and so she made the decision to push herself with exercise. 

- After seeing an ad for a marathon while she is in the hospital, Jillian decided to sign up and start training. 

- Since then, she continues to push herself by running, walking, and cycling on a regular basis and by competing in races. 

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. 

Today, we meet Chris Peacock, a 26 year old native of Durham, UK who loves sports, poker, and spending time with his girlfriend and friends. 

- Chris suffered a collapsed lung in 2011. 

- He stepped out of his comfort zone and started dedicating time to exercise and now walks/runs 2 miles every day.

- Because of his health issues, he is on home oxygen. But after starting his exercise regime, he only uses it at night and hopes that one day, with continued fitness, he will not need it at all. 

- Chris says that his friends generally don't treat him any differently, but don't fully grasp how serious his disease is because he never lets it slow him down. 

This CF podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

In the first episode of the Own Your Feeding Tube video podcast series, this “How-To” video will show how I am able to use my feeding tube in different situations. I cover two different types of “feeds,” bolus feeds and nocturnal pump feeds. Bolus feeds are quick and easy and can get me as much as 750 calories in just a few minutes. My nocturnal feeds typically run for about 7 hours and give me anywhere from 1500-2500 calories depending on how much formula I use.

I also discuss how the feeding tube system is undergoing a change to the ENfit connector system. The current ENfit transitional set has been introduced and has created many questions for tube feeders. In 2016, feeding tubes and their accompanying pieces will complete the total transition to the ENfit connector system, which is designed to improve patient safety. Hopefully this video can help answer some of those questions.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Science.

Managing a Career with Cystic Fibrosis

Today, you will meet Jonny Simpson, who is living, breathing, and succeeding with cystic fibrosis. 

- 28 years old

- From Penrith, Cumbria, UK

- His hobbies include bodybuilding, literature, and music.

- He is one of four boys. 

- He works in sports marketing and also personal training. 

This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

- He plays soccer and boxes - generally trying to get to the gym at least 4 days a week with his friends - and also loves music and DJing. 

- After 19 years without an extended stay at the doctor's, Gary fell ill and was hospitalized for 6 weeks. 

- During that time, he lost a great deal of weight - leading him to the decision to get a feeding tube. 

- He uses his feeding tube every night and has seen a major change in his ability to retain weight and has much higher energy levels. 

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. 

CF Podcast 145: Being a Father with CF

Tim Wotton 

Meet Tim Wotton, 44 years old, with CF.  Tim is from London, U.K.  He was an international junior field hockey player, works full time as a business consultant, and continues to play hockey and visit the gym regularly. 

Tim is a loving husband, father, and has two brothers, one of which is a twin.   Tim is loving life with his family and proving everyday that he is OWNING IT! 

• Tim discusses CF and starting a family through in vitro fertilization.

• It took Tim and his wife 6 IVF cycles to have their son Felix.

• Tim’s son’s name Felix is Latin for lucky and Greek for happy.

• Tim see’s all of his “tomorrows” in Felix

• Tim has his own blog and book titled ‘How Have I Cheated Death?” 

• Tim’s Quote: “Everyone needs to row their own boat, with CF”

In this CF Podcast, we meet Bryan Warnecke – the young man with cystic fibrosis who was featured in the One Republic I Lived music video. He OWNS his disease every day by staying compliant and exercising. Active in various athletics, he is extremely passionate about ice hockey – a sport in which his team has won a state championship. Bryan’s goal is to become the first goalie with cystic fibrosis to play in the Olympics for Team USA.

This video podcast/vodcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

In this podcast you’ll see how I have taken to the coaching word, despite dealing with cystic fibrosis. Growing up, I was lucky enough to have some great coaches along the way. They always knew how far they could push me – just beyond the breaking point. I owe a lot of my character and success in life to my mentors, especially my coaches. They taught me invaluable life lessons away from sports that I one-day hope to pass on to my athletes. Success is something that is attainable for everyone, but not without hard work.

This video podcast/vodcast was made possible through an unrestricted, education grant to the Boomer Esiason Foundation from Chiesi.

Lar Brennan, 30 years old post transplant with CF, born and raised in Wexford, Ireland and was diagnosed at 9 months of age. Lar is an athlete, sports enthusiast, and passionate about fitness. Lar  received a double lung transplant on November 24^th 2013.

Lar studied fitness in college and is now a fitness instructor. Since his transplant Lar does everything he can to raise awareness and empower people with CF to excel in everyday life. Lar is RELENTLESS in his quest to stay fit and beat CF. Lar believes that through the “power of exercise” he cannot fail…

Lar states:  “you need to stay positive and believe in yourself”

Lar’s quote: “Smile and wave…”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Meet Tim Sweeney, a 37-year-old personal trainer living, breathing, and succeeding with cystic fibrosis. Tim, who ran the NYC Marathon one year after his double lung transplant, and his wife Beth have had two children – Timmy and Harrison – using IVF. While there are not many resources for CF couples going through IVF, the Sweeneys want other people going through the same process to know that it can and does work; that people living with CF can successfully start a family.

his video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Meet Colin (11) and Sean (9) Randles – brothers who are living, breathing, and succeeding with cystic fibrosis. The brothers are active in sports, including baseball and basketball, and are constantly playing games like cops and robbers and tag outside with friends.

They both agree that the best part of having a brother with CF is that they are always there to encourage each other, to hang out in the hospital, and to help each other get better.

This video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Wise words given to CF mom, Whitney Randles, from her boys’ grandfather: “Special children are only given to special people.”

Pat Randle: “My biggest fear is that I outlive my children – simple as that; that shouldn’t be. And I don’t want that to happen. That’s where it begins and ends with the fear. I don’t want that to happen.”

In this podcast, CF parents Pat and Whitney Randles, discuss the challenges they have faced while raising two young sons with cystic fibrosis. While most parents face the normal ups and downs of learning to raise kids, the Randles had additional challenges when they were told that they oldest son, Colin (now 11), had CF. When their second son, Sean (now 9), was born with CF – they faced an additional set of trials, balancing schedules and medications, among other things.

The Randles are constantly learning the best way to raise their kids. They depend on one main phrase every day: “Do CF life first, then do your normal life.” By constantly challenging their boys to stay compliant and healthy, they are instilling skills both Colin and Sean will hold onto into the future.

This CF video podcast was made possible through an unrestricted education grant from Genentech to the Boomer Esiason Foundation.

Gunnar Esiason, 23 years old and living with cystic fibrosis, graduated from Boston College in May 2013. Originally planning to attend law school, he realized that he had driven himself into the ground during undergrad – forcing him to alter his plans.

Returning home to live with his parents, Gunnar decided to look into coaching high school football and hockey. After learning of an opening at his alma mater, he started work and immediately fell in love with the job and watching kids learn and succeed.

Today, Gunnar has found a balance that allows him to put his health and compliancy first while enjoying this new post-college, career phase of his life.

This video podcast/vodcast was made possible through an unrestricted education grant from Chiesi.

Lizz Kaup, 34 with CF, born and raised in California and currently living in Tecumseh, Oklahoma. Lizz was diagnosed at age 3 and is currently working as a senior social worker at a medium-secure juvenile facility and recently completed her program at East Central University.

Lizz is active in her church and loves to travel. Lizz is always on the lookout for her next adventure. Due to her low FEV’s, Lizz exercises with oxygen and is RELENTLESS in her quest to stay fit and beat CF. Lizz has found that through the “power of exercise” she cannot fail with CF. 

• Lizz was hospitalized a lot growing up between the ages of 13 - 18 but states “My parents were amazing and taught independence”.
• Lizz started to exercise consistently due to the decline of her lung functions to help delay a double lung transplant. Lizz made a commitment to exercising by doing treadmill for 30 minutes, 7 days/week. “It was difficult but I noticed slow improvement in my strength.
• Lizz currently does weight training, treadmill, and biking. 
• “For me, the rewards of exercise include muscle tone, breathe a little better, and more energy”.
• Lizz did her first 5K event, the Dirty Thirty. “It was a mud run (with obstacles) and I did it with my oxygen tank”.
• “Coping with CF is not always easy… but I maintain a heart of gratitude, thinking of the good things in life and the great support of my family” states Lizz.
• Lizz’s Tips:
• “Just start”
• “Have a support staff”
• “Faced with challenges… ALWAYS look for the silver lining”
• “ Continue to fight!” 
• “Life is an Adventure… GO for it!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Meet Beau Rich – a 23-year-old filmmaker, actor, writer, musician, and traveler living, breathing, and succeeding with cystic fibrosis.

After a series of tests and hospital stays, Beau was diagnosed with CF at six months old. By the age of 11, he took up skateboarding and discovered that it was a fun way to stay in shape and clear his lungs. Today, Beau makes a daily effort to stay healthy by staying compliant and exercising so that he can live life however he wants. By using his portable vest and treatments, he is able to stay healthy on the go and is able to keep his body moving so that he can enjoy every single day.

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

The Boomer Esiason Foundation (BEF) is launching its newest Team Boomer event series, Bike to Breathe, which kicks off with Jerry and Em’s Great CF Adventure – a journey that will take the two cystic fibrosis (CF) advocates on a 500-mile bike ride from Cary, N.C. to Baltimore, M.D.

Jerry Cahill and Emily Schaller will start their ride from the Chiesi USA headquarters, located at 1255 Crescent Green, Cary, NC 27518, at 10 a.m. on Monday, Sept. 15, 2014.

The Team Boomer event series encourages people with cystic fibrosis and their families to stay active and exercise in order to stay healthy.

Cahill is a 58-year-old CF patient and double lung transplant survivor who is living proof that an active, healthy lifestyle positively affects his quality of life. He is currently BEF’s CF Ambassador, volunteering for the Foundation to help the CF community in the here and now.

Schaller is a 32-year-old CF patient who started cycling, running, and exercising in 2007, when she was introduced to Cahill’s story, because she was “sick of being sick.” At the same time, she started the Rock CF Foundation to heighten public awareness about her disease and to raise money for research.

This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Anna Modlin, 32 with CF, born and raised in the Bay area and had a double lung transplant on November 22^nd 2010. Anna was diagnosed at 18 month of age, had a fairly normal childhood, hospitalized for the first time at 4 years of age and then not until junior high school. Anna graduated with a Masters in Counseling Psychology and her hobbies include cooking, spending time near water, and post transplant has become passionate about exercise. Anna, a true fighter, competes in the Transplant Games and gives back by volunteering in the CF community. Anna is LIVING BREATHING SUCCEEDING, passionate about living and “The hero of her own story…”

• Anna prepares a travel list before ever adventure.
• Some things on the list include: Mira Lax, masks (N95), hand sanitizer, Clorox wipes, and an extra lithium battery for her glucose meter.
• Anna always “carries on” her medications, has a letter from the doctor, washes hands frequently, and only drinks bottled water on trips (never tap water…). “Also I carry extra scripts…” states Anna.
• Anna will always request a refrigerator at hotels but if not available will use an ice bucket at hotel.
• Insurance… just in case there is a problem with flights or getting sick while travelling, Anna always purchases travel insurance. Anna likes Travel Guard. (www.travelguard.com). 
• Sinus issues? Anna travels with Neil Med saline packets for sinus rinses and uses distilled water.
• “Since constipation is common for normal people when travelling, people with CF should use Mira Lax to help combat this problem.
• Anna’s Travel Tips
• Before: check list & chargers/adapters, and pre board.
• During: Hydrate, Snack, Positive attitude
• After: Rest

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

"You can expect to live a pretty long lifespan. So don’t waste it. Have some goals. Find your passion. And pursue it.” In this podcast, we meet Eric Hyman, a 36 year old who is living, breathing, and succeeding with cystic fibrosis. He shares a little bit of his background, interests, and what keeps him motivated to stay healthy and to keep a positive attitude even when things get difficult. He has learned to gradually share with people in his life about having CF – from friends to business and work associates. One of his favorite pastimes is playing music – which helps him keep his airways clear and his lungs healthy.

This video podcast/vodcast was made possible through an unrestricted educational grant from Novartis Pharmaceuticals Corporation.

LINDSAY SHIPP, 30 years old from Madison, Wisconsin currently living in San Diego, CA for the past 7 years and studied classical ballet for over 20 years. Lindsay’s hobbies include running, spinning, heated yoga, and nutrition.

• Lindsay was diagnosed at 9 months of age.
• “I had a normal childhood and traveled the USA competing in dance,” states Lindsay.
• After 20 years of ballet Lindsay stopped exercising and her lung function dropped considerably
• “When I stopped dance and exercise I started to get sick a lot more and my lung function dropped drastically… so I started the long uphill battle back to exercising with treadmill, spinning classes, and eventually running outdoors. It took months to get back in shape and clear out my lungs,” states Lindsay.
• Living with CF and exercising is a “journey…”” and that journey is what keeps Lindsay going and evolving.
• Lindsay’s motivation to exercise is her CF and clearing out her lungs and “coughing it out”.
• Lindsay’s goal is to run the Boston Marathon in 2015.
• Lindsay’s advice…”Get out there and do any type of exercise” It’s all about the journey…

This CF Podcast is made possible through an unrestricted educational grant from GILEAD to the Boomer Esiason Foundation.

In this podcast, Jerry discusses at-home spirometers, mainly the Spiro PD - a personal spirometer that empowers respiratory patients to monitor their lung function remotely and to comply with medication and treatment protocols.

• The telemedicine feature allows patients to upload their test results to their computer in order to better communication with their medical team.
• The Spiro PD measures FVC, FEV1, FEV1/FVC, FEF 25-75, PEF, % Predicted.
• Spiro PD's audible voice coaches patients using visual cues, voice prompts, and onscreen instructions during tests to ensure accuracy.
• Spiro PD life span is at least 5 years, depending on frequency of use.
• Spiro PD is small, lightweight (only 9 ounces) and designed for portability with a re-chargeable battery that lasts several days on one charge.

To learn more about Spiro PD, please visit www.spiropd.com

* A prescription is required for all US purchases. *


This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech.

In this episode, we talk to Karen Vega from New York, who is 33 years old with CF, happily married and a mother of 3 always “on the go…” exercise enthusiast, and training for a ½ marathon. Karen never let CF get in the way of her living life to the fullest and keeping her dreams alive!

Podhaler Facts:

· TOBI Podhaler is a dry-powder treatment delivered in a disposable device.

· TOBI Podhaler is taken twice a day, and needs little setup and cleanup.

· The Podhaler is a great On-the-go device

· The unit does not require disinfection, refrigeration, power source, or batteries

· Administered in 2 – 7 Minutes (in clinical trials)

· 12.44% improvement in lungs · Helps to fight Psudomonas aeruginosa

· 64% reduction in percentage of hospitalizations

· 15% less need for intravenous (IV) antipseudomonal antibiotics

Jerry Cahill, a man in his late 50s, living, breathing, and succeeding with cystic fibrosis shares his journey through a double lung transplant. The drive behind his success is his ability to make the fight to live a competition and his gratefulness to his donor - living well and never giving up is his way to pay tribute to the person who lost his life so that Jerry could live.

Organ Donation Facts:

• 90% of Americans say they support donation, but only 30% know the essential steps to take to become a donor. 
• Every ten minutes, another name is added to the national transplant waiting list. 
• Nearly 1,800 children under the age 18 are registered on the organ transplant waiting list. 
• Eighteen patients die every day while waiting for a donated organ – an average of one person every 80 minutes. 
• Nearly 117,000 people in the United States are waiting for organ transplants – 1,668 of whom need lung transplants. 
• In spite of the 1,700 lung transplants performed in 2010, 233 patients died waiting for lungs. 

Despite continuing efforts at public education, misconceptions and inaccuracies about donation persist. Learn these facts to help you better understand organ, eye and tissue donation:

Fact: Anyone can be a potential donor regardless of age, race, or medical history.

Fact: All major religions in the United States support organ, eye and tissue donation and see it as the final act of love and generosity toward others.

Fact: If you are sick or injured and admitted to the hospital, the number one priority is to save your life. Organ, eye and tissue donation can only be considered after you are deceased.

Fact: When you are on the waiting list for an organ, what really counts is the severity of your illness, time spent waiting, blood type, and other important medical information, not your financial status or celebrity status.

Fact: An open casket funeral is possible for organ, eye and tissue donors. Through the entire donation process the body is treated with care, respect and dignity.

act: There is no cost to the donor or their family for organ or tissue donation.

To learn more about lung transplantation and organ donation, click here.

Today, you will meet Stephen Bell, a 30 year old with cystic fibrosis, who is an avid runner and exercise enthusiast. Stephen has run 8 marathons in the last 5 ½ years, and attributes his health to his commitment to staying active. Running – something that was once used as a punishment in other sports – has become something that makes him feel free, and gives him time away from everything when he is feeling overwhelmed.

This video podcast/vodcast was made possible through the promotional support and commitment from AbbVie to the CF community.

In this video, Jerry discusses several methods of airway clearance that help people with cystic fibrosis avoid lung infections. Jerry finds the following methods extremely helpful in keeping his lungs clear: the vest, the flutter, the power lung, sinus irrigation, the percussor, and last, but certainly not least, staying active and exercising regularly.

This podcast has been made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

In July 2013, runners gathered for the third consecutive year for a race Central Park in New York City. Many of those runners were there to support the cystic fibrosis community, and they shared with us their many reasons for running. From lung health to stress relief, emotional well-being to freedom from their disease, all of these people have at least one thing in common: they run to fight cystic fibrosis.

This podcast has been made possible through an unrestricted educational grant from VERTEX to the Boomer Esiason Foundation.

I Believe… in Compliance 

The "I Believe" video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis. 

In this podcast, four people who are at different stages in their fight against CF share what the word "compliance" means to them and to their health. The common belief in this video is that compliance prolongs the life of anyone living with cystic fibrosis. 

This podcast was made possible by a patient education grant from Novartis Pharmaceuticals Corporation.

I Believe 

The "I Believe" video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis. 

In this podcast, four people with CF discuss the need to have a supportive community surrounding you. All people with CF feel some sort of isolation and low points throughout their lives, but those times teach you resiliency and personal discipline. The panelists in this podcast swear by movies, music, exercise, remembering to have hope, and even having a therapeutic cry as ways to overcome difficult times. 

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Exercising with CF 

“If it’s not important, breathe it out. What’s important, breathe it in.”

In this video, Emily Schaller, a 31-year old living, breathing, and succeeding with cystic fibrosis shares her life-changing relationship with exercise and her determination to spread awareness about CF. Active in her youth and teenage years, Emily did not commit herself to making an entire lifestyle change until her lung function began to decrease in her early 20s. Since making that commitment, her health and overall lifestyle have improved dramatically.

This video was made possible through an unrestricted educational grant from Pharmaxis.

The "I Believe" video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with CF.

In this episode, the discussion focuses on Belief in exercise and its importance to everyday health. While people with CF exercise and remain active in different ways, all four people featured in this video Believe that it strengthens and clears their lungs, and allows them to be strong both mentally and physically.

Thanks to AbbVie Inc. for the promotional support and commitment to the cystic fibrosis community, which makes this program possible.

In this episode, we talk with Katie O’Grady, a 17-year old senior at North Rockland High School in New York. Katie is an avid runner and is a member of the Red Raider varsity cross country and track teams. She talks about the role sports and exercise have played in managing her CF, but particularly how beneficial running has been in keeping herself healthy. 

• Katie’s first sport was soccer. She played for five years, but eventually gravitated away from soccer and towards running.

• Katie began running early in grade school, running side-by-side with her father.

• For Katie, running provides her with an opportunity to think and take in the outdoors around her.

• By the eighth grade, Katie was her school’s best competitive runner.

• Katie says running has helped keep sinus infections at bay, while improving her breathing.

• Aside from running, Katie keeps herself in shape through weight training, swimming, and biking.

• When she does get sick, running can be frustrating for Katie, but she stays motivated by remembering the fun times at past events, and the support she has from her friends.

• In 2012, Katie crossed the finish line at the New York City Half Marathon, running for Team Boomer.

This CF Podcast is made possible through an unrestricted educational grant from GILEAD to the Boomer Esiason Foundation.

For more CF Podcasts, visit www.jerrycahill.com

In this episode, we talk with Bret and Brennan Hatfield, both of whom are brothers and enjoying high school in Omaha, Nebraska. Bret is 15, Brennan is 17, and both are living, breathing and succeeding with cystic fibrosis.

• Brett and Brennan were diagnosed with cystic fibrosis when they were four years old.

• They acknowledge the challenge that cystic fibrosis presents, but are determined to lead normal lives.

• For both, being compliant means setting up and sticking to a daily schedule for taking medications.

• Some of their favorite things to eat for breakfast include biscuits, pop tarts, bacon, and a chocolate protein shake.

• Both brothers like to run at least two miles on the treadmill and lift weights together. At times, they can get competitive with each other.

• Brennan says one of the toughest parts about having cystic fibrosis is the time treatments take away from his social life.

• Brett and Brennan both swim during the winter to stay active.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Pancreatitis is caused by pancreas not functioning properly and symptoms include nausea and pain. 
• “I deal with my pancreatitis by watching my fat and protein intake and by living more of a vegan lifestyle and I avoid dairy,” states Lisa.
• “I usually have to go into the hospital a few times a year when the pain gets severe, and I go on some antibiotics and NPO (nothing by mouth) for 4 or 5 days,” according to Lisa 
• Lisa suggests that people with CF eat better and avoid a high fat diet to keep their pancreas healthy.
• “My family and husband are a great support system for me when I am getting a severe attack as they help with all my errands and just comforting me. Oh yes, my 2 dogs and 2 cats also add support…”
• Lisa’s advice to people with CF…  “Don’t ignore it, don’t be in denial, and take care of you!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

In this episode, we talk with Gunnar Esiason, a 21-year old senior at Boston College about the daily use of a feeding tube as part of CF treatment. While Gunnar continues to remain compliant and use the feeding tube, among other treatments, he has been living independently and has been enjoying college life for the past three years.

• Gunnar was diagnosed with CF at the age of two. He is now 21 years old and a senior at Boston College.

•  Gunnar made the decision to use the feeding tube during his sophomore year in college, shortly after enduring a serious lung infection and losing significant weight.

• The surgical process of inserting the tube culminated with the placement of a “button”, an external port allowing Gunnar to receive the nutrients he needs in liquid form.

• When the tube is initially put in, doctors gave Gunnar a “goal weight”, which is the ideal weight they would like to see him reach and maintain. Before the feeding tube Gunnar’s weight was at 142 pounds. Now, he is weighing 175 pounds. His goal is 185 pounds.

• During the day, the feeding tube provides Gunnar with anywhere from 500 to 1,500 calories. At night, Gunnar may ingest upwards of 2,000 calories and sometimes totals nearly 5,000 calories per day.

• Gunnar says the feeding tube hasn’t stopped him from leading a full life and enjoying college with his friends.

• Gunnar washes his feeding tube with warm or hot water in an effort to sterilize it.

• The only adjustment Gunnar says he has had to make is learning how to sleep at night while using the feeding tube.

Big thanks to Genentech for their support and for making this CF Podcast possible.

For more CF Podcasts, visit www.jerrycahill.com

In this episode, we talk with Lynne Sampson, Executive Director and CEO of the Pennsylvania-based non-profit HelpHOPELive. Lynne and her team at HelpHOPELive are passionate about providing assistance to transplant and catastrophic injury patients, helping to bring down the cost of medical expenses.

•    HelpHOPELive works to mobilize communities in their efforts to raise money for transplant and catastrophic injury patients around the country, thereby helping the patients cover the difference between what insurance can cover and what the family can pay.

•    HelpHOPELive teaches communities how to fundraise and encourages everyone in need of help to engage their communities early.

•    Last year, the organization oversaw 572 online events for patients

•    Through HelpHOPELive, communities raised $8 million in 2011

•    Sampson says many times communities want to help, but don’t know how to do it. 

•    Using HelpHOPELive, patients will be able to keep all funds raised as tax-deductible, meaning the funds will not count towards your income.

•    All funds raised through HelpHOPELive are secured by the organization’s financial team, providing donors a sense that their donations will be accounted for and used for their intended purposes.

•    Patients using HelpHOPELive also qualify for additional grants, including HelpHOPELive matching grants

For more on HelpHOPELive, visit www.helphopelive.org

Joe Sleeper is LIVING BREATHING SUCCEEDING and determined that he WILL NOT FAIL…

• Joe has never defined himself by his cystic fibrosis.
• After heading a rebellious downward spiral in his teen years, he regrouped and took control of his CF after his sister passed away from the disease. “I had to regroup and take control of my life when my sister was gone. I was always sick with infections, my weight dropped to 118 pounds, and my PFTs were in the 20s… not a good thing,” stated Joe. 

• “I wanted to change… I did NOT want to be sick… the light bulb went on in my head and I took control. I went to Barnes & Noble and started looking at fitness magazines and started reading Muscle Magazine. I also started going to the gym and started lifting weights,” states Joe.
• Joe noticed he started gaining weight in a few weeks and after several months his PFT’s went up. “Over time I gained over 50 pounds and my PFT’s went from 20% to 58%.”
• Joe’s biggest challenge with CF is time management but he is confident that he will continue to “Breathe Easy” with his fiancée, Jennifer. – “My greatest support system along with my parents”.
• “Being disciplined with my CF treatments and my exercise is an investment I make so I can enjoy life” states Joe.
• Joe’s recommendations to young people with CF rebelling like he did: “CF today is a different game – It’s NOT a loosing game. You can and will live well past 30 years old. YOU are NORMAL and YOU are worth it!”
• What Joe wants people to know about him: “I am not a CF patient, I am just Joe, a guy that love riding motorcycles.” 

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

For 56 years, Jerry Cahill has courageously battled cystic fibrosis while awaiting a life-saving double-lung transplant.

In April 2012, Jerry got the call. A new pair of lungs had become available.

As a testament to his courage and dogged perseverance, Jerry crossed the finish line at the 2012 Boomer's Run to Breathe 10K - barely three months removed from his transplant surgery.

Now, for the first time since that surgery, Jerry opens up about life before and after receiving a new set of lungs.

July 21, 2012

Central Park
New York, NY

In its second year of existence, the Boomer's Run to Breathe 10K saw over 5,000 runners come out in support of the Boomer Esiason's fight against cystic fibrosis.

Among them, Jerry Cahill - a 56 year-old living, breathing and succeeding role model to the cystic fibrosis community. Barely three months after receiving a double-lung transplant, Jerry took to the pavement in Central Park and completed a challenging 10K.

Today, Jerry continues to inspire the CF community through his involvement in high school coaching,Team Boomer (www.esiason.org/teamboomer) and his newest initiative, You Cannot Fail (www.youcannotfail.com).

Follow Jerry through the CF Podcasts (www.jerrycahill.com), CF WindSprints (www.cfwindsprints.com), and via Twitter (@bigair).

Catherine Hopkins is facing the challenge of balancing a full-time job as a vet technician while making it possible for her 3 year old son, Philip to LIVE BREATHE SUCCEED with CF. Catherine and her husband, David, knew the diagnosis was a possibility just 8 weeks into the pregnancy and dove into research immediately. Since then, they have relied on their faith, friends, and family for support throughout their journey.  

• When Philip was diagnosed at 3 weeks old, they jumped into educating themselves about CF and therapies. Research and education are two of the most important things as a caregiver facing the challenges of CF.
• “We have been lucky,” Catherine states. In three years Philip has never been hospitalized or had any major scares. 
• At just 3 years old, Philip is brave in handling his therapies. “He’s my hero,” states Catherine. She is glad he was diagnosed young because it is all he knows. 
• Catherine is a CF mom, but she is also a normal mom who wants the same things all other moms want for their children. 
• Catherine and her family don’t think twice about the everyday responsibilities of a CF caregiver. “It’s just a part of our life,” states Catherine. 

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Bobby Bebber: Overcoming ALL Obstacles with CF

Bobby Bebber, 28 years old and living in Miami, Fla., was diagnosed with cystic fibrosis (CF) at age two. Bobby has had three liver transplants and a kidney transplant, and he also has CF-related diabetes, but he continues to fight on and NEVER give up. Bobby, who discusses overcoming all obstacles with CF, is LIVING BREATHING & SUCCEEDING. 

• Bobby grew up pretty fast. He was in the hospital a lot during his childhood, including for three liver transplants (October 1987, November1987 and May 2001).  Bobby’s mom donated a kidney to him.
• “My CF has mainly been digestive issues, but now the respiratory component has kicked in, and I am now listed for a double-lung transplant at Duke Medical Center,” Bobby says.
• Bobby loves sports and played soccer and intramural basketball in high school. He also is passionate about horse racing.  “My uncle owns a few race horses,” he says.
• “The hardest part about living with CF is not having the lung capacity to do what I like … Being on oxygen limits you,” Bobby says.
• Bobby’s biggest accomplishment was graduating college, because “I never thought I would do it,” he says.
• “My goal is to visit all 50 states and live to be 50 years old,” Bobby says.
• Bobby’s recommendation to others with CF: “Never give up. No matter what people tell you, be a fighter!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Jerry, 55 and living with cystic fibrosis, is a volunteer who manages BEF's scholarship and transplant grants programs. He also founded the Team Boomer - Fighting Cystic Fibrosis athletic program, hosts a regular CF podcast and produces the CF Wind Sprintvideo series. In addition, Jerry last fall launched the You Cannot Fail: You Are the Hero of Your Own Story campaign.

Jerry's surgeons earlier today reported that the transplant procedure was a success and that Jerry has been transferred to the intensive care unit at Columbia University Medical Center.

Please join with us in sending thoughts and prayers to Jerry, his family, his medical team and the donor's family during the critical post-op time period. For updates on Jerry's recovery, please visit the BEF Facebook page.

We also invite you to visit Jerry's page in the CF Stories section of our website, where you can view his You Cannot Fail video and read through his complete biography.

Forty-five-year-old Rick grew up Queens, N.Y., and was diagnosed with cystic fibrosis at six months. He now is married to his caring wife, Leigh, and the proud father of their 15-year-old daughter, Marty.

Rick, who has spent more than 20 years in the medical field, became a registered nurse in 1990. One of his hobbies includes breeding Sharpie dogs.

•    Growing up, Rick’s life was pretty normal and included exercise and bike riding. But his health started to go downhill when he was 26.

•    “I was listed in March of 2010, and I was blessed to have a very supportive family,” Rick says.

•    “The first thing I noticed post-transplant was that I could BREATHE… I could take a deep breath without coughing… it was truly amazing,” he says.

•    Post-transplant, Rick became the “can do” dad.  “I was able to take my daughter to the mall and walk around with her and shop. That is a great feeling,” Rick says.

•    Rick’s recommendation to people with CF who are thinking about a transplant: “Fight your depression, stay active, and have a strong support team you can talk to.”

•    “I have a new lease on life, and I am a productive, normal guy again. I am very thankful to my donor family,” Rick says.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Colleen Caul was born into a big Irish family in St. Louis, Mo. Growing up, Colleen was always active, but her whole life changed in 2004, when her uncle started to coach her little sister, Katie Rose, how to run. Katie Rose has cystic fibrosis. Elated to see the positive effect that running was having on her sister’s health, and inspired by their dedication, Colleen started to run.

In the past five years, Colleen has completed four marathons and recently completed the “Run for Roses,” a 65-day running pilgrimage to spread awareness, raise funds and share stories about cystic fibrosis.

Colleen founded the Run for Roses Foundation (www.runforroses.com) to support her efforts to raise funds toward a cure for CF.

-    In honor of her sister, Katie Rose, Colleen ran from St. Louis to New York City from July to September 2011. She ran 1,000 miles in 65 days for one dream: to cure cystic fibrosis.
-    Colleen ran 15.5 miles each day, and her stretching routine was about three hours a day. She ate Starburst candy for energy during her runs and refueled with chocolate milk.
-    During the 65-day run, Colleen blogged with friends and fans. In Ohio, she had the opportunity to run with a family that has two children with CF. “It was amazing, they both ran four miles with me,” Colleen says.
-    “People with CF never have a day off … when things got tough during a run, I just thought of that and said I can do it!” she says.
-     “Crossing the finish line in New York City was incredible,” Colleen says. “Katie, family and friends joined in for the last five miles – it was an out-of-body experience that I will never forget.”
-    The overall message Colleen wants Run for Roses to communicate is HOPE & POSITIVITY.


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Josh Mogren is a 32-year-old with cystic fibrosis and cerebral palsy. Josh, who lives in St. Paul, Minn., discusses overcoming all obstacles with CF, including the loss of his sister, Angela, to CF. Josh has been happily married to Carly for five years, and also enjoys the company of their two dogs and the puppet, “Moganko.”  Josh has a blog (www.welcometojoshland.com), is a movie buff, enjoys singing karaoke, and is LIVING BREATHING & LOVING LIFE. 

• Josh was diagnosed with CF at birth; his older sister, Angela, also had CF.
• Josh has fond memories of his Angela: “Angie was strong-willed, very funny and a real prankster. My sister taught me to be a strong advocate for myself, and that is very important when you have an illness like CF,” Josh says.
• “Growing up, Angie was a lot sicker than I was, and that was very frustrating for her. I felt terrible about it ‘cause I was doing so much better – it was not fair,” he says.
• Josh believes it’s ok to be sad but that people with CF have to keep fighting and be HAPPY! 
• “Having fun and making light of things is the key to being happy. That is why I created my blog and YouTube site (“Welcome to Joshland”). I share a lot of my thoughts and stories about my life, CF, and otherwise,” Josh says. 
• Josh appreciates things a lot more since the loss of Angie, and he feels blessed to have a great family and friends.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Marc Smolowitz, making his directorial debut, speaks about “The Power of Two” documentary film.

 “The Power of Two” offers an intimate portrayal of the bond between half–Japanese twin sisters, Anabel Stenzel and Isabel Stenzel Byrnes, their battle with the fatal genetic disease cystic fibrosis and the miraculous survival through double-lung transplants. 

• “Reading their book sealed the deal to make the film. Ana and Isa are great writers,” Marc says.
• Marc enjoys heath care storytelling that lends itself to bigger and more personal issues. “Seeing what patients go through with a chronic illness is very powerful,” Marc says.
• “Most people take breathing for granted, but it is amazing what people with CF go through just to breathe… I tried to focus a lot on breathing throughout the film,” he says.
• Marc’s trip to Japan with Ana and Isa was amazing. “Ana and Isa are cultural ambassadors.”
• “The Power of Two” engages the multiple communities: cystic fibrosis; transplant; and medical and health care. “Engage with us…”
• For more information on the film: www.thepoweroftwomovie.com.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Jerry Cahill has been an inspiration to the CF community for many years.  His message of living, breathing, and succeeding has touched the lives of many people living with cystic fibrosis.

Recently, we tagged along with him on the way to Milwaukee, where he spoke to packed house at Children's Hospital of Wisconsin.  Jerry's message was clear - everyone with CF should be exercising and getting involved in the CF community.  Jerry talks about his lifelong struggle with CF and his no-nonsense approach to managing CF on a daily basis.

To learn more about Jerry Cahill, the Boomer Esiason Foundation, and cystic fibrosis, be sure to visit our website at www.esiason.org. Share your thoughts and stories with Jerry by e-mailing him at jcahill@esiason.org.

Jessica was born and raised in North Carolina and graduated with honors from the University of North Carolina with a degree in political science and psychology. She now works from home as a trader as well as part-time for a clothing retailer.

Jessica likes to keep up with American politics, bury her head in a good book, experiment in the kitchen, and shop.  Jessica is living - breathing - succeeding with CF every day!

    •    Jessica is an only child and was diagnosed at birth via meconium illeus.

    •    “Being organized with all your medical information makes you very independent, pro-active, and a collaborative patient, rather than reactive-passive,” Jessica says.

    •    Jessica stays organized with her health by using a “cheat sheet,” health notebook, Google Docs or a flash drive, pill strips, a hospital kit and a checklist.

    •    “It’s important to stay organized because it’s YOUR body and YOUR health, not your doctor’s. Being organized will minimize medical mistakes,” she emphasizes.

    •    Jessica blogs about life with CF (and other things…) at: http://breathsentence.blogpot.com

    •    Jennifer’s advice to others with CF: “Be compliant and get organized!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Megan will discuss what it’s like to wear “many different hats” as parent, caregiver, friend, advocate, and on and on…

    •    When her daughter was initially diagnosed Megan leaned on her faith, family, friends, and doctors for support.

    •    Megan’s initial focus for her children with CF was “being diligent to treatments to keep them healthy and keeping a positive attitude”.

    •    “I try to stay pro-active in the CF community with CF Walks, school projects (working on SKYPE for her son to do with teachers when he is sick at home), and fundraising support from local businesses”, states Megan.

    •    “Everything I do for my children with CF is times two… so I try and simplify and make them independent with all treatments and medications. This becomes a juggling act at times but well worth the effort”, states Megan.

    •    Megan’s advice to other parents/caregivers: “be patient, open a dialog and communicate, have a support team, and it’s ok to take a day off…”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Valerie has been happily married for 24 years and is the proud mom of healthy twins who are now 22 years old.  Valerie studied in Paris, majoring in international business, She speaks three languages and has worked for an international computer company. Val’s passion is cooking, especially Italian food, and her dream vacation is to return to Paris for her 25th wedding anniversary.

Valerie is living, breathing and succeeding in Illinois with her beautiful family, and although she still has CF, she breathes easier with her new lungs.

-    Valerie was diagnosed with CF at 22 months old. “I’m grateful to my parents who raised me with high expectations, and treated me like a normal child,” she says.
-    Pre-transplant, Valerie was always sick, everything was an effort, and due to lack of oxygen, she always was tired. “Life pre-transplant was overwhelming, as my FEV’s were less than 20 percent,” Valerie explains.
-    Growing up, Valerie was active in swimming, cheerleading and skiing. Post-transplant, she stays active by biking.
-     “Transplant is not a cure … you trade one disease for the other, but this disease is better, I can breathe,” she says.
-    “Life post-transplant initially is a little bumpy, but you will get through it and it is worth it,” Valerie says.
-    Valerie’s advice: “Don’t touch your face, eyes, nose … that is how we all pick up germs and get sick.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Karen is LIVING, BREATHING and SUCCEEDING with a beautiful family!

A little more than a decade ago, marriage and starting a family seemed to be an unthinkable dream for people with CF. Through advancements in treatment of the disease and being compliant, the dream became a reality for Karen and her husband.

•    Karen grew up in New York, was diagnosed with CF at eight months and also has a brother with CF.
•    Karen attended Fordham University, worked on Wall Street for six years, and now is a stay-at-home mom.
•    “My doctor was very supportive and recommended my FEV’s be above 70 percent before deciding to start a family,” Karen says.
•    “One medical concern with a CF pregnancy is that sometimes people develop diabetes (CFRD),” she explains.
•    Karen saw a high-risk OB, and she also saw the doctors every two months instead of three months.
•    “You must establish a routine to balance family and health, and it’s important to have a good support team,” Karen says. “My mom moved in to assist me after I gave birth to Jayden and Logan.”
•    “The biggest challenge I face being a mom is time management,” Karen says. “I started jogging, and the exercise has been a major factor in keeping me healthy and a good way to get out with my two beautiful boys in the stroller.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

PALS is a nonprofit 501(3)c that is helping the CF community and “changing the world, one flight at a time …”

-    PALS offers three missions:

• Medical Missions help people with CF who need medical care but cannot afford air transportation.
• Compassion Missions assist family members traveling with individuals with CF. “This relieves a lot of stress,” according to Eileen.
• Humanitarian Missions where PALS assists with national disasters.

-    “PALS is not an air ambulance, and the pilots are not medically trained. We offer financial support through free flights for those people with CF in need,” Eileen explains.

-    Pilots associated with PALS volunteer their time, plane and fuel to help people with medical problems such as CF.

-    PALS flight requirements:

• Financial need must be verified with a social worker.
• Patient must be ambulatory and medically stable.
• If individual requires oxygen, it must be FAA approved. PALS does not provide oxygen.

-    PALS can fly to and from more than 5,000 airports.

-    PALS can cover flights in the entire Northeastern United States, and they are linked nationally through the Air Care Alliance Group.

-    Contact info:

• www.palservices.org
• 888-818-1231 or 516-300-1660

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Gunnar was diagnosed with CF at the age of two. He had a normal childhood and played lacrosse, baseball, football and ice hockey. Gunnar, despite the usual frustrations, never lets CF get in his way from leading a normal life.
• Gunnar feels very comfortable living with roommates in a dorm setting and sharing about cystic fibrosis. “Having roommates just adds to the whole college experience … I would not do it any other way,” he says.
• “Going away to college has taught me to be more independent, and be responsible for doing my medications, airway clearance, getting enough rest, cooking and proper nutrition. I don’t want to get sick, so I have learned to take responsibility for my actions,” Gunnar says.
• Gunnar values sleep and tries to get nine to 10 hours a night. His priorities are staying healthy, academics and socializing. Regarding socializing at college: “You have to make the right decisions and avoid people who smoke.”
• Gunnar on telling people at college he has CF: “I am straight up with them and keep it simple – it’s a respiratory disease. Telling people I have CF helps them and myself grow – that is part of the college experience …”
• Gunnar’s role models: “My parents and my sister Sydney [also attending BC]. They BELIEVE in me and are always telling me I can do it. My family is the best and they always push me to take care of myself.”
• Gunnar’s advice to others thinking about going to college: “Do it – go to college and experience it! If you have the opportunity to go away to school – do it! Be independent and your own person – you will grow as a person.”
• Gunnar on Gunnar: “I am a nice person, I enjoy living life to the fullest and I have no regrets … It’s all about going forward and not living in the past …”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the fourth in our third season and is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Eric is working full-time, supporting himself financially, socializing, exercising ― he is running ING New York City Marathon for Team Boomer on November 7 ― and LIVING BREATHING SUCCEEDING through compliance.
• Eric was diagnosed at birth and had a normal childhood. “I just had to stay compliant, and I did a lot of exercise. I started ice skating and playing hockey at a very early age – everyone in Canada plays hockey.”
• Eric graduated from Wilfred Laurier University (Waterloo, Ontario) with a business degree.
• Eric enjoys participating in all sports, loves to travel (he recently made a trip to Africa) and also performs in a band.
• Regarding work: “I started working in the 10th grade and had a lot of various jobs, including sales in a sporting goods store, ground work at a golf course, and roadside construction.”
• Eric has never let CF be an issue when interviewing for a job or while working at a job. “I just keep work and CF separate, but it is important to get a job with a good health insurance plan,” Eric says.
• Eric currently works 40 to 50 hours a week in commercial banking and does a lot of analysis. He would like eventually to go into the social enterprise part of business and possibly be a college professor.
• Eric on the future of CF: “In 10 years, CF will not be looked at as a terminal illness; people with CF will live a long, full life and just have to deal with doing therapies.”
• “Family support has been the most important thing in my life that helps me get through the day when living with CF,” Eric says.
• Eric on the career world: “Go out there and add to society, set goals and accomplish them ― better the world!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the third from our third season made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Eric Arthrell, 22 years old from Waterloo, Ontario Canada is running to raise awareness, fundraising for a cure, and to stay healthy.

• Eric was diagnosed at birth with cystic fibrosis and staying active has helped maintain his health.
• The ING New York City Marathon will be Eric’s first marathon.
• “Exercise is the key to staying healthy with cystic fibrosis,” states Eric.
• Eric’s goal for the marathon is 4 hours 30 minutes.
• What Eric is looking forward to the most about the ING New York City Marathon: “Crossing the finish line.”
• Eric’s fundraising page: http://www.firstgiving.com/ericarthrell
• Team Boomer: http://esiason.org/teamboomer

• Bob and Susan found out Tyler had cystic fibrosis at age five due to many allergic reactions that were initially diagnosed as asthma. “Denial … was our initial reaction and the more research we did on CF, the more frightened we became,” Bob says. “For the first six months, we put Tyler in a bubble, but the doctors were great and helped us outgrow that mentality.”
• Bob and Susan don’t let anything hold Tyler back. They let him enjoy his life and run around with his friends because “he’s a kid and needs to have fun.”
• The thing that scared Bob the most about CF is that everything is “shortened … life is shortened, but I see people like you (Jerry Cahill) at 54, and you give us hope.”
• Bob and Susan get involved in the CF community by doing CFF Great Strides every year.
• “When times get tough, my wife and I lean on each other for support, as well as our family and church,” Bob says.
• Bob’s advice to other parents with a CF child: “Treat your son or daughter like normal, and let them be a kid and enjoy.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 2nd in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Bryan was diagnosed prenatally, as his older brother also had CF.
• “Staying active and trying to live a normal life and do everything that any normal person does, including dating, is my focus,” says Bryan.
• He enjoys all sports, especially baseball, softball, jogging and weightlifting.
• Bryan started dating around age 13. Dating made Bryan take better care of himself, as he wanted to be “normal” and not show signs of weakness.
• “When dating I look for someone that is compassionate, communicates, and willing to understand. I did not ask for CF, I was born with it,” he says.
• On telling someone that you are dating about your disease: “First, I want her to get to know me for who I am and secondly for cystic fibrosis. When the time is right, I start with the basics and do not overwhelm them. I try to be subtle.”
• Bryan’s relationship with his mother and older brother, Shaun – who passed away from CF a little more than a year ago – have had a major impact on his life. “My mom is always there for me and helps me overcome obstacles. My brother Shaun taught me how to live with CF and how it should NOT hold you back.”
• Bryan on relationships: “Family is what matters and what is at heart …”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 1st in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Danny grew up playing baseball, soccer, football, BMX biking and basketball. “My parents believed in keeping me active,” he says. “I returned to school to be a fitness instructor so I can do what I love in life and stay healthy.”
• Besides vigorous exercise, Danny believes in good nutrition as part of his programs to stay healthy. “I eat a lot of fish, pasta, fruit, veggies, and try and stay away from dairy,” he explains.
• Danny likes variety in exercise training, so he has added swimming, yoga and boxing (mixed martial arts) to his training routine. Danny has competed in four marathons (best time: 4hours, 18minutes) and four triathlons, including a Half Ironman.
• The biggest challenge Danny faces related to exercising and CF is dehydration, but his secret is a lot of water, electrolytes and drinking salt water.
• “Exercising with CF can be uncomfortable, but throw yourself into it and be HONEST with yourself … you will feel better,” he says.
• Danny’s recommendation to others with CF: “Challenge yourself, keep pushing, and remember you are not alone – fight hard.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 12th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• The CFRI Retreat has been in existence since the 1990s. Maggie has been attending for the retreat for five years, and scholarships are available.
• “Activities at retreat include rap sessions, arts & crafts, sporting events, fun in the sun, and great food!” Maggie says.
• To attend the retreat, you must be over 15 years old with guardian, and over 18 years old by yourself. Friends and significant others are welcome to attend and join in the fun.
• The retreat is a very safe environment that follows strict guidelines regarding cross infection. Maggie feels that the retreat is “safer than the real world."
• “My favorite part of the retreat is the sharing and the talent show at the end of the week,” Maggie says.
• Maggie continues to return to the retreat because of the great friends she makes and the awesome connection to the CF community.  She feels refreshed at the end of the retreat.
• For more info on the retreat call 650-404-9975, email cfri@CFRI.org, or visit www.CFRI.org

This year Team Boomer – Fighting Cystic Fibrosis will have over 100 runners competing in the ING New York City Marathon - ALL will be running and fundraising for a cause.

Team Boomer – Fighting Cystic Fibrosis was set up through the Boomer Esiason Foundation to help raise funds for the fight against cystic fibrosis and raise awareness to the importance of exercise for people with CF.

Team Boomer’s goal is to improve the “quality of life” and “lifespan” of individuals with CF through the power of “daily exercise."  As therapeutic developments increase the lifespan of CF patients so does the need for further education in the area of exercise.

• Gwen believes there is no secret to fundraising: “It’s an art and partly as science ... fundraising is personal so you have to do it in your own style."
• “Come up with a game plan: First think of a target number and then think of EVERYONE you know who you can possibly approach,” Gwen advises.
• Think outside the box. “People are going to surprise you. All those people I said to put on the list – the acquaintances, your kid’s friend’s parents, an old boyfriend/girlfriend, the person you met at a conference last month – they all add up," Gwen says.
• Once you have your list together the next step is setting up a First Giving page: www.firstgiving.com/TeamBoomer.
• “Next take your list and send out an email blast with your fundraising page info to ALL your contacts," Gwen says.
• Other ideas for fundraising include special events such as happy hour at a local bar, golf events, school events, and many companies have “matching gift” programs.
• Why can’t I tell people what my minimum is? “Really, if you entered this kind of event (marathon) then I doubt you’re the kind of person who just settles on the minimum,” Gwen says.
• A lot of work? “If you mean does fundraising take time – yes it does! To be successful you have to personalize your story and it’s really important to start early!”
• Final thoughts: “I think anyone who is willing to do something like join TEAM BOOMER is amazing. It takes a special person to make this kind of commitment. Use your passion. Good luck!

• Jerry was diagnosed at age 10, and the doctors told his parents he would not make it to his 16th birthday.
• “Growing up with CF is challenging, but you just have to push through ... it’s a discipline,” Jerry says.
• Jerry loves being outdoors all year and exercises with a small oxygen tank, which helps him breathe better while he awaits a double-lung transplant.
• “I believe in a complete program of being compliant to medications, good nutrition, exercise and a fun social life,” he says.
• “Going out on disability is tough, but you just have to RE-INVENT yourself."
• Jerry believes in “attacking the day and focus on living! I look forward to tomorrow and the next day, next week, and next year ...”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 11th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Angela was diagnosed at three months of age, and Don recalls how the information they found on CF at the library was alarming and frightening.
• “Angie was an active child and a normal high school kid ... very involved in cheerleading,” Don says.
• During the final 86 days of her life, as Angie lay in the intensive care unit on a ventilator, the Warners were surrounded by loved ones. The grief and loss that Don and his wife experienced prompted him to write a book and create a lasting legacy in her honor.
• Angela loved vacationing with the family in Laguna Beach, taking walks on the beach at night star gazing, and having great conversations about life.
• Don Warner’s advice to CF patients and their families: "Keep fighting every day."
• Don Warner’s recommendations to others who experience the loss of a child from a fatal disease:  “Whatever pain you are feeling, it’s ok. Surround yourself with loved ones, and have faith and hope that you will reunite some day."
• For more information, go to: www.angelawarnerfoundation.org.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 10th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Dan was diagnosed at one month of age in Wilkes-Barre, Penn.
• Dan graduated college with a degree in communications and advertising and then worked at a local TV station before opening up his own advertising agency in 1980.
• “I stay very compliant and manage my health because I have goals and dreams and I want to achieve things," Dan says.
• Dan is considering disability because, at age 53, it is getting tougher to get through the day with all the treatments and a full-time job.
• “Disability may be my only choice if I want to stay alive and watch my son and daughter start families – I want to be a grandfather," Dan says.
• Dan’s biggest fear about disability is the loss of a lot of his business relationships/friends, but he feels his health is more important at this point in time.
• “I am a published songwriter, and I will exercise more and do more treatments once I go out on disability. It’s all about MORE treatments to stay healthy with CF," he says.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 9th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation  .

• Travis started advocating for cystic fibrosis at a very young age and “embraces cystic fibrosis.”
• The Spider Who Never Gave Up is a children’s book that Travis wrote when he was eight. (www.sparkeythespider.com)
• Travis also created a non-profit organization that helps get computers for children and adolescent patients in the hospital so they can communicate friends (www.tfcf.org)
• Travis enjoys being active in the community, writing music, people watching and taking long walks.
• “Living with CF, it is important to find a balance with being compliant and your social life, as well as having a great support team,” Travis says.
• Travis’ goals include: graduate college, succeed in career, and raise awareness for cystic fibrosis.
• Travis’ recommendation to everyone: “Embrace life!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 8th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Casey eats a high-calorie, well-rounded diet consisting of fruits, nuts, vegetables, dairy for calcium, and lots of carbohydrates and protein.
• “Besides being adherent to my treatments, I believe in good nutrition, exercise and rest. I try to get eight hours of sleep every night,” Casey says.
• Casey loves junk foods like baked goods and pizza, but she tries to stay away from foods high in corn syrup and processed goodies.
• “I am always eating throughout the day, so I make sure I pack my bag with fruit and trail mix,” she says.
• Casey’s little secret on nutrition and CF is that she eats a lot of peanut butter and cheese as snacks because of their nutritional value.
• “CF is part of my life, and I just deal with it. Everyone has something,” Casey says.
• Casey’s recommendations to others with CF: “Be adherent to your medications, eat a well-balanced diet, rest and communicate with your doctor."
• Casey believes “the more you put into your health, the more you will get out of it!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 7th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Debbie was married to Brian for 26 years and has two wonderful sons -- Evin (22 years old) and Alex (19 years old).
• “Brian was funny, loving, smart, passionate ... and to know him was to love him," Debbie says. Brian always called Debbie his soulmate, and his song for her was Van Morrison’s "Brown Eyed Girl.”
• Brian was very private, independent and compliant with his CF care, as he did not want to burden his family. “We lived our life around Brian’s CF but did not let it stop us from LIVING!” Debbie says.
• The Gerofsky family did a lot together, enjoying the beach, museums, music, dance and Broadway shows. The family meant everything to Brian. He believed in hard work and LIVING YOUR LIFE!
• Debbie, Evin and Alex believe the most important thing in a family dealing with CF is “open communication and respecting each other's feelings.”
• Evin and Alex admired their dad’s strength and the fact that he was always there for them. “If my dad was here right now I would like to tell him THANK YOU and I love you very much,” they said.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 6th in a series of 12 made possible through an unrestricted educational grant from Genentech to he Boomer Esiason Foundation.

• Debbie was married to Brian for 26 years and has two wonderful sons -- Evin (22 years old) and Alex (19 years old).
• “Brian was funny, loving, smart, passionate ... and to know him was to love him," Debbie says. Brian always called Debbie his soulmate, and his song for her was Van Morrison’s "Brown Eyed Girl.”
• Brian was very private, independent and compliant with his CF care, as he did not want to burden his family. “We lived our life around Brian’s CF but did not let it stop us from LIVING!” Debbie says.
• The Gerofsky family did a lot together, enjoying the beach, museums, music, dance and Broadway shows. The family meant everything to Brian. He believed in hard work and LIVING YOUR LIFE!
• Debbie, Evin and Alex believe the most important thing in a family dealing with CF is “open communication and respecting each other's feelings.”
• Evin and Alex admired their dad’s strength and the fact that he was always there for them. “If my dad was here right now I would like to tell him THANK YOU and I love you very much,” they said.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 6th in a series of 12 made possible through an unrestricted educational grant from Genentech to he Boomer Esiason Foundation.

• Kevin was diagnosed with CF at age two and grew up in a small town in the Northwest. Living in the country, Kevin enjoys swimming, hiking, fishing and riding dirt bikes.
• “In high school, I was actively involved in team sports, including track and field [four years], basketball [two years] and football [one year]. Sports was a social event and has made a major impact on my health,” Kevin says.
• Kevin’s training in basketball and track and field was two hours a day, six days a week, and the running and jumping made him cough and clear out his lungs.
• Kevin on being compliant: “I believe in staying compliant and doing all my treatments, including exercise, so I can stay healthy and live a long life."
• The biggest challenge Kevin faces with CF is time management of all the treatments.
• “CF is not a big deal to me ... I was born with it, live with it, and it will not stop me," he says.
• Kevin’s advice to other teens with CF: “Push forward an never give up – be active and go for it!”
• “Step it up! Get out there and live and do not alienate yourself."

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 5th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Philip was diagnosed at age two at the University of Minnesota.
• “Growing up with CF was pretty uneventful, except that I slept in a mist tent. I played soccer, tennis, football and lived in Africa, the Middle East and Yugoslavia,” Phil says.
• Philip was diagnosed with CFRD in 2006 via glucose tolerance test.  “I kept getting repeat infections because I had high blood sugar, and bacteria feeds on sugar."
• “I treat my CFRD with insulin shots before I eat, and that controls the sugar at meals. Blood sugars are controlled by food, medication and exercise."
• “Since I started insulin treatment for my CFRD, I have gained weight, which is something I could never do with CF,” Phil says.
• Philip sees an endocrinologist for his CFRD.
• “My role models are my mother and father – they are responsible for making me the person I am today, and I thank them for everything.”
• Philip’s recommendation to others with CFRD: “Enjoy life, be happy, stay focused and get an endocrinologist familiar with CF.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 4th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Patrick works hard at staying healthy with all his treatments to manage his CF. “I know that those few tiny moments I spend doing my treatments could add years onto my life," he says.
• “I grew up in a healthy environment, active in soccer, baseball and golf. I also learned, at an early age, to take responsibility for myself," he says.
• Patrick is looking forward to going away to college to experience higher education, socializing and being “my own boss."
• “I am very lucky to have my family and friends as a great support system, and I will be rooming with my best friend at college – it’s all about partnership," Patrick says.
• The biggest challenge Patrick faces with CF is time management.
• Patrick will be majoring in biology, wants to attend medical school, and hopes to study abroad for one semester.
• Patrick on being compliant: “You do not want to play catch-up with your therapies, so just do it. I do it because I want to live and enjoy life!”
• Patrick’s advice to others with CF thinking about college: “Step it up! Get out there and live and do not alienate yourself."

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 3rd in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Victor was born in Winchester, Tenn., on a farm. He was diagnosed at 12 years of age.
• “Growing up, I was always very active, playing touch football, softball and basketball. I am very thankful to my parents for letting me play sports and be a real boy," Victor says.
• Victor attended Rice University, where he majored in biochemistry. He then attended medical school at Baylor in Houston.
• “If I had a chance to do something differently when I was growing up with CF, I would have been more open about my CF and not put up so many walls," Victor says.
• Victor now believes in being open about his CF and does his aerosol therapies at work. “With the American With Disabilities Act, people cannot discriminate.”
• “Know your limitations with CF and be realistic in what you do in the career world," Victor advises.
• Victor loves singing in the shower and has become a BIG fan of karaoke at least twice a week.
• Victor’s advice to others with CF: “Do not adapt to CF, let it adapt to you.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 2nd in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Chad was born in Tennessee and was diagnosed at birth.
• “Growing up I was always treated very differently and in many ways babied. This temporarily helped me cope with the disease, but eventually it took a negative toll on me," Chad says.
• Insurance issues forced Chad to move to the state of Washington. “Washington has a user friendly state insurance program for people with cystic fibrosis."
• “For me, along with my therapies, swimming has kept me alive and healthy. When I first started swimming, I could barely swim a lap. I now swim 45 minutes ... 5 days a week!”
• Chad is pursuing a college degree in engineering, working more than 30 hours a week to support himself, involved in a great relationship and looking forward to marriage and starting a family. “Life is good," he says.
• Chad’s advice to others with CF: “No matter what, NEVER give up. It’s your life, and you only have one, so take charge and care of yourself!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 1st in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Chad was born in Tennessee and was diagnosed at birth.
• “Growing up I was always treated very differently and in many ways babied. This temporarily helped me cope with the disease, but eventually it took a negative toll on me," Chad says.
• Insurance issues forced Chad to move to the state of Washington. “Washington has a user friendly state insurance program for people with cystic fibrosis."
• “For me, along with my therapies, swimming has kept me alive and healthy. When I first started swimming, I could barely swim a lap. I now swim 45 minutes ... 5 days a week!”
• Chad is pursuing a college degree in engineering, working more than 30 hours a week to support himself, involved in a great relationship and looking forward to marriage and starting a family. “Life is good," he says.
• Chad’s advice to others with CF: “No matter what, NEVER give up. It’s your life, and you only have one, so take charge and care of yourself!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 1st in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Isabel, along with her twin sister, Anabel, and family, has traveled the world. She has visited 12 countries and 41 states in the USA. Isabel started traveling at age eight and lived in Japan for one year.
• Isabel was born in Southern California, diagnosed at birth, and had an active childhood, loving the outdoors and such sports as swimming, jogging and hiking.
• Isabel graduated from Stanford University, competes in the Transplant Games, and most recently started playing the bagpipes.
• “When traveling, I make sure I have the CF doctor contact info in the city I am traveling to, take extra prescriptions, wash my hands a lot, drink lots of water, and ALWAYS carry-on my medications," Isabel says.
• Post-transplant, Isabel continues to travel and has added a mask during airplane travel.
• “I have lived a very privileged life, and CF has taught me to be very disciplined. Everyone with CF is a mentor to me,” Isabel says.
• Isabel’s advice: “Do not limit yourself, and allow yourself to dream.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the final in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. 

• Julie has realized the benefits of nutrition and exercise. At New Day Wellness, Julie coaches nutrition, fitness, stress management and disease management to people with chronic illnesses – many with CF.
• Julie was born in Nebraska and was diagnosed at birth. She is the youngest of seven siblings, attended Stanford University, and enjoys golf, running, weight training and reading.
• "I enjoy sharing my thoughts on nutrition, wellness and exercise on my blog (www.sickandhappy.com). This is a great way to get the word out there," Julie says.
• Julie’s “junk” foods include pretzels, yogurt and frosted mini wheats dipped in peanut butter.
• “I am a firm believer in supplements such as fish oil, NAC and additional vitamins, but ALL are with doctors approval," Julie says.
• Shakes and smoothies with protein added are a must-have when Julie is not feeling well or needs an extra boost.
• “Eat early and eat often, and make sure you are eating lots of fruit, vegetables and protein – I eat a lot of the right foods."
• On gaining weight: “Get involved in exercise, and especially weight training, and eat a lot," Julie advises.
• Julie’s advice to others: “Hope ... and be compliant and aggressive to keep your lungs clear.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 11th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Paul was born in Chicago - one of six children - and was diagnosed at age two due to “failure to thrive." He grew up in Connecticut and attended the University of Connecticut.
• “Growing up with CF was a very private matter, and I jumped into the world of CF post-transplant," Paul says.
• Paul believes “working for the Cystic Fibrosis Foundation lets me give back to others and have a major impact on their life by giving them HOPE. It makes me feel good."
• Paul gives back at the CFF by doing fundraising for a cure and by speaking at events to raise awareness. He speaks to families and patients on a daily basis. “ I am like the poster adult for the CF community," he says.
• Paul also is an artist and “gives back” by doing paintings (pointillism) for various CF events.
• Paul’s biggest challenge on a daily basis: “Staying healthy.”
• Paul’s advice: “Do your meds, exercise, nutrition ... and sometimes laughter is the best medicine."

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 10th in a series of of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Gunnar was diagnosed at age two and lives on Long Island with his family.
• “CF has obviously shaped my life but does not get in the way of my being a normal teenager,” Gunnar says.
• Like an athlete in team sports, Gunnar has a team of doctors and health care providers to make sure he is on top of his game.
• “My CF team consists of my physician, dietician, nurse, respiratory therapist, social worker, and sometimes specialist in other areas as CF affects other parts of the body,” he explains.
• “Besides my medical team, my family and friends are also a big part of my team. The more they know about me, the better they can help, and I can win the battle with CF."
• Gunnar believes that being honest and truthful with your team is the key to succeeding in life and with cystic fibrosis.
• Gunnar’s advice to others with CF: “Always communicate with your CF team. The more info you can give, the more your team can help you maintain good health, especially as you become more independent and move on to college.”

This podcast was made possible through and unrestricted educational grant from EURAND to The Boomer Esiason Foundation.

• Jerry grew up in Brooklyn, NY. He attended the University of Connecticut, competed in track & field specializing in the pole vault, worked in the apparel industry for 26 years, coaches track & field and a prep school, and volunteers at the Boomer Esiason Foundation as he awaits a double-lung transplant.
• “Maintaining a positive attitude and being involved with people and events is key as I await the call,” Jerry says.
• “As my disease progresses due to shortness of breath, and my quality of life deteriorates, it is time to move on to the next step – transplant,” he says.
• Jerry believes he has been preparing for a transplant his whole life, as it is just another part of the battle with CF. “With CF, you always need to be prepared and RE-INVENT yourself!”
• Jerry’s advice: “Stay active and involved, have a great team of doctors that you believe in, have a great support team of family and friends, fundraise, and gear up for NEW BEGINNINGS as the best is yet to come!"

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 9th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

• Gunnar was diagnosed at age two and lives on Long Island with his family.
• "CF has obviously shaped my life, but I am fortunate to have a great family and friends,” Gunnar says.
• Gunnar loves to eat. Some of his favorite foods include steak, pizza, hamburgers, shrimp and carrots.
• “I take my enzymes with snacks and meals so my body can absorb all the nutrients from my foods and help me to gain weight. Also, if I don’t take my enzymes, I will get stomachaches, and that is very uncomfortable," Gunnar says.
• Gunnar keeps his enzymes in a pill box and always carries them in his pocket or backpack.
• “I usually try and have four meals a day and snacks between meals, and I make sure that I have a lot of OPTIONS with my food choices. I also make milkshakes to get extra calories."
• Gunnar’s advice on nutrition to others with CF: “Take your enzymes to help you stay healthy and keep your weight on and be energetic."
• “My long-term hopes and dreams are to live a long and full, healthy life and play sports till I am 60,” he says.

This podcast was made possible through an unrestricted educational grant from EURAND to the Boomer Esiason Foundation.

• Andrea was diagnosed with CF at 9 months, grew up in NYC, and studied art at SUNY Purchase
• "Exercise is key going into a transplant so I used to swim in the pool using oxygen as my mother walked along the side of the pool holding the oxygen tank" states Andrea
• Andrea was transplanted at New York Presbyterian in April 25th 2000 and was amazed at what if felt like to take a breath without coughing – "it is beyond comprehension, I never felt this well".
• "Going into transplant it is extremely important to have a support team – my mom is amazing!" states Andrea
• "Life goes on post transplant and I still have CF but my quality of life is better"
• Andrea competes in the Transplant Games (International Competition for people that have had a transplant) in tennis, biking, running, and swimming.
• Andrea's advice to others facing a transplant include; investigate good transplant centers, talk to others that had a transplant, exercise, go to support groups, and have a strong support group of family and friends.
• " I appreciate being alive – it's a gift…" states Andrea.

This "LIVING. BREATHING. SUCCEEDING." Podcast/Vodcast series is the 5th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
 

• Andrea was diagnosed with CF at 9 months, grew up in NYC, and studied art at SUNY Purchase
• "Exercise is key going into a transplant so I used to swim in the pool using oxygen as my mother walked along the side of the pool holding the oxygen tank" states Andrea
• Andrea was transplanted at New York Presbyterian in April 25th 2000 and was amazed at what if felt like to take a breath without coughing – "it is beyond comprehension, I never felt this well".
• "Going into transplant it is extremely important to have a support team – my mom is amazing!" states Andrea
• "Life goes on post transplant and I still have CF but my quality of life is better"
• Andrea competes in the Transplant Games (International Competition for people that have had a transplant) in tennis, biking, running, and swimming.
• Andrea's advice to others facing a transplant include; investigate good transplant centers, talk to others that had a transplant, exercise, go to support groups, and have a strong support group of family and friends.
• " I appreciate being alive – it's a gift…" states Andrea.

This "LIVING. BREATHING. SUCCEEDING." Podcast/Vodcast series is the 5th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
 

• Beth talks about knowing your legal rights and advocating for yourself.
• Beth discusses who qualifies for Social Security benefits, Medicare, and Medicaid.
• Learn pointers on how to obtain health insurance for children and adults with CF and how to deal with increasing drug co-pays.
• Beth discusses SSI, SSDI, Adult CF programs, COBRA, pre-existing clauses, Family Medical Leave Act, and YOUR medical records.
• " Be compliant – take care of yourself first and foremost" is Beth's main advice.
• "Big is Better when it comes to health insurance" states Beth.
  
  This "LIVING. BREATHING. SUCCEEDING." Podcast/Vodcast series is the 4th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Jenny Davison, 39 years old with cystic fibrosis (CF), happily married, the proud mother of her 10 year-old daughter Dara and LIVING BREATHING SUCCEEDING on a daily basis…
A little over a decade ago marriage and starting a family seemed to be an unthinkable dream for adults with CF. Through advancements in treatment of the disease and being compliant the dream became a reality for Jenny and her husband Tim.

• Jenny Davison grew up in Long Island and is one of 9 children.
• "Family is Extremely important to me? states Jenny.
• Deciding to have a family when you have CF can be risky business but… "Starting a family while you are healthy and always being compliant is key?
• "It is challenging for a woman with CF to have a child and you and your husband should know the risks but most importantly, take care of yourself first? states Jenny.
• Jenny maintained her career as a nurse for seven months of her pregnancy and believes in the importance of a strong support system.
• Jenny states: "Although I have cystic fibrosis, Tim and I never regret having a child… Dara has added so much to our lives?
• Jenny's advice: "Having CF does not mean you stop your life – you just keep living and have a career, think about getting married and starting a family… you do what everyone else does – I just have to work a little harder at it with CF?
• "Everybody has something and cystic fibrosis is what I have…?
  
  This "LIVING. BREATHING. SUCCEEDING.? Podcast/Vodcast series is the 3rd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Title: Cystic Fibrosis and Starting a Family

Jenny Davison, 39 years old with cystic fibrosis (CF), happily married, the proud mother of her 10 year-old daughter Dara and LIVING BREATHING SUCCEEDING on a daily basis…
A little over a decade ago marriage and starting a family seemed to be an unthinkable dream for adults with CF. Through advancements in treatment of the disease and being compliant the dream became a reality for Jenny and her husband Tim.

• Jenny Davison grew up in Long Island and is one of 9 children.
• "Family is Extremely important to me? states Jenny.
• Deciding to have a family when you have CF can be risky business but… "Starting a family while you are healthy and always being compliant is key?
• "It is challenging for a woman with CF to have a child and you and your husband should know the risks but most importantly, take care of yourself first? states Jenny.
• Jenny maintained her career as a nurse for seven months of her pregnancy and believes in the importance of a strong support system.
• Jenny states: "Although I have cystic fibrosis, Tim and I never regret having a child… Dara has added so much to our lives?
• Jenny's advice: "Having CF does not mean you stop your life – you just keep living and have a career, think about getting married and starting a family… you do what everyone else does – I just have to work a little harder at it with CF?
• "Everybody has something and cystic fibrosis is what I have…?
  
  This "LIVING. BREATHING. SUCCEEDING.? Podcast/Vodcast series is the 3rd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
   

• Tiffany is a relationship driven person and believes telling about your CF is good, but that "less is more? at the beginning of a romantic relationship.
• "CF adds more layers to relationships but I am worthy of it!? says Tiffany.
• Tiffany has learned to "stop making my disease my identity? and to start communicating, enjoying, and having fun in a relationship – "We are a team…?
• Relationships involve a lot of work and vulnerability – make sure you do your homework… "Remember, like all relationships people may not accept each other due to certain likes/dislikes and that includes CF? states Tiffany.
• "Don't search for your worth in someone else's arms…? says Tiffany.
• Tiffany's advice: " CF should be a motivator to get in a relationship. Relationships enhance your life! I have no regrets!?
•  www.sickgirlspeaks.com
  
  * This "LIVING. BREATHING. SUCCEEDING.? Podcast/ Vodcast series is the 2nd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

• Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
• Exercise outdoors to help keep your lungs clear.
• "Simple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungs? states Jerry
• Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
• Jerry states; "Do not let CF stop you… just get out there and live life to the fullest!?
  
  * This "LIVING. BREATHING. SUCCEEDING.? Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
   

• Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
• Exercise outdoors to help keep your lungs clear.
• "Simple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungs? states Jerry
• Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
• Jerry states; "Do not let CF stop you… just get out there and live life to the fullest!?
  
  * This "LIVING. BREATHING. SUCCEEDING.? Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
   

• Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
• Exercise outdoors to help keep your lungs clear.
• "Simple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungs? states Jerry
• Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
• Jerry states; "Do not let CF stop you… just get out there and live life to the fullest!?
  
  * This "LIVING. BREATHING. SUCCEEDING.? Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
   

• CFI is a 501(c) (3) Not for Profit organization based in Glenview, Chicago
• Dr. Boas states: "CFI offers services/educational programs for people with CF and their families.?
• CFI develops strategic partnerships with local and national businesses for support.
• CFI offers clinical assistance and supports research investigations
• "The Winter Education Retreat being held on February 16th 2008 is our biggest event and is being held in Glenview, Illinois (just outside of Chicago)? states Dr. Boas.
• Winter Education Retreat focuses on practical issues for people with CF with the goal of giving people with CF at least one more tool that they did not have prior to the event.
• Dr. Boas is a major advocate of exercise and believes exercise is key or "just getting people to move…?
• More info available at: www.cysticfibrosisinstitute.org or call 847-998-3434
]]> Title: Cystic Fibrosis Institute (CFI) and Dr. Steven Boas The Cystic Fibrosis Institute (CFI) is committed to supporting those affected by cystic fibrosis in the Chicago area and to making a difference by being a meaningful and active source of assistance and advocacy for all CF individuals and families for dealing with the everyday challenge of cystic fibrosis. Dr. Steven Boas, a Board-Certified Pediatric Pulmonologist, is dedicated to the care of children and adolescents with acute or chronic respiratory disorders. The Cystic Fibrosis Institute was founded in 2003 on the fundamental principle that every person with CF deserves the opportunity to realize his or her full potential, to lead as normal life as possible and, despite the many obstacles they and their families face, share in the joys of life itself.
• CFI is a 501(c) (3) Not for Profit organization based in Glenview, Chicago
• Dr. Boas states: "CFI offers services/educational programs for people with CF and their families.?
• CFI develops strategic partnerships with local and national businesses for support.
• CFI offers clinical assistance and supports research investigations
• "The Winter Education Retreat being held on February 16th 2008 is our biggest event and is being held in Glenview, Illinois (just outside of Chicago)? states Dr. Boas.
• Winter Education Retreat focuses on practical issues for people with CF with the goal of giving people with CF at least one more tool that they did not have prior to the event.
• Dr. Boas is a major advocate of exercise and believes exercise is key or "just getting people to move…?
• More info available at: www.cysticfibrosisinstitute.org or call 847-998-3434
]]> 45:40 false full Episode #0060 Linda Hood, Mother of Twin Boys with CF - Talks about Transitioning Fri, 21 Dec 2007 21:31:00 +0000 Linda Hood, Mother of Twin Boys with CF, Talks about Transitioning…


Linda Hood from Cincinnati, Ohio talks about growing up with twin boys with CF – Keith and Kyle – and transitioning to an adult CF center. Linda's boys were born 4 weeks early and found out they had cystic fibrosis at 6 months of age.
• "Finding out my twin boys had cystic fibrosis was the most devastating thing in my life…? states Linda
• Linda states; "the doctors told a horrifying story and said my boys would not live to 18 years of age?
• Linda and her family were proactive and started fundraising for a cure.
• Being a caregiver is scary due to concerns/fear of germs at school.
• Linda discusses making the transition from pediatric to adult CF center and the resources available to adults.
• Linda gets her support from her husband - "My husband is my strength and gets me through the tough times…?
• "Stay hopeful… do what the doctors tell you to do… do not take shortcuts,? states Linda.
• Linda's advice: "Let your son or daughter be boys or girls and ENJOY LIFE!?
• Keith and Kyle are in college today and LIVING BREATHING SUCCEEDING.
]]> Linda Hood, Mother of Twin Boys with CF, Talks about Transitioning… Linda Hood from Cincinnati, Ohio talks about growing up with twin boys with CF – Keith and Kyle – and transitioning to an adult CF center. Linda's boys were born 4 weeks early and found out they had cystic fibrosis at 6 months of age.
• "Finding out my twin boys had cystic fibrosis was the most devastating thing in my life…? states Linda
• Linda states; "the doctors told a horrifying story and said my boys would not live to 18 years of age?
• Linda and her family were proactive and started fundraising for a cure.
• Being a caregiver is scary due to concerns/fear of germs at school.
• Linda discusses making the transition from pediatric to adult CF center and the resources available to adults.
• Linda gets her support from her husband - "My husband is my strength and gets me through the tough times…?
• "Stay hopeful… do what the doctors tell you to do… do not take shortcuts,? states Linda.
• Linda's advice: "Let your son or daughter be boys or girls and ENJOY LIFE!?
• Keith and Kyle are in college today and LIVING BREATHING SUCCEEDING.
]]> 30:43 false full Courtney Ward Runs for Team Boomer Tue, 06 Nov 2007 20:07:00 +0000
Courtney Ward Runs NYC Marathon for Team Boomer in 4 Hours 56 Minutes
]]> Courtney Ward Runs NYC Marathon for Team Boomer in 4 Hours 56 Minutes
]]> 00 false full Episode #0059 Justin Carlson, Transitioning from High School to College - The Next Step Fri, 12 Oct 2007 19:47:00 +0000 Justin Carlson, Transitioning from High School to College – The Next Step to Success.

With the help of today's therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.

"Justin Carlson, Transitioning from High School to College – The Next Step to Success,? features Justin Carlson, an 18-year-old young man with CF. Justin talks about becoming independent and dealing with doctor's appointments, CF therapies, going away to college vs. commuting, and the importance of compliancy on a daily basis. Justin believes in the importance of the "doctor/patient relationship? and "taking control of your CF.?

Key messages in the Podcast include:
• Taking control of your CF and not letting it catch up on you, even when you don't feel sick, is crucial for a good quality of life.
• Developing a strong relationship and communicating with your doctor and health care team, at an early age enhances your independence.
• Time-management and "practiced independence and confidence? help prepare individuals with CF for college and the real world.
• The keys to staying healthy are compliance to medications, therapies, exercise, and good nutrition.
• Parents should give their child with CF "reminders? regarding therapy, and instill independence in them at an early age.
• Parents should encourage their child to spend separate one-on-one "quality? time with their doctor.
  
  * This Podcast is made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
]]> Justin Carlson, Transitioning from High School to College – The Next Step to Success. With the help of today's therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world. "Justin Carlson, Transitioning from High School to College – The Next Step to Success,? features Justin Carlson, an 18-year-old young man with CF. Justin talks about becoming independent and dealing with doctor's appointments, CF therapies, going away to college vs. commuting, and the importance of compliancy on a daily basis. Justin believes in the importance of the "doctor/patient relationship? and "taking control of your CF.? Key messages in the Podcast include:
• Taking control of your CF and not letting it catch up on you, even when you don't feel sick, is crucial for a good quality of life.
• Developing a strong relationship and communicating with your doctor and health care team, at an early age enhances your independence.
• Time-management and "practiced independence and confidence? help prepare individuals with CF for college and the real world.
• The keys to staying healthy are compliance to medications, therapies, exercise, and good nutrition.
• Parents should give their child with CF "reminders? regarding therapy, and instill independence in them at an early age.
• Parents should encourage their child to spend separate one-on-one "quality? time with their doctor. * This Podcast is made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
]]> 30:32 false full Episode #0058 Scott Johnson Competes in Hawaii Ironman for Team Boomer Wed, 26 Sep 2007 19:51:00 +0000 Scott Johnson is 35 years old with cystic fibrosis and LIVING, BREATHING, SUCCEEDING as he celebrated 6 years post double lung transplant on September 15th.  "Dreams do come true,? states Scott, as he gets ready for the Hawaiian Ironman Championships on October 13th 2007 in Kona, Hawaii. This is the most prestigious race in triathlon and the pinnacle of most people's career. The Hawaii Ironman is the equivalent of the Tour de France, the Super Bowl, the World Series, and Wimbledon. Scott, competing for Team Boomer, has accepted this challenge to try and inspire people with CF to make exercise a part of their normal routine.
• Scott grew up in Jacksonville, North Carolina and was diagnosed with CF at 2 months.
• Scott received a double lung transplant on September 15th 2001.
• "Exercise and a Positive Attitude? helped Scott make it through the surgery.
• Scott states: "My quality of life with my new lungs is better than living with CF?.
• On Mother's Day in May 2003, Scott crossed the finish line of his first triathlon… a gift for himself and his mother Marilyn.
• Scott has competed in over 25 triathlons of various distances and is now ready for the most elite triathlon, the Hawaii Ironman (swim 2.4 miles, bike 112 miles, and run 26.2 miles)
• Scott's family and fiancé, Leanne, will be cheering him on in Hawaii and Scott will be getting married 3 days after the Ironman competition.
• Prior to each race Scott writes his transplant date on his forearm to remind himself of where he came from and his "new beginning?.
• By competing for Team Boomer, Scott is helping to raise money for the Exercise for Life scholarship for people with CF. Join Scott and the cause: www.firstgiving.com/cfironman
• Check out Scott's photo's and video at: www.myspace.com/slowesttriathlete
• "Do Not Be Afraid of Death… Be Afraid of the Half Lived Life?
• Scott's words of encouragement for others with CF or facing a transplant: "Maintain a positive outlook, don't give up, and keep exercising – miracles do happen…? 
  
   
]]> Scott Johnson is 35 years old with cystic fibrosis and LIVING, BREATHING, SUCCEEDING as he celebrated 6 years post double lung transplant on September 15th. "Dreams do come true,? states Scott, as he gets ready for the Hawaiian Ironman Championships on October 13th 2007 in Kona, Hawaii. This is the most prestigious race in triathlon and the pinnacle of most people's career. The Hawaii Ironman is the equivalent of the Tour de France, the Super Bowl, the World Series, and Wimbledon. Scott, competing for Team Boomer, has accepted this challenge to try and inspire people with CF to make exercise a part of their normal routine.
• Scott grew up in Jacksonville, North Carolina and was diagnosed with CF at 2 months.
• Scott received a double lung transplant on September 15th 2001.
• "Exercise and a Positive Attitude? helped Scott make it through the surgery.
• Scott states: "My quality of life with my new lungs is better than living with CF?.
• On Mother's Day in May 2003, Scott crossed the finish line of his first triathlon… a gift for himself and his mother Marilyn.
• Scott has competed in over 25 triathlons of various distances and is now ready for the most elite triathlon, the Hawaii Ironman (swim 2.4 miles, bike 112 miles, and run 26.2 miles)
• Scott's family and fiancé, Leanne, will be cheering him on in Hawaii and Scott will be getting married 3 days after the Ironman competition.
• Prior to each race Scott writes his transplant date on his forearm to remind himself of where he came from and his "new beginning?.
• By competing for Team Boomer, Scott is helping to raise money for the Exercise for Life scholarship for people with CF. Join Scott and the cause: www.firstgiving.com/cfironman
• Check out Scott's photo's and video at: www.myspace.com/slowesttriathlete
• "Do Not Be Afraid of Death… Be Afraid of the Half Lived Life?
• Scott's words of encouragement for others with CF or facing a transplant: "Maintain a positive outlook, don't give up, and keep exercising – miracles do happen…?
]]> 52:00 false full Episode #0057 Abby Tranel Wins 2007 Exercise for Life Scholarship Thu, 30 Aug 2007 19:39:00 +0000 Title: Abby Tranel Wins 2007 Exercise for Life Scholarship


Abby Tranel from Hampton, Nebraska wins $10,000 scholar-athlete award for people with CF. Abby ran the 1.5 mile run in 10 minutes 19 seconds at Nebraska Wesleyan University's track in Lincoln, Nebraska. Abby is a graduate of Hampton High School in Hampton, NE and graduated with a 3.5 G.P.A. and will be attending Nebraska Wesleyan University in the fall.
• Abby has always been involved in sports including volleyball, basketball, and track. School activities include the Student Council, Cheerleading, Speech, Drama, and President of the National Honor Society.
• Abby was diagnosed with CF at birth and also has an older sister with cystic fibrosis that competed nationally in track & field for University of Nebraska.
• "Exercise and therapies for CF have very much become an integral part of my life and daily routine.? states Abby.
• "After a few months of steady running, my lung function tests improved dramatically. It was not just the test results that kept me going with running… I just simply felt better, and most importantly felt that I was now in control of my CF, it was no longer controlling me!? Abby states confidently.
• Abby lives a normal life and does not make a big deal about CF.
• "My mom has taught me and my sister to be very independent at an early age and I thank her for that…?
• Regarding college… "I look forward to meeting new people and am beginning to realize all the opportunities that college and our world has to offer.?
• Besides being compliant to her medication and therapy, Abby has learned the value of exercise, keeping a routine, and following through for positive results.
• "I have realized that if you want to be big you have to dream big… and that is just what I am doing despite having CF!? states Abby.
   
]]> Title: Abby Tranel Wins 2007 Exercise for Life Scholarship Abby Tranel from Hampton, Nebraska wins $10,000 scholar-athlete award for people with CF. Abby ran the 1.5 mile run in 10 minutes 19 seconds at Nebraska Wesleyan University's track in Lincoln, Nebraska. Abby is a graduate of Hampton High School in Hampton, NE and graduated with a 3.5 G.P.A. and will be attending Nebraska Wesleyan University in the fall.
• Abby has always been involved in sports including volleyball, basketball, and track. School activities include the Student Council, Cheerleading, Speech, Drama, and President of the National Honor Society.
• Abby was diagnosed with CF at birth and also has an older sister with cystic fibrosis that competed nationally in track & field for University of Nebraska.
• "Exercise and therapies for CF have very much become an integral part of my life and daily routine.? states Abby.
• "After a few months of steady running, my lung function tests improved dramatically. It was not just the test results that kept me going with running… I just simply felt better, and most importantly felt that I was now in control of my CF, it was no longer controlling me!? Abby states confidently.
• Abby lives a normal life and does not make a big deal about CF.
• "My mom has taught me and my sister to be very independent at an early age and I thank her for that…?
• Regarding college… "I look forward to meeting new people and am beginning to realize all the opportunities that college and our world has to offer.?
• Besides being compliant to her medication and therapy, Abby has learned the value of exercise, keeping a routine, and following through for positive results.
• "I have realized that if you want to be big you have to dream big… and that is just what I am doing despite having CF!? states Abby.
]]> 21:52 false full Episode #0056 Patrick Robinson wins 2007 Exercise for Life Scholarship Fri, 24 Aug 2007 21:07:00 +0000 Title: Patrick Robinson wins 2007 Exercise for Life Scholarship


Patrick Robinson from Sandown, NH wins $10,000 scholar-athlete award for people with CF. Mr. Robinson ran the 1.5 mile run in 10 minutes 10 seconds at his former high school Timberlane Regional H.S. in Plaistow, NH as his mom, dad, and younger brothers Andrew and Christopher cheered him on. Patrick recently graduated with a 3.9 G.P.A. and will be attending Boston University in the fall.
• Patrick is very involved in sports including skiing, hiking (Patrick is an Eagle Scout), track, and Ultimate Frisbee and attributes exercise to playing a major part in keeping his lungs clear.
• "Playing the trumpet in marching band also was a great form of airway clearance? states Patrick.
• Patrick was diagnosed with CF at 3 months of age.
• Great Strides Walk-a-Thon team "Patrick's Patrollers? walks every year to raise money for CFF and a cure.
• Regarding college… "I look forward to meeting new people and being more independent?.
• Besides being compliant to his medication and therapy, Patrick goes above and beyond this daily ritual by running 2 miles everyday.
• "I believe in embracing the disease and not running from it? states Patrick.
]]> Title: Patrick Robinson wins 2007 Exercise for Life Scholarship Patrick Robinson from Sandown, NH wins $10,000 scholar-athlete award for people with CF. Mr. Robinson ran the 1.5 mile run in 10 minutes 10 seconds at his former high school Timberlane Regional H.S. in Plaistow, NH as his mom, dad, and younger brothers Andrew and Christopher cheered him on. Patrick recently graduated with a 3.9 G.P.A. and will be attending Boston University in the fall.
• Patrick is very involved in sports including skiing, hiking (Patrick is an Eagle Scout), track, and Ultimate Frisbee and attributes exercise to playing a major part in keeping his lungs clear.
• "Playing the trumpet in marching band also was a great form of airway clearance? states Patrick.
• Patrick was diagnosed with CF at 3 months of age.
• Great Strides Walk-a-Thon team "Patrick's Patrollers? walks every year to raise money for CFF and a cure.
• Regarding college… "I look forward to meeting new people and being more independent?.
• Besides being compliant to his medication and therapy, Patrick goes above and beyond this daily ritual by running 2 miles everyday.
• "I believe in embracing the disease and not running from it? states Patrick.
]]> 32:06 false full Episode #0055 Kristin McFall, Time Management and Staying Compliant in Adulthood Mon, 23 Jul 2007 23:19:00 +0000 Title: Kristin McFall, Time Management and Staying Compliant in Adulthood

With the help of today's therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.

"Kristin McFall, Time Management and Staying Compliant in Adulthood,? features Kristin McFall, a 36-year-old career woman with CF. Kristin talks about succeeding in life, her career, traveling, and winning the battle with CF on a daily basis through therapy compliance. Kristin believes in the importance of "understanding your disease and partnering up with your health care team.? The podcast is now available for downloading on www.jerrycahill.com beginning on May 4th, 2007.

Kristin discusses the importance of being compliant and proactive as an adult with CF while maintaining a career and busy social life.

Highlights from the Podcast include:
• Taking care of your health and being compliant with medical therapies are an integral part to being successful in your career as an adult with CF.
• The key ingredients to staying healthy and having a better quality of life are: compliance to medications & therapies, exercise, nutrition, hydration, and sleep.
• CF is a life-long illness therefore you must learn to be an expert with yourself and revel in the day!
• t is important to maintain a partnership with your CF Center and stand up for yourself.
• CF adults must learn to "multi-task? and "stay clear? by being disciplined with your health care.
• Kristin's "Fabulous 4? tips for being compliant include: bronchodilators, Pulmozyme, airway clearance, and inhaled antibiotics.
]]> Title: Kristin McFall, Time Management and Staying Compliant in Adulthood With the help of today's therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world. "Kristin McFall, Time Management and Staying Compliant in Adulthood,? features Kristin McFall, a 36-year-old career woman with CF. Kristin talks about succeeding in life, her career, traveling, and winning the battle with CF on a daily basis through therapy compliance. Kristin believes in the importance of "understanding your disease and partnering up with your health care team.? The podcast is now available for downloading on www.jerrycahill.com beginning on May 4th, 2007. Kristin discusses the importance of being compliant and proactive as an adult with CF while maintaining a career and busy social life. Highlights from the Podcast include:
• Taking care of your health and being compliant with medical therapies are an integral part to being successful in your career as an adult with CF.
• The key ingredients to staying healthy and having a better quality of life are: compliance to medications & therapies, exercise, nutrition, hydration, and sleep.
• CF is a life-long illness therefore you must learn to be an expert with yourself and revel in the day!
• t is important to maintain a partnership with your CF Center and stand up for yourself.
• CF adults must learn to "multi-task? and "stay clear? by being disciplined with your health care.
• Kristin's "Fabulous 4? tips for being compliant include: bronchodilators, Pulmozyme, airway clearance, and inhaled antibiotics.
]]> 50:27 false full Episode #0054 The Big Fun Box Mon, 02 Jul 2007 23:04:00 +0000
"Making Fun Contagious?…

Jo Anne McKinney and Grant Prather make BIG FUN for many pediatric patients with the BIG FUN BOX. The mission statement: To share with pediatric patients and their families' ways to use their imagination to give them comfort and fun in the midst of stressful situations. The BIG FUN BOX is filled with a stress toy, folding ruler, colored pencils, pencil sharpener, jigsaw puzzle, HeadGames, Find'ems, imagination pad, thank you notes, plastic stencil, and playing cards.
• "The BIG FUN BOX is filled with imagination and you can let it take you wherever you want to go…? states Jo Anne
• Jo Anne has spent many hours in the hospital with her son Grant, due to his cystic fibrosis, and they learned to "make their own fun?
• The BIG FUN BOX is an activity box for children in the hospital with chronic illnesses (ages 7 to 12)
• The BIG FUN BOX was launched in October 2006 and has delivered over 3,100 boxes in 9 states to 31 hospitals. "Our goal is to raise $2.0 million and deliver 100,000 BIG FUN BOXES? states Jo Anne.
• "The BFB is a great vehicle to rescue patients after being in the hospital for 5-6 days and you just find out you will be in longer?
• The BIG FUN BOX seeks corporate sponsors to bring BIG FUN to children with chronic diseases. Jo Anne needs to raise $27,000 before 1,000 boxes can go into production.
• The BIG FUN BOX is a 501 c (3) non-profit organization.
  
  For more info: www.thebigfunbox.org or call: 904-730-0956
]]> "Making Fun Contagious?… Jo Anne McKinney and Grant Prather make BIG FUN for many pediatric patients with the BIG FUN BOX. The mission statement: To share with pediatric patients and their families' ways to use their imagination to give them comfort and fun in the midst of stressful situations. The BIG FUN BOX is filled with a stress toy, folding ruler, colored pencils, pencil sharpener, jigsaw puzzle, HeadGames, Find'ems, imagination pad, thank you notes, plastic stencil, and playing cards.
• "The BIG FUN BOX is filled with imagination and you can let it take you wherever you want to go…? states Jo Anne
• Jo Anne has spent many hours in the hospital with her son Grant, due to his cystic fibrosis, and they learned to "make their own fun?
• The BIG FUN BOX is an activity box for children in the hospital with chronic illnesses (ages 7 to 12)
• The BIG FUN BOX was launched in October 2006 and has delivered over 3,100 boxes in 9 states to 31 hospitals. "Our goal is to raise $2.0 million and deliver 100,000 BIG FUN BOXES? states Jo Anne.
• "The BFB is a great vehicle to rescue patients after being in the hospital for 5-6 days and you just find out you will be in longer?
• The BIG FUN BOX seeks corporate sponsors to bring BIG FUN to children with chronic diseases. Jo Anne needs to raise $27,000 before 1,000 boxes can go into production.
• The BIG FUN BOX is a 501 c (3) non-profit organization. For more info: www.thebigfunbox.org or call: 904-730-0956
]]> 40:39 false full Episode #0053 Adult CF Family Day - MOV File Wed, 20 Jun 2007 20:49:00 +0000 Title: Adult Cystic Fibrosis Day


Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are "living a medical miracle" with 40% of the CF population being adults and living longer with a better quality of life.
• Adults with CF are attending college, have careers, and having families.
• Adults with CF maintain a "positive mental attitude" and keep raising the bar.
• With the explosion of the adult CF population "transitioning" to an adult program is crucial.
• Adults with CF are living longer and maintaining a better quality of life.
• Adults are mentors for younger individuals with CF and their families.

   

]]> Title: Adult Cystic Fibrosis Day Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are "living a medical miracle" with 40% of the CF population being adults and living longer with a better quality of life.
• Adults with CF are attending college, have careers, and having families.
• Adults with CF maintain a "positive mental attitude" and keep raising the bar.
• With the explosion of the adult CF population "transitioning" to an adult program is crucial.
• Adults with CF are living longer and maintaining a better quality of life.
• Adults are mentors for younger individuals with CF and their families.

]]> 07:08 false full Episode #0053 Adult Cystic Fibrosis Day - WMF File Wed, 20 Jun 2007 20:28:00 +0000 Title: Adult Cystic Fibrosis Day


Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are "living a medical miracle? with 40% of the CF population being adults and living longer with a better quality of life.
• Adults with CF are attending college, have careers, and having families.
• Adults with CF maintain a "positive mental attitude? and keep raising the bar.
• With the explosion of the adult CF population "transitioning? to an adult program is crucial.
• Adults with CF are living longer and maintaining a better quality of life.
• Adults are mentors for younger individuals with CF and their families.

  ]]> Title: Adult Cystic Fibrosis Day Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are "living a medical miracle? with 40% of the CF population being adults and living longer with a better quality of life.

  • Adults with CF are attending college, have careers, and having families.
  • Adults with CF maintain a "positive mental attitude? and keep raising the bar.
  • With the explosion of the adult CF population "transitioning? to an adult program is crucial.
  • Adults with CF are living longer and maintaining a better quality of life.
  • Adults are mentors for younger individuals with CF and their families.

    ]]> 07:07 false full Episode #0052 Kyle Connolly Interview Tue, 12 Jun 2007 20:06:00 +0000 Title: Kyle Connolly Talks about being Compliant, Exercise, and College Life.
    
    
    Kyle Connolly is a 21 year old college student that "stays clear? by doing aerosols and vest treatments 3 times per day and exercising on a daily basis to keep his lungs clear. Kyle works very hard to stay healthy so he can have a better quality of life and enjoy!

    • Kyle was diagnosed at 7 weeks due to "failure to thrive?
    • Growing up with CF was non-eventful until high school when he started having more infections.
    • Kyle attends Xavier University in Cincinnati, Ohio and will be a senior next year.
    • "Being involved in sports all my life has helped keep my lungs clear!?
    • Kyle participated in football, baseball, soccer, wrestling, and cross country growing up and now is a varsity cheerleader at Xavier University.
    • Kyle also enjoys running and competes in the FLYING PIG MARATHON every May in Cincinnati, Ohio. Kyle is part of a team and runs the ½ marathon (13.1 miles)
    • "Time management is the biggest challenge I face daily living with CF but I just do it – I have no choice if I want to enjoy everything life has to offer? states Kyle.
    • Kyle is very excited about all the new drugs in the pipeline for people with CF.

     

    ]]> Title: Kyle Connolly Talks about being Compliant, Exercise, and College Life. Kyle Connolly is a 21 year old college student that "stays clear? by doing aerosols and vest treatments 3 times per day and exercising on a daily basis to keep his lungs clear. Kyle works very hard to stay healthy so he can have a better quality of life and enjoy!
    • Kyle was diagnosed at 7 weeks due to "failure to thrive?
    • Growing up with CF was non-eventful until high school when he started having more infections.
    • Kyle attends Xavier University in Cincinnati, Ohio and will be a senior next year.
    • "Being involved in sports all my life has helped keep my lungs clear!?
    • Kyle participated in football, baseball, soccer, wrestling, and cross country growing up and now is a varsity cheerleader at Xavier University.
    • Kyle also enjoys running and competes in the FLYING PIG MARATHON every May in Cincinnati, Ohio. Kyle is part of a team and runs the ½ marathon (13.1 miles)
    • "Time management is the biggest challenge I face daily living with CF but I just do it – I have no choice if I want to enjoy everything life has to offer? states Kyle.
    • Kyle is very excited about all the new drugs in the pipeline for people with CF.
    ]]> 32:38 false full Episode #0051 Smart Vest The Airway Clearance System Wed, 09 May 2007 18:40:00 +0000 Bob Hansen, Chairman, CEO, and co-founder of Electromed, Inc in 1992, makers of Smart Vest, discusses the newest and most advanced airway clearance system SMARTVEST. The vest is designed for comfort and ease-of-use to support patient compliance as well as being efficient, portable, and cost effective.
    
    - Smart Vest – airway clearance system or High Frequency Chest Wall Oscillation (HFCWO) is the mechanical loosening, mobilization and release of excess mucous.
    - The Smart Vest is effective, convenient, and comfortable. Patented vest design (soft fabric & washable) delivers HFCWO with a calmer, gentler, and more relaxed treatment experience.
    - Generator is programmable to assure consistent treatments each day.
    - Vest size fits small toddlers to large adults.
    - Wheeled Smart Vest Trimeline Carrier travels easily and fits inside airplane as a carry-on.
    - Smart Vest offers lifetime warranty and upgrade policy.
    - "Innovation is an important part of our company? states Bob Hansen
    - All field staff are Respiratory Therapists.
    - Smart Vest is an international company and offers a 24 hour toll free number.
    - "The compact size of Smart Vest makes it a great for people with CF going away to college? states Bob Hansen
    - Smart Vest is based in New Prague, MN. For more info call: 800-462-1045.
    - Website: www.electromed-usa.com
    ]]> Bob Hansen, Chairman, CEO, and co-founder of Electromed, Inc in 1992, makers of Smart Vest, discusses the newest and most advanced airway clearance system SMARTVEST. The vest is designed for comfort and ease-of-use to support patient compliance as well as being efficient, portable, and cost effective. - Smart Vest – airway clearance system or High Frequency Chest Wall Oscillation (HFCWO) is the mechanical loosening, mobilization and release of excess mucous. - The Smart Vest is effective, convenient, and comfortable. Patented vest design (soft fabric & washable) delivers HFCWO with a calmer, gentler, and more relaxed treatment experience. - Generator is programmable to assure consistent treatments each day. - Vest size fits small toddlers to large adults. - Wheeled Smart Vest Trimeline Carrier travels easily and fits inside airplane as a carry-on. - Smart Vest offers lifetime warranty and upgrade policy. - "Innovation is an important part of our company? states Bob Hansen - All field staff are Respiratory Therapists. - Smart Vest is an international company and offers a 24 hour toll free number. - "The compact size of Smart Vest makes it a great for people with CF going away to college? states Bob Hansen - Smart Vest is based in New Prague, MN. For more info call: 800-462-1045. - Website: www.electromed-usa.com
    ]]> 42:22 false full EXERCISE for LIFE SCHOLARSHIP Mon, 30 Apr 2007 16:39:00 +0000 EXERCISE for LIFE SCHOLARHIP The Boomer Esiason Foundation has created a scholar-athlte award to assist cystic fibrosis senior high school athletes pursuing undergraduate degrees.

    - "Exercise is the single most important thing in my life that keeps me healthy... jogging is a universal activity that everyone can partake in without the need for an expensive gm or pool membership" states Jerry Cahill who is a 50 year-old with CF. Jerry has been exercising all his life in spite of having CF.
    - The goal of the scholar athlete award is to raise awareness, improve the quality of life and lifespan of individuals with CF through the power of daily physical exercise.
    - The scholarship will be awarded annually based on demonstrated financial need, academic accomplishment and athletic ability in the area of running. All finalist will be timed in a 1.5 mile jog.
    - Award: 1 female winner and 1 male winner each receiving $10,000. awarded to the college of their choice.
    - The student/athlete should be jogging on a regular basis and training for the 1.5 mile run. All candidates will be judged on time.
    - Scholarship launches May 1st 2007
    - Deadline July 29th 2007
    - For more information and applications go to: www.cfscholarships.com

    ]]> EXERCISE for LIFE SCHOLARHIP The Boomer Esiason Foundation has created a scholar-athlte award to assist cystic fibrosis senior high school athletes pursuing undergraduate degrees.

    - "Exercise is the single most important thing in my life that keeps me healthy... jogging is a universal activity that everyone can partake in without the need for an expensive gm or pool membership" states Jerry Cahill who is a 50 year-old with CF. Jerry has been exercising all his life in spite of having CF.- The goal of the scholar athlete award is to raise awareness, improve the quality of life and lifespan of individuals with CF through the power of daily physical exercise.- The scholarship will be awarded annually based on demonstrated financial need, academic accomplishment and athletic ability in the area of running. All finalist will be timed in a 1.5 mile jog.- Award: 1 female winner and 1 male winner each receiving $10,000. awarded to the college of their choice.- The student/athlete should be jogging on a regular basis and training for the 1.5 mile run. All candidates will be judged on time.- Scholarship launches May 1st 2007- Deadline July 29th 2007- For more information and applications go to: www.cfscholarships.com

    ]]> 03:41 false full exercise, scholarship Laps for CF Thu, 12 Apr 2007 18:47:00 +0000 Laps for CF Foundation
    ...on the road to a cure...
    
    The Laps for CF Foundation is an organization based out of Birmingham, Alabama that fights Cystic Fibrosis everyday.  Together with CF supporters across the United States, the laps for CF Foundation raises money and awareness for Cystic Fibrosis.
    • The money the Foundation raises is awarded to 3 main organizations: The Cystic Fibrosis Foundation, CF Hope for Alabama, and CF Care Clinics.
    • Emily Schreiber was diagnosed with cystic fibrosis in the winter of 2003. After diagnosis and reading a  book called Karen's Ride - where a young girl, Karen, raised money for her local hospital... Emily decided  to do the same for Cystic Fibrosis.
    • The first year Emily swam at Wald Park in Vestavia, Alabama and raised over $60,000.
    • In 2005 Emily swam with the Auburn University swim team and raised over$220,000.
    • Emily plans on teaming up with the Boomer Esiason Foundation to combat cystic fibrosis by launching Swim-a-Thons with 15+ Universities across the nation.
    • For more information: www.lapsforcf.org
    • E-Mail Emily at: emily@lapsforcf.org
    ]]> Laps for CF Foundation ...on the road to a cure... The Laps for CF Foundation is an organization based out of Birmingham, Alabama that fights Cystic Fibrosis everyday. Together with CF supporters across the United States, the laps for CF Foundation raises money and awareness for Cystic Fibrosis.
    • The money the Foundation raises is awarded to 3 main organizations: The Cystic Fibrosis Foundation, CF Hope for Alabama, and CF Care Clinics.
    • Emily Schreiber was diagnosed with cystic fibrosis in the winter of 2003. After diagnosis and reading a book called Karen's Ride - where a young girl, Karen, raised money for her local hospital... Emily decided to do the same for Cystic Fibrosis.
    • The first year Emily swam at Wald Park in Vestavia, Alabama and raised over $60,000.
    • In 2005 Emily swam with the Auburn University swim team and raised over$220,000.
    • Emily plans on teaming up with the Boomer Esiason Foundation to combat cystic fibrosis by launching Swim-a-Thons with 15+ Universities across the nation.
    • For more information: www.lapsforcf.org
    • E-Mail Emily at: emily@lapsforcf.org
    ]]> full Episode #0050 Brian's Ride Fri, 06 Apr 2007 19:20:00 +0000 Title: Brian's Ride
    
    Brian McCandless is like any  average nineteen year old university student except, like 30,000 Americans, he has cystic fibrosis. On May 16th 2007 Brian will cycle from Pittsburgh, PA to Tallahassee, Florida and back… to raise awareness for cystic Fibrosis. Brian will bike over 2,000 miles (25 day trip) averaging 100 miles per day.
    
    - Brian was diagnosed at 2 months of age due to "failure to thrive? and is from West Sunbury, PA.
    
    - Brian is a freshman at Slippery Rock University and a member of the cycling club
    
    - "I believe biking is the best form of airway clearance? states Brian.
    
    - According to Brian "People with CF are often told not to over exert themselves. I say EXERT ON! No one should ever be told they cannot do something?
    
    - Brian believes the most important factor in maintaining his health is "exercise and nutrition?
    
    - "My goal for Brian's Ride is to increase CF awareness, raise money for CF research, and most importantly, give hope to children who are diagnosed with CF.
    
    - To donate to Brian's Ride or for more information go to: www.briansride.org

     

    GOOD LUCK BRIAN!

    ]]> Title: Brian's Ride Brian McCandless is like any average nineteen year old university student except, like 30,000 Americans, he has cystic fibrosis. On May 16th 2007 Brian will cycle from Pittsburgh, PA to Tallahassee, Florida and back… to raise awareness for cystic Fibrosis. Brian will bike over 2,000 miles (25 day trip) averaging 100 miles per day. - Brian was diagnosed at 2 months of age due to "failure to thrive? and is from West Sunbury, PA. - Brian is a freshman at Slippery Rock University and a member of the cycling club - "I believe biking is the best form of airway clearance? states Brian. - According to Brian "People with CF are often told not to over exert themselves. I say EXERT ON! No one should ever be told they cannot do something? - Brian believes the most important factor in maintaining his health is "exercise and nutrition? - "My goal for Brian's Ride is to increase CF awareness, raise money for CF research, and most importantly, give hope to children who are diagnosed with CF. - To donate to Brian's Ride or for more information go to: www.briansride.org

    GOOD LUCK BRIAN!

    ]]> 27:11 false full Blubrry Jam Featuring Brother Love Wed, 04 Apr 2007 20:56:00 +0000 Come Join the Fun!
    
    Date
    Saturday, Apr 7, 2007
    
    Time
    7:00 pm - 11:00 pm
    
    Location
    Canal Room
    285 W. Broadway
    New York, NY 10013 Date: April 7th
    Location: Canal Room
    New York, NY
    
    Price: $18 Online
    http://blubrryjam.eventbrite.com/
    
    $20 at the Door
    
    I hope to see you at the Canal Room
    
    ]]> Date Saturday, Apr 7, 2007 Time 7:00 pm - 11:00 pm Location Canal Room285 W. BroadwayNew York, NY 10013 Date: April 7thLocation: Canal RoomNew York, NYPrice: $18 Onlinehttp://blubrryjam.eventbrite.com/$20 at the DoorI hope to see you at the Canal Room]]> 01:02 false full Episode #0049 CF Great Strides NYC Walk - Raising Money for a Cure! Fri, 30 Mar 2007 18:18:00 +0000 Title: CF Great Strides NYC Walk – Raising Money for a Cure!

    Dawn and Stan Zolek are parents of 3 year old Stanley, who has CF and a 1 year old daughter who is a carrier of the gene. They are chairing the NYC Great Strides Walk in their neighborhood, Battery Park City.

    The event is "feel good type of day!? and raises money for research to help find a cure for cystic fibrosis.

    • "Stanley is compliant to his daily routine and does his "work out? (vest treatment) twice a day? states his dad Stan.

    • Stanley's website: ilovestanleynyc.com

    • "CF Great Strides is a fun day with lots of family and community involvement? states Dawn Zolek.

    • CF Great Strides is a 6.2 mile walk and is the Cystic Fibrosis Foundation's largest national fundraising event. The event has 100 sites nationally and raised over $32 million last year.

    • The metro New York area will be hosting 4 sites for the event:

      • Battery Park City, NYC on Saturday, May 19^th 9am

      • Rye Playland, Rye, NY on Sunday, May 20^th 9am

      • Clove Lakes Park, Staten Island, NY on Saturday, June 2^nd 9am

      • Bowdoin Park, Poughkeepsie, NY on Sunday, June 3^rd 9am

    • More information on CF Great Strides nationally is available at: www.cff.org/great_strides

    ]]> Title: CF Great Strides NYC Walk – Raising Money for a Cure!

    Dawn and Stan Zolek are parents of 3 year old Stanley, who has CF and a 1 year old daughter who is a carrier of the gene. They are chairing the NYC Great Strides Walk in their neighborhood, Battery Park City.

    The event is "feel good type of day!? and raises money for research to help find a cure for cystic fibrosis.

    • "Stanley is compliant to his daily routine and does his "work out? (vest treatment) twice a day? states his dad Stan.

    • Stanley's website: ilovestanleynyc.com

    • "CF Great Strides is a fun day with lots of family and community involvement? states Dawn Zolek.

    • CF Great Strides is a 6.2 mile walk and is the Cystic Fibrosis Foundation's largest national fundraising event. The event has 100 sites nationally and raised over $32 million last year.

    • The metro New York area will be hosting 4 sites for the event:

      • Battery Park City, NYC on Saturday, May 19th 9am

      • Rye Playland, Rye, NY on Sunday, May 20th 9am

      • Clove Lakes Park, Staten Island, NY on Saturday, June 2nd 9am

      • Bowdoin Park, Poughkeepsie, NY on Sunday, June 3rd 9am

    • More information on CF Great Strides nationally is available at: www.cff.org/great_strides

    ]]> 24:08 false full PodcastAlley.com Claim Your Feed Mon, 26 Feb 2007 18:19:00 +0000 My Podcast Alley feed! {pca-c360b5469328cb89aa7d70dfb79fc069}]]> My Podcast Alley feed! {pca-c360b5469328cb89aa7d70dfb79fc069}]]> full Episode #0048 Keith & Kyle Connolly Interview Wed, 21 Feb 2007 19:48:00 +0000 TITLE: "The Connolly Twins – Transitioning into Adulthood with CF?
    
    With the help of today's therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling individuals with CF to pursue their dreams by entering college and the career world
    
    Keith and Kyle Connolly, 21-year-old twin brothers and college students with CF talk about transitioning into college and adulthood. Keith and Kyle talk about growing up with CF and the lessons they have learned as they become more independent and responsible for their own health care. Keith and Kyle's mother, Linda Hood, also shares her perspective on raising twin boys with CF and learning to "let go.?
    
    Keith and Kyle discuss the importance of taking responsibility for their CF health care while maintaining their busy college schedules.
    
    Highlights from the Podcast include:
    • Preparation and compliance are integral in making a successful transition into adulthood with CF.
    • The keys to staying healthy are compliance to medications, therapies, and exercise.
    • Time-management in college is crucial for maintaining health and quality of life.
    • Prior to moving away to college, begin to transition into self-ownership of health care.
    • It is important to maintain a relationship with your CF Center.
    • For parents - instill realistic hope within your child, and raise him or her to be independent; through age-appropriate responsibilities related to their health care.
    • When children leave the home, parents should have confidence in how their children have been taught to care for themselves.
      ]]> TITLE: "The Connolly Twins – Transitioning into Adulthood with CF? With the help of today's therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling individuals with CF to pursue their dreams by entering college and the career world Keith and Kyle Connolly, 21-year-old twin brothers and college students with CF talk about transitioning into college and adulthood. Keith and Kyle talk about growing up with CF and the lessons they have learned as they become more independent and responsible for their own health care. Keith and Kyle's mother, Linda Hood, also shares her perspective on raising twin boys with CF and learning to "let go.? Keith and Kyle discuss the importance of taking responsibility for their CF health care while maintaining their busy college schedules. Highlights from the Podcast include:
      • Preparation and compliance are integral in making a successful transition into adulthood with CF.
      • The keys to staying healthy are compliance to medications, therapies, and exercise.
      • Time-management in college is crucial for maintaining health and quality of life.
      • Prior to moving away to college, begin to transition into self-ownership of health care.
      • It is important to maintain a relationship with your CF Center.
      • For parents - instill realistic hope within your child, and raise him or her to be independent; through age-appropriate responsibilities related to their health care.
      • When children leave the home, parents should have confidence in how their children have been taught to care for themselves.]]> 37:36 false full Episode #0047 Jerry Cahill's Exercise For Life Video (Windows Media Format) Tue, 06 Feb 2007 20:05:00 +0000 Title: Action speaks louder than words… "EXERCISE FOR LIFE?
        
        EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF.
        
        The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the "here and now?
        
        - "Exercise is the single most important thing in my life that keeps me healthy? states Jerry Cahill at 50 years old with cystic fibrosis.
        - Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly "jogging/running? on a daily basis.
        - Doctors and CF centers "talk about it? but we need to get everyone with CF "doing it? Your lungs are muscles and need to be worked to keep them clear and strong.
        - Besides being "compliant? to medication and therapy routines – exercise should be part of EVERYONE'S daily ritual.
        - Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging "outside? is key to oxygenating the lungs and keeping your airways clear.
        - "The goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity
        ]]> Title: Action speaks louder than words… "EXERCISE FOR LIFE? EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF. The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the "here and now? - "Exercise is the single most important thing in my life that keeps me healthy? states Jerry Cahill at 50 years old with cystic fibrosis. - Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly "jogging/running? on a daily basis. - Doctors and CF centers "talk about it? but we need to get everyone with CF "doing it? Your lungs are muscles and need to be worked to keep them clear and strong. - Besides being "compliant? to medication and therapy routines – exercise should be part of EVERYONE'S daily ritual. - Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging "outside? is key to oxygenating the lungs and keeping your airways clear. - "The goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity
        ]]> 03:27 false full Episode #0047 Exercise For Life Video (iPod M4V Format) Mon, 05 Feb 2007 18:19:00 +0000 Title: Action speaks louder than words… "EXERCISE FOR LIFE?
        
        EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF.
        
        The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the "here and now?
        
        - "Exercise is the single most important thing in my life that keeps me healthy? states Jerry Cahill at 50 years old with cystic fibrosis.
        - Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly "jogging/running? on a daily basis.
        - Doctors and CF centers "talk about it? but we need to get everyone with CF "doing it? Your lungs are muscles and need to be worked to keep them clear and strong.
        - Besides being "compliant? to medication and therapy routines – exercise should be part of EVERYONE'S daily ritual.
        - Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging "outside? is key to oxygenating the lungs and keeping your airways clear.
        - "The goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity
        ]]> Title: Action speaks louder than words… "EXERCISE FOR LIFE? EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF. The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the "here and now? - "Exercise is the single most important thing in my life that keeps me healthy? states Jerry Cahill at 50 years old with cystic fibrosis. - Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly "jogging/running? on a daily basis. - Doctors and CF centers "talk about it? but we need to get everyone with CF "doing it? Your lungs are muscles and need to be worked to keep them clear and strong. - Besides being "compliant? to medication and therapy routines – exercise should be part of EVERYONE'S daily ritual. - Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging "outside? is key to oxygenating the lungs and keeping your airways clear. - "The goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity
        ]]> 03:28 false full Episode 0046: New Challenges in Obtaining & Maintaining Health Insurance Sat, 20 Jan 2007 02:17:00 +0000 Beth Sufian Podcast Show notes

        Title: New Challenges in Obtaining & Maintaining Health Insurance

        Beth Sufian is an attorney and a 41 year-old with cystic fibrosis. She is the Director of the CF Legal Information Hotline, sponsored by CF Services Pharmacy, which has assisted over 7,000 people with CF. Beth serves on the CF Foundation Advisory Task Force on Adult Issues.

        • Beth talks about knowing your legal rights and advocating for yourself and children.

        • Beth discusses who qualifies for Social Security benefits, Medicare and Medicaid.

        • Learn pointers on how to obtain health insurance for children and adults with CF and how to deal with increasing drug co-pays.

        • CF Legal Information Hotline offers free and confidential information on legal rights of people with CF. Call: 1-800-622-0385 or Email: CFLegal@cfserv.com

        • Learn about the "golden nuggets? of HIPAA

        • "Keep good records? suggests Beth

        • COBRA Insurance - Consolidated Omnibus Budget Reconciliation Act.

        • Beth gives pointers on Transitioning to Adulthood.

        • Beth also talks about Government Programs:

          • SSI – Supplemental Security Income

          • SSDI – Social Security Disability Income

          • Medicaid

          • Medicare

        • Beth Sufian's clients include many people with CF. She is based out of Houston, Texas and travels nationally.

        ]]> Beth Sufian Podcast Show notes

        Title: New Challenges in Obtaining & Maintaining Health Insurance

        Beth Sufian is an attorney and a 41 year-old with cystic fibrosis. She is the Director of the CF Legal Information Hotline, sponsored by CF Services Pharmacy, which has assisted over 7,000 people with CF. Beth serves on the CF Foundation Advisory Task Force on Adult Issues.

        • Beth talks about knowing your legal rights and advocating for yourself and children.

        • Beth discusses who qualifies for Social Security benefits, Medicare and Medicaid.

        • Learn pointers on how to obtain health insurance for children and adults with CF and how to deal with increasing drug co-pays.

        • CF Legal Information Hotline offers free and confidential information on legal rights of people with CF. Call: 1-800-622-0385 or Email: CFLegal@cfserv.com

        • Learn about the "golden nuggets? of HIPAA

        • "Keep good records? suggests Beth

        • COBRA Insurance - Consolidated Omnibus Budget Reconciliation Act.

        • Beth gives pointers on Transitioning to Adulthood.

        • Beth also talks about Government Programs:

          • SSI – Supplemental Security Income

          • SSDI – Social Security Disability Income

          • Medicaid

          • Medicare

        • Beth Sufian's clients include many people with CF. She is based out of Houston, Texas and travels nationally.

        ]]> 42:07 false full With Every Breath Tue, 09 Jan 2007 18:22:00 +0000 Title: With Every Breath – stories about people living with cystic fibrosis.

        Katherine Russell is 16 years old with cystic fibrosis, from Buffalo, NY. Katherine's book has a wide variety of writers from young, old, parents, patients, doctors, and friends. It demonstrates how the individual with CF as well as family and friends deal with CF.

        This book is very inspirational and educational for all involved in the world of cystic fibrosis.

        • Katherine is an outgoing young lady that swims on 2 teams, snowboarding, and loves socializing with her friends, music (cello) and writing.

        • Katherine attends high school and is a volunteer on the CF advisory panel at Children's Hospital of Buffalo to help work towards better CF care.

        • "I want to travel to South Africa and Europe someday? states Katherine.

        • In Katherine's book With Every Breath, the stories range from recounts of having a child diagnosed with CF to being a patient receiving a transplant.

        • Some stories simply share advice and perspective, while others share stories of travel, success, understanding, and change.

        • For more information on the book contact Katherine Russell:
          www.lifewitheverybreath.com

        ]]> Title: With Every Breath – stories about people living with cystic fibrosis.

        Katherine Russell is 16 years old with cystic fibrosis, from Buffalo, NY. Katherine's book has a wide variety of writers from young, old, parents, patients, doctors, and friends. It demonstrates how the individual with CF as well as family and friends deal with CF.

        This book is very inspirational and educational for all involved in the world of cystic fibrosis.

        • Katherine is an outgoing young lady that swims on 2 teams, snowboarding, and loves socializing with her friends, music (cello) and writing.

        • Katherine attends high school and is a volunteer on the CF advisory panel at Children's Hospital of Buffalo to help work towards better CF care.

        • "I want to travel to South Africa and Europe someday? states Katherine.

        • In Katherine's book With Every Breath, the stories range from recounts of having a child diagnosed with CF to being a patient receiving a transplant.

        • Some stories simply share advice and perspective, while others share stories of travel, success, understanding, and change.

        • For more information on the book contact Katherine Russell:www.lifewitheverybreath.com

        ]]> full Give the Gift of Life Wed, 20 Dec 2006 00:58:00 +0000

        Title: Give the Gift of Life…
        
        A Plea to Encourage Organ Donors - Charlie Stockley, Priority Recipient on National Organ Donor List, in Immediate Need of Lung Donor and Transplant
        
        With most people focusing on getting through the holiday season, Charlie Stockley, 38, is fighting to get through another day waiting for a new set of lungs. Charlie is on life support and in immediate need of a lung transplant at Stanford Medical Center in Palo Alto. Charlie is up against his toughest battle with cystic fibrosis (CF). Although he is a priority lung transplant recipient on national organ donor watch lists, his condition remains tenuous as symptoms from CF complicate his recovery and threaten his life. Charlie has been on a life preserving ventilator since Tues, Dec 12, 2006, and a lung match has still not yet become available.

        • Charlie has been a tough fighter of this progressive, life-threatening lung disease, and has a lot to live for.

        • He met the love of his life 18 months ago, Margie Roper, and they are getting married on March 10, 2007. Charlie can't wait to make a new home with Margie, and her two children, Michael and Amber who he loves very much.

        • Charlie grew up in Livermore, CA and has resided in San Francisco for over 10 years.

        • He works as an audio designer at Electronic Arts and has been a professional drummer for numerous bands, including Mojo Deluxe and Mad Dog Toor.

        • Please visit www.CharlieStockley.com

        • For more information and updates: info@charliestockley.com

        
        December is the month of giving. We encourage everyone to make sure they are registered to show it's important to them that others are given the opportunity to live a full and productive life. Charlie's friends and family would greatly appreciate you getting the word out in anyway you can, as soon as you can.

        Here are a few things to do:
        1.  Take 3 minutes to sign up online to be a donor (by state). In California go to www.donatelifecalifornia.org. Other states, go to: www.donatelife.net
        2.  When you sign up online, notify friends and family via email
        3.  Tell your family members that you have decided to become a donor so they will understand your decision and support it.
        4.  Say yes to donation on your driver's license
        5.  If tragedy should strike someone you know, please think of Charlie, and hundreds of people like him waiting for an organ, and encourage them to give the gift of life.
        
        Passing of Charlie Stockley
        From www.charliestockley.com
        Charlie Stockley passed away on the night of December 24th, 2006. We fervently believe that Charlie's courageous battle with Cystic Fibrosis has inspired countless people to register as the organ donors that someday might save the lives of others in his situation. Although Charlie didn't receive the lungs he so desperately needed, we know he would be happy if only one person was helped by his struggle. Charlie's family wishes to express their most sincere gratitude for the love, prayers and support that sustained them during their difficult ordeal and demonstrated how many lives were touched by this remarkable man. Please honor Charlie's memory either by registering as an organ donor or making a contribution to any chapter of the Cystic Fibrosis Foundation.
        
        Thanks to all who attended Charlie's Memorial Service & Life Celebration in Livermore on Saturday, January 6th, 2007. What a sincerely beautiful & glorious gathering! Thank you for the memories & memorabilia, all the music, the laughter & tears, your warm hearts & loving arms. A true testament to the power of one. You are invited to view photos from the celebration here.

        ]]> Title: Give the Gift of Life… A Plea to Encourage Organ Donors - Charlie Stockley, Priority Recipient on National Organ Donor List, in Immediate Need of Lung Donor and Transplant With most people focusing on getting through the holiday season, Charlie Stockley, 38, is fighting to get through another day waiting for a new set of lungs. Charlie is on life support and in immediate need of a lung transplant at Stanford Medical Center in Palo Alto. Charlie is up against his toughest battle with cystic fibrosis (CF). Although he is a priority lung transplant recipient on national organ donor watch lists, his condition remains tenuous as symptoms from CF complicate his recovery and threaten his life. Charlie has been on a life preserving ventilator since Tues, Dec 12, 2006, and a lung match has still not yet become available.

        • Charlie has been a tough fighter of this progressive, life-threatening lung disease, and has a lot to live for.

        • He met the love of his life 18 months ago, Margie Roper, and they are getting married on March 10, 2007. Charlie can't wait to make a new home with Margie, and her two children, Michael and Amber who he loves very much.

        • Charlie grew up in Livermore, CA and has resided in San Francisco for over 10 years.

        • He works as an audio designer at Electronic Arts and has been a professional drummer for numerous bands, including Mojo Deluxe and Mad Dog Toor.

        • Please visit www.CharlieStockley.com

        • For more information and updates: info@charliestockley.com

        December is the month of giving. We encourage everyone to make sure they are registered to show it's important to them that others are given the opportunity to live a full and productive life. Charlie's friends and family would greatly appreciate you getting the word out in anyway you can, as soon as you can.

        Here are a few things to do: 1. Take 3 minutes to sign up online to be a donor (by state). In California go to www.donatelifecalifornia.org. Other states, go to: www.donatelife.net 2. When you sign up online, notify friends and family via email 3. Tell your family members that you have decided to become a donor so they will understand your decision and support it. 4. Say yes to donation on your driver's license 5. If tragedy should strike someone you know, please think of Charlie, and hundreds of people like him waiting for an organ, and encourage them to give the gift of life. Passing of Charlie Stockley From www.charliestockley.com Charlie Stockley passed away on the night of December 24th, 2006. We fervently believe that Charlie's courageous battle with Cystic Fibrosis has inspired countless people to register as the organ donors that someday might save the lives of others in his situation. Although Charlie didn't receive the lungs he so desperately needed, we know he would be happy if only one person was helped by his struggle. Charlie's family wishes to express their most sincere gratitude for the love, prayers and support that sustained them during their difficult ordeal and demonstrated how many lives were touched by this remarkable man. Please honor Charlie's memory either by registering as an organ donor or making a contribution to any chapter of the Cystic Fibrosis Foundation. Thanks to all who attended Charlie's Memorial Service & Life Celebration in Livermore on Saturday, January 6th, 2007. What a sincerely beautiful & glorious gathering! Thank you for the memories & memorabilia, all the music, the laughter & tears, your warm hearts & loving arms. A true testament to the power of one. You are invited to view photos from the celebration here.

        ]]> full Bonus Episode #0045: Sean Hunter Presents The Night Before Christmas Sun, 10 Dec 2006 20:27:00 +0000
        To everyone who loves football, Christmas and children.

         

        A special podcast presentation of the classic Christmas story

        The Night Before Christmas

        has been added to the Boomer Esiason web site.
        
        www.esiason.org
        &
        
        Jerry Cahill's Cystic Fibrosis Podcast

         

        www.jerrycahill.com

         

        What we do want you to know is that it is OK to download this pod cast to your computer and to CDs without any cost or violation.  In fact, we encourage you to do so.  

        Christmas is a special time, and the hope is that you can help others enjoy sharing Christmas memories and traditions with their family, neighbors and friends. 

        So please,

        be part of the Christmas spirit, enjoy the special recording, 

        and pass the world along.

         

                                                                Always the best,

         

                                                                                  Sean Hunter
        ]]> To everyone who loves football, Christmas and children. A special podcast presentation of the classic Christmas story The Night Before Christmas has been added to the Boomer Esiason web site.www.esiason.org&Jerry Cahill's Cystic Fibrosis Podcast www.jerrycahill.com What we do want you to know is that it is OK to download this pod cast to your computer and to CDs without any cost or violation. In fact, we encourage you to do so. Christmas is a special time, and the hope is that you can help others enjoy sharing Christmas memories and traditions with their family, neighbors and friends. So please, be part of the Christmas spirit, enjoy the special recording, and pass the world along. Always the best, Sean Hunter]]> 04:58 false full Episode #0044 Cystic Fibrosis.com Celebrates 10 year Anniversary. Fri, 01 Dec 2006 21:39:00 +0000 Title:  Cystic Fibrosis.com Celebrates 10 year Anniversary.
        
        
        Jeanne Barnett, former computer math teacher and now President of cysticfibrosis.com, talks about her site and how "it is a support community for those dealing with cystic fibrosis" Launched in 1996 with a friend who had CF, the site was started as an experiment but evolved into a major resource for the CF Community that gives people the opportunity to discuss CF with others.
        
        CysticFibrosis.com is a public website and you do not have to sign up.
        The site has over 117,372 messages as well as 11,112 threads and 3,396 users
        1.   Jeanne reads every message and the site has over 1,000 visitors per day
        2.   Cystic Fibrosis.com (www.cysticfibrosis.com) is a "place to share and celebrate life!" states Jeanne Barnett.
        3.   The website is global and includes: forums, blogs, faq's, library, kids, CF Center info, photo galleries, recipes, and a section for newly diagnosed.
        4.   The forums include topics on adults, families, new diagnosed, nutrition/exercise, transplants, and teenagers/young people.
        5.   Jeanne is passionate about her site and states; "The CF Community is ONE family and we are here to support and inspire each other"
        www.cysticfibrosis.com
        
        HAPPY 10 YEAR ANNIVERSARY!!!!  KEEP UP THE GREAT WORK!!!! ]]> Title: Cystic Fibrosis.com Celebrates 10 year Anniversary.Jeanne Barnett, former computer math teacher and now President of cysticfibrosis.com, talks about her site and how "it is a support community for those dealing with cystic fibrosis" Launched in 1996 with a friend who had CF, the site was started as an experiment but evolved into a major resource for the CF Community that gives people the opportunity to discuss CF with others. CysticFibrosis.com is a public website and you do not have to sign up.The site has over 117,372 messages as well as 11,112 threads and 3,396 users1. Jeanne reads every message and the site has over 1,000 visitors per day2. Cystic Fibrosis.com (www.cysticfibrosis.com) is a "place to share and celebrate life!" states Jeanne Barnett.3. The website is global and includes: forums, blogs, faq's, library, kids, CF Center info, photo galleries, recipes, and a section for newly diagnosed.4. The forums include topics on adults, families, new diagnosed, nutrition/exercise, transplants, and teenagers/young people.5. Jeanne is passionate about her site and states; "The CF Community is ONE family and we are here to support and inspire each other" www.cysticfibrosis.comHAPPY 10 YEAR ANNIVERSARY!!!! KEEP UP THE GREAT WORK!!!! ]]> 16:14 false full Episode #0043 Rob Safuto's New York Minute Podcast - Mr. Dennehy's Party Coverage Tue, 21 Nov 2006 23:30:00 +0000 A big THANKS to Mr. Rob Safuto of the New York Minute Podcast

        for his coverage of the New York City Post-Marathon Party at Mr. Denney's Pub.  Rob has been a Quiet Giant of the Boomer Esiason Foundation for quite a while...and was instrumental in teaching me about podcasting in early 2005.

        
        

        This Podcast can also be heard on the New York Minute Podcast.  The following is Rob's show notes from his podcast.

        Check out all of Rob's Podcasts

        http://www.podcastnyc.net (New York City Podcast Network)
        http://www.newyorkminuteshow.com (Podcast Guide to New York City)
        http://www.getyourflow.com (Flow is music...liberated!)
        http://community.podcastnyc.net (Join the community!)

        This is as close as well get to a New York City Marathon special this year on the show. Not bad though. In association with my friend Jerry Cahill, host of the Cystic Fibrosis Podcast, I covered the Team Boomer post marathon fund raiser.

        The event was held at a very nice Irish Pub called Mr. Dennehy's. The pub is located at 63 Carmine St. near 7th Avenue South.

        And yes I did interview one actual runner in the marathon. I also talk with Jerry about Team Boomer and mix with some locals who talk about their experiences around town.

        This episode also includes a promo for an upcoming show by my pal Brother Love.

        ]]> A big THANKS to Mr. Rob Safuto of the New York Minute Podcast

        for his coverage of the New York City Post-Marathon Party at Mr. Denney's Pub. Rob has been a Quiet Giant of the Boomer Esiason Foundation for quite a while...and was instrumental in teaching me about podcasting in early 2005.

        This Podcast can also be heard on the New York Minute Podcast. The following is Rob's show notes from his podcast.

        Check out all of Rob's Podcasts

        http://www.podcastnyc.net (New York City Podcast Network)http://www.newyorkminuteshow.com (Podcast Guide to New York City) http://www.getyourflow.com (Flow is music...liberated!)http://community.podcastnyc.net (Join the community!)

        This is as close as well get to a New York City Marathon special this year on the show. Not bad though. In association with my friend Jerry Cahill, host of the Cystic Fibrosis Podcast, I covered the Team Boomer post marathon fund raiser.

        The event was held at a very nice Irish Pub called Mr. Dennehy's. The pub is located at 63 Carmine St. near 7th Avenue South.

        And yes I did interview one actual runner in the marathon. I also talk with Jerry about Team Boomer and mix with some locals who talk about their experiences around town.

        This episode also includes a promo for an upcoming show by my pal Brother Love.

        ]]> 43:56 false full Episode #0042 Sarah Katopodis Interview Fri, 17 Nov 2006 19:17:00 +0000 Title: RUN SARAH RUN!!!
        
        Sarah Katopodis ran her 1st Marathon in NYC and ran it for Team Boomer – Fighting Cystic Fibrosis, and we are honored!! Sarah raised over $4,000 for the Foundation's Exercise for Life Scholarship and was presented with a game ball for her unending passion and support for the CF community.
        
        1.   Sarah grew up in New Jersey and attended the University of Scranton and has a masters in marketing.
        
        2.   Sarah is blessed with a beautiful loving family and has a very supportive husband, Taso, as well as 3 phenomenal sons that keep her running marathons on a daily basis – Alex, Evan, and Steven. All were cheering Sarah on during the marathon.
        
        3.   "As a child I used to run with my Grandfather at 6am during the summer at Long Beach Island? states Sarah.
        
        4.   Sarah continued here passion for running with a running group while working in Charlotte, NC and ran 2 half marathons.
        
        5.   Sarah's NYC Marathon application was declined a few times before finally being accepted for the 2006 NYC Marathon. "From that day forward – the training and commitment began…? states Sarah.
        
        6.   Sarah and her family launched www.cysticfibrois.com over 10 years ago – a informative/educational/supportive site for people with CF and their families and therefore was committed to running the NYC Marathon for a cause related to cystic fibrosis.
        
        7.   Sarah finished the marathon in 6 hours and 20 minutes and is a winner spiritually, physically, and as a committed person in the game of life – CONGRAT'S!!!!
        
         8.   Check out Sarah's award winning blog on her marathon experience at: http://blogs.cysticfibrosis.com/index.cfm?forumid=250
        
        Also check out cysticfibrosis.com's website at: www.cysticfibrosis.com
        ]]> http://blogs.cysticfibrosis.com/index.cfm?forumid=250Also check out cysticfibrosis.com's website at: www.cysticfibrosis.com]]> 34:56 false full Joe Kelly Runs NYC Marathon for Team Boomer Tue, 14 Nov 2006 01:50:00 +0000
        1.   Joe Kelly runs his first marathon for Team Boomer – Fighting Cystic Fibrosis in under 4 hours
        
        2.   The Boomer Esiason Foundation presents Joe Kelly with an autographed football by Boomer Esiason for his great cause
        
        3.   Donal Dennehy accommodates the Boomer Esiason Foundation at his restaurant to help raise funds for people with CF
        
        4.   Donal is presented with a game ball for his commitment to the fight against cystic fibrosis
        
        5.   The event was a huge success raising over $5,000. for scholarships and a fun time was had by all.
        
        6.   Donal states "This is the first of many fundraising events that Mr. Dennehy's will partner up with the Boomer Esiason Foundation to raise money for a cure.
        
        For more information on Mr. Dennehy's go to: www.mrdennehys.com]]> www.mrdennehys.com]]> full MR. DENNEHY'S TO HOST TEAM BOOMER - FIGHTING CYSTIC FIBROSIS POST- NYC Fri, 27 Oct 2006 18:34:00 +0000 MR. DENNEHY'S TO HOST TEAM BOOMER - FIGHTING CYSTIC FIBROSIS POST- NYC MARATHON BENEFIT
        
        
        - On Sunday, November 5 from 7:00 PM to 9:00 PM, Mr. Dennehy's located at 63 Carmine Street @ Seventh Avenue in New York City's West Village will host a post-marathon celebration to benefit Team Boomer- Fighting Cystic Fibrosis.
        
        - The event is open to the public and ticket price is $25, which includes a two-hour open bar. All proceeds from the evening will go directly to the Boomer Esiason Foundation (BEF) to support the Exercise for Life Scholarship for individuals with cystic fibrosis.
        
        - Joe Kelly, an employee at Mr. Dennehy's, will be representing TEAM BOOMER in the marathon along with many other international runners.
        
        - Team Boomer – Fighting Cystic Fibrosis was developed by BEF and is a USATF-registered competitive club.
        
        - Those who are a part of Team Boomer participate in various races, obtain sponsors, and donate the pledges they receive to BEF. Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF.
        
        - BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with CF.
        
        - Mr. Dennehy's, located at 63 Carmine Street at Seventh Avenue, is a traditional Irish pub and restaurant known for its live music, great food and charming bartenders.
        
        - Mr. Dennehy's has received rave reviews from Time Out New York, New York Magazine and CitiSearch and is a New York pub that's not to miss.

        
        
        For more info:
        
        o Call: 212-414-1223
        
        o www.mrdennehys.com
        
        o donal@mrdennehys.com

        ]]> MR. DENNEHY'S TO HOST TEAM BOOMER - FIGHTING CYSTIC FIBROSIS POST- NYC MARATHON BENEFIT - On Sunday, November 5 from 7:00 PM to 9:00 PM, Mr. Dennehy's located at 63 Carmine Street @ Seventh Avenue in New York City's West Village will host a post-marathon celebration to benefit Team Boomer- Fighting Cystic Fibrosis. - The event is open to the public and ticket price is $25, which includes a two-hour open bar. All proceeds from the evening will go directly to the Boomer Esiason Foundation (BEF) to support the Exercise for Life Scholarship for individuals with cystic fibrosis. - Joe Kelly, an employee at Mr. Dennehy's, will be representing TEAM BOOMER in the marathon along with many other international runners. - Team Boomer – Fighting Cystic Fibrosis was developed by BEF and is a USATF-registered competitive club. - Those who are a part of Team Boomer participate in various races, obtain sponsors, and donate the pledges they receive to BEF. Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF. - BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with CF. - Mr. Dennehy's, located at 63 Carmine Street at Seventh Avenue, is a traditional Irish pub and restaurant known for its live music, great food and charming bartenders. - Mr. Dennehy's has received rave reviews from Time Out New York, New York Magazine and CitiSearch and is a New York pub that's not to miss.

        For more info: o Call: 212-414-1223 o www.mrdennehys.com o donal@mrdennehys.com

        ]]> full Episode #0041: Isabel Stenzel-Byrnes Interview Fri, 13 Oct 2006 23:08:00 +0000  
        The Power of Two - a family story of twins Isabel and Anabel surviving with CF
        
        Jerry Cahill interviews part time social worker, Isabel Stanzel Byrnes, who is 34 years old with CF post transplant 2.5 years (Isabel received the gift of life on February 6th 2004). Isabel has an identical twin sister, Anabel Stenzel, who also has CF and is post transplant 6 years.
        
        
        1. Isabel grew up in Los Angeles, California
        2. Diagnosed 3 days post birth
        3. At age 5 started having a lot of respiratory infections
        4. Isabel started having chronic pseudomonas at age 10
        5. Attended Stanford University undergraduate school
        6. Attended University of California, Berkeley graduate school
        7. Isabel and Ana lived in Japan and taught English for a few years
        8. Isabel has always been active in the area of exercise pre and post transplant and is an avid hiker.
        9. Isabel has been married for 8 years to a wonderful man and support person, Andrew Byrnes.
        10. "The transplant was a spiritual event" states Isabel.
        11. "I survived with CF and the transplant due to all my exercise, I had a lot of muscle strength"states Isabel.
        12. Isabel has competed in the United States Transplant Games that includes over 1800 athletes. Isabel won 1 gold and 2 silver medals!!
        13. Isabel and Anabel have written a book: The Power of Two. A family story about twins surviving with cystic fibrosis.
        14. For information on the book please contact Isabel at: isabear27@hotmail.com

         

        ]]>
      • Isabel grew up in Los Angeles, California
      • Diagnosed 3 days post birth
      • At age 5 started having a lot of respiratory infections
      • Isabel started having chronic pseudomonas at age 10
      • Attended Stanford University undergraduate school
      • Attended University of California, Berkeley graduate school
      • Isabel and Ana lived in Japan and taught English for a few years
      • Isabel has always been active in the area of exercise pre and post transplant and is an avid hiker.
      • Isabel has been married for 8 years to a wonderful man and support person, Andrew Byrnes.
      • "The transplant was a spiritual event" states Isabel.
      • "I survived with CF and the transplant due to all my exercise, I had a lot of muscle strength"states Isabel.
      • Isabel has competed in the United States Transplant Games that includes over 1800 athletes. Isabel won 1 gold and 2 silver medals!!
      • Isabel and Anabel have written a book: The Power of Two. A family story about twins surviving with cystic fibrosis.
      • For information on the book please contact Isabel at: isabear27@hotmail.com
      ]]> 36:53 false full CF Education Day comes to NYC Tue, 03 Oct 2006 02:04:00 +0000
      
      When: October 15th 2006 from 11am to 4pm
          
      Where: The Yale Club in New York City
      
      Info: cfday2006@aol.com
      
      Phone:  800-622-0385
      
      Come hear nationally recognized speakers at this one time event.
      The event is free and includes lunch
      Everyone must register to attend
      Speakers will discuss:
      o     ways to obtain health insurance and make it cover treatments needed to fight CF
      o    Laws that protect children with CF in school
      o    Strategies for living a successful life with CF
      o    New drugs on the CF Horizon
      o    Treatments and care of children and adults with CF
      
      Due to cross infection no one with CF can attend this event.
      To find out other ways adults with CF can participate in this event please contact: cfday2006@aol.com or call: 800-622-0385]]> full Running With Team Boomer Thu, 28 Sep 2006 19:45:00 +0000 TEAM BOOMER – FIGHTING CYSTIC FIBROSIS
      USA Track & Field Club #06-1114
      
      
      Millions of people worldwide are marathon runners…
      Millions of people worldwide jog, bike, swim, and exercise…
      Some people jog to stay in shape…
      People with cystic fibrosis jog to BREATHE!
      
      Because I have cystic fibrosis I want to prove that I can breathe.
      -Jerry Cahill/Age 50 Cystic Fibrosis Podcast

      
      
      Team Boomer – Fighting Cystic Fibrosis was developed by the Boomer Esiason Foundation (BEF) and is a USATF-registered competitive club. BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with cystic fibrosis (CF). Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF, which helps them pursue their academic dreams.
      
      As an athlete, Boomer Esiason knows how important exercise is for improving health, especially for those with cystic fibrosis. Participating in sports and physical activity helps increase the quality of life and health, and teaches discipline. Like athletes' dedication and daily regiments on the playing field, CF patients must be compliant to daily therapy and medication routines. Your lungs are muscles and need to be worked to keep them clear and strong – exercise should be part of EVERYONE'S daily routine. Team Boomer's goal is to improve the quality of life and increase the lifespan of individuals with CF through the power of daily physical exercise.
      
      By sponsoring an athlete, you are helping the Boomer Esiason Foundation and Team Boomer raise money for the Exercise for Life Scholarship.

       

      Join Team Boomer Today

      Team Boomer Donor Sheet

      Team Boomer Pledge Sheet

      Team Boomer Sponsor Sheet

      ]]> TEAM BOOMER – FIGHTING CYSTIC FIBROSIS USA Track & Field Club #06-1114 Millions of people worldwide are marathon runners… Millions of people worldwide jog, bike, swim, and exercise… Some people jog to stay in shape… People with cystic fibrosis jog to BREATHE! Because I have cystic fibrosis I want to prove that I can breathe. -Jerry Cahill/Age 50 Cystic Fibrosis Podcast

      Team Boomer – Fighting Cystic Fibrosis was developed by the Boomer Esiason Foundation (BEF) and is a USATF-registered competitive club. BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with cystic fibrosis (CF). Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF, which helps them pursue their academic dreams. As an athlete, Boomer Esiason knows how important exercise is for improving health, especially for those with cystic fibrosis. Participating in sports and physical activity helps increase the quality of life and health, and teaches discipline. Like athletes' dedication and daily regiments on the playing field, CF patients must be compliant to daily therapy and medication routines. Your lungs are muscles and need to be worked to keep them clear and strong – exercise should be part of EVERYONE'S daily routine. Team Boomer's goal is to improve the quality of life and increase the lifespan of individuals with CF through the power of daily physical exercise. By sponsoring an athlete, you are helping the Boomer Esiason Foundation and Team Boomer raise money for the Exercise for Life Scholarship.

      Join Team Boomer Today

      Team Boomer Donor Sheet

      Team Boomer Pledge Sheet

      Team Boomer Sponsor Sheet

      ]]> full Episode #0040 CF Roundtable Gives Back to the Cystic Fibrosis Community Fri, 01 Sep 2006 00:17:00 +0000

      Title: CF Roundtable gives back to the cystic fibrosis community

      CF Roundtable is a newsletter for adults who have cystic fibrosis is published by United States Adult Cystic Fibrosis Association, Inc. (USACFA). Roundtable, now known as CF Roundtable, was founded in 1989 by an individual with CF, Lisa McDonough. CF Roundtable is an educational newsletter.

      Jerry Cahill interviews Board members of USACFA; Paul Feld (49 with CF post transplant 19 months), Cynthia Dunafon (42 with CF), Laura Tillman (58 with CF) and Kathy Russell (62 with CF)

      • CF Roundtable/USACFA is a independent, 501 c (3) tax exempt, non-profit organization whose Board of Directors all have CF.

      • CF Roundtable is published quarterly with over 1500 subscribers and available for $10.00/year. The newsletter is over 40 pages with color pictures and 75% consists of personal stories and a column by a medical professional

      • Web site: www.cfroundtable.com or via phone: 503-669-3561

      • Topics include: Being a parent, transplant, parents of newly diagnosed, when to tell employers, and insurance issues – to name a few…

      • Board members comments on "why they do the newsletter??

      
      

      • Cynthia: "give back to the CF Community?

      • Paul: "offer my life experiences post transplant and make a difference?

      • Kathy: "fun and education?

      • Laura: "contribute to CF society?

      ]]> Title: CF Roundtable gives back to the cystic fibrosis community

      CF Roundtable is a newsletter for adults who have cystic fibrosis is published by United States Adult Cystic Fibrosis Association, Inc. (USACFA). Roundtable, now known as CF Roundtable, was founded in 1989 by an individual with CF, Lisa McDonough. CF Roundtable is an educational newsletter.

      Jerry Cahill interviews Board members of USACFA; Paul Feld (49 with CF post transplant 19 months), Cynthia Dunafon (42 with CF), Laura Tillman (58 with CF) and Kathy Russell (62 with CF)

      • CF Roundtable/USACFA is a independent, 501 c (3) tax exempt, non-profit organization whose Board of Directors all have CF.

      • CF Roundtable is published quarterly with over 1500 subscribers and available for $10.00/year. The newsletter is over 40 pages with color pictures and 75% consists of personal stories and a column by a medical professional

      • Web site: www.cfroundtable.com or via phone: 503-669-3561

      • Topics include: Being a parent, transplant, parents of newly diagnosed, when to tell employers, and insurance issues – to name a few…

      • Board members comments on "why they do the newsletter??

      • Cynthia: "give back to the CF Community?

      • Paul: "offer my life experiences post transplant and make a difference?

      • Kathy: "fun and education?

      • Laura: "contribute to CF society?

      ]]> 33:30 false full Episode #0039 Understanding CF Lung Therapies Tue, 25 Jul 2006 21:02:00 +0000 TITLE: Understanding CF Lung Therapies
      
      Dr. Joan DeCelie-Germana, director of the CF Center at Schneider Children's Hospital in New Hyde Park, New York, and assistant professor of pediatrics at the Albert Einstein College of Medicine in the Bronx, New York discusses the importance in maintaining a consistent daily treatment regimen to manage lung disease.
      
      · With the help of today's CF lung therapies, CF patients are now living longer and more active lives than ever before.
      · Pulmonary treatments, especially the standard therapies, are critical to helping CF patients stay as healthy as possible.
      · For optimum health, it's important to adhere to a doctor-recommended treatment schedule each day, and to take the treatments in the right order.
      · A recommended order of daily treatment for a CF patient is Bronchodialator, Pulmozyme® (dornase alfa), The Vest or similar chest wall oscillator, and then TOBI® (tobramycin solution for inhalation), but your doctor will recommend the treatment schedule that's right for you. Add-on therapies such as hypertonic saline may be appropriate for certain patient populations.
      · Getting regular physical exercise and following a nutritious, high-calorie diet are also important for maintaining good health.
      ]]> TITLE: Understanding CF Lung Therapies Dr. Joan DeCelie-Germana, director of the CF Center at Schneider Children's Hospital in New Hyde Park, New York, and assistant professor of pediatrics at the Albert Einstein College of Medicine in the Bronx, New York discusses the importance in maintaining a consistent daily treatment regimen to manage lung disease. · With the help of today's CF lung therapies, CF patients are now living longer and more active lives than ever before. · Pulmonary treatments, especially the standard therapies, are critical to helping CF patients stay as healthy as possible. · For optimum health, it's important to adhere to a doctor-recommended treatment schedule each day, and to take the treatments in the right order. · A recommended order of daily treatment for a CF patient is Bronchodialator, Pulmozyme® (dornase alfa), The Vest or similar chest wall oscillator, and then TOBI® (tobramycin solution for inhalation), but your doctor will recommend the treatment schedule that's right for you. Add-on therapies such as hypertonic saline may be appropriate for certain patient populations. · Getting regular physical exercise and following a nutritious, high-calorie diet are also important for maintaining good health.
      ]]> 49:19 false full CFRI TEEN & ADULT DAY RETREAT Mon, 24 Jul 2006 19:33:00 +0000  

      

      Title: CFRI TEEN & ADULT DAY RETREAT
      
      The CFRI Retreat is August 6th and 11th in Menlo Park, California for teens, 15-18 years and adults with cystic fibrosis, their family members and health care providers. The event is fun, educational and a safe environment to meet some great friends!
      
      
      The retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF.
      
      Activities include daily exercise, arts & crafts, rap sessions, and educational workshops with guest speakers.
      
      Cost is $65  per person for entire week.
      
      Scholarships available.
      
      Safety is a top priority: ALL people with CF are required to comply with cross infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments.
      
      For more info: http://www.cfri.org/home2.html

      ]]>

      Title: CFRI TEEN & ADULT DAY RETREAT The CFRI Retreat is August 6th and 11th in Menlo Park, California for teens, 15-18 years and adults with cystic fibrosis, their family members and health care providers. The event is fun, educational and a safe environment to meet some great friends! The retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF. Activities include daily exercise, arts & crafts, rap sessions, and educational workshops with guest speakers. Cost is $65 per person for entire week. Scholarships available. Safety is a top priority: ALL people with CF are required to comply with cross infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments. For more info: http://www.cfri.org/home2.html

      ]]> full Episode #0038 Emily Schaller Interview Thu, 06 Jul 2006 19:39:00 +0000 Title: Emily Schaller "Rocks CF? through rock & roll music…

      
      1. Emily Schaller is 24 years old with cystic fibrosis and living in Detroit, Michigan. Emily believes her goal in life is to "spread awareness? about cystic fibrosis and is doing so in her rock and roll band. www.letsrockcf.org .Emily was diagnosed at 18 months
      2. "I attended CF camps when I was younger but they were shut down due to cross contamination… so now people with CF go to cystic fibrosis chat rooms? states Emily.
      3. "Time management? is Emily's biggest challenge due to all the therapy compliance.
      4. Emily is allergic to most medications therefore needs to be in hospital for iv antibiotics vs. home care.
      5. Emily's passions include rock & roll and Broadway shows.
      6. Activities such as drumming and jogging help keep Emily healthy.
      7. Emily is a drummer in a rock & roll band called "HELLEN? and her brother Jason is also in a band called "SOUTH NORMAL?.
      8. Detroit Rocks CF is a group of 12 local bands that play music for a worldly cause and have a benefit for CF called "Just Let Me Breath?
      9. Let's Rock CF music cd available at: www.letsrockcf.com.
      10. "Keep going… stay active… play in a band or play sports… and live your life to the fullest…? Emily's advice to others with CF.

      ]]> Title: Emily Schaller "Rocks CF? through rock & roll music…

      1. Emily Schaller is 24 years old with cystic fibrosis and living in Detroit, Michigan. Emily believes her goal in life is to "spread awareness? about cystic fibrosis and is doing so in her rock and roll band. www.letsrockcf.org .Emily was diagnosed at 18 months 2. "I attended CF camps when I was younger but they were shut down due to cross contamination… so now people with CF go to cystic fibrosis chat rooms? states Emily. 3. "Time management? is Emily's biggest challenge due to all the therapy compliance. 4. Emily is allergic to most medications therefore needs to be in hospital for iv antibiotics vs. home care. 5. Emily's passions include rock & roll and Broadway shows. 6. Activities such as drumming and jogging help keep Emily healthy. 7. Emily is a drummer in a rock & roll band called "HELLEN? and her brother Jason is also in a band called "SOUTH NORMAL?. 8. Detroit Rocks CF is a group of 12 local bands that play music for a worldly cause and have a benefit for CF called "Just Let Me Breath? 9. Let's Rock CF music cd available at: www.letsrockcf.com. 10. "Keep going… stay active… play in a band or play sports… and live your life to the fullest…? Emily's advice to others with CF.

      ]]> 27:27 false full Living - Breathing - Proof Mon, 26 Jun 2006 20:43:00 +0000  

      

      Living Breathing Proof

      Celebrating my 50th Birthday !

      Remember - Compliance, Nutrition, Exercise and Determination are the keys to having  a great quality of life with cystic fibrosis

      ]]>

      Living Breathing Proof

      Celebrating my 50th Birthday !

      Remember - Compliance, Nutrition, Exercise and Determination are the keys to having a great quality of life with cystic fibrosis

      ]]> full Exercise For Life CF Athletic Scholarship Fri, 23 Jun 2006 15:34:00 +0000

      Exercise For Life CF Athletic Scholarship

      Presented by the Boomer Esiason Foundation

      Details Coming Soon!

      ]]>

      Exercise For Life CF Athletic Scholarship

      Presented by the Boomer Esiason Foundation

      Details Coming Soon!

      ]]> full Episode #0037: Schneider Children's Hospital of North Shore LIJ Health Systems CF Nurses Sun, 18 Jun 2006 16:55:00 +0000 Schneider Children's Hospital of North Shore LIJ Health Systems CF Nurses
      
      Title:
      
      CF Nurses "embrace patients and family? and form a "partnership?
      
      Jerry Cahill interviews CF nurses, Lynn Bonitz and Susan Galvin, from Schneider Children's Hospital of North Shore LIJ Health Systems in New Hyde Park, New York. Lynn and Susan have over 22 years of experience in nursing (12 in the world of cystic fibrosis) and maintain a "positive attitude?.
      • Lynn and Susan are part of a phenomenal "TEAM? at the large CF Center at Schneider Children's of North Shore LIJ Health Systems that has over 200 pediatric patients and over 80 adult CF patients.
      • A typical day in the life of a CF nurse: "we spend ½ of the day seeing patients in clinic followed by team meetings, phone triage, insurance issues, clinical studies, and involvement in emergency cases? states Lynn and Susan.
      • "What I like most about the job is working with the patients and their families? states Lynn
      • "The patients are always positive and very resilient? states Susan.
      • Challenges with infants: "the educational process for the family it is a long-term process? states Lynn
      • Challenges with adolescents: "having patients take control of their care and NOT abandoning care? states Susan.
      • Challenges with adults: " Learning to maintain a balance in life?
      • Advice: Lynn and Susan both recommend that patients should have a case manager at their insurance company. "Case managers can make things go very smoothly?
      • Goal: "We strive to give the best care and help our patients in every way we can and not treat them like medical records?
        ]]> Schneider Children's Hospital of North Shore LIJ Health Systems CF Nurses Title: CF Nurses "embrace patients and family? and form a "partnership? Jerry Cahill interviews CF nurses, Lynn Bonitz and Susan Galvin, from Schneider Children's Hospital of North Shore LIJ Health Systems in New Hyde Park, New York. Lynn and Susan have over 22 years of experience in nursing (12 in the world of cystic fibrosis) and maintain a "positive attitude?.
        • Lynn and Susan are part of a phenomenal "TEAM? at the large CF Center at Schneider Children's of North Shore LIJ Health Systems that has over 200 pediatric patients and over 80 adult CF patients.
        • A typical day in the life of a CF nurse: "we spend ½ of the day seeing patients in clinic followed by team meetings, phone triage, insurance issues, clinical studies, and involvement in emergency cases? states Lynn and Susan.
        • "What I like most about the job is working with the patients and their families? states Lynn
        • "The patients are always positive and very resilient? states Susan.
        • Challenges with infants: "the educational process for the family it is a long-term process? states Lynn
        • Challenges with adolescents: "having patients take control of their care and NOT abandoning care? states Susan.
        • Challenges with adults: " Learning to maintain a balance in life?
        • Advice: Lynn and Susan both recommend that patients should have a case manager at their insurance company. "Case managers can make things go very smoothly?
        • Goal: "We strive to give the best care and help our patients in every way we can and not treat them like medical records?]]> 39:30 false full Episode 0036: Richie Keane Interview Wed, 31 May 2006 20:11:00 +0000 Title: Richie Keane recommendation to all people with CF: "Stay Clear?…
          
          Jerry Cahill interviews Richie Keane who is 49 years old and "loving and respecting life? Richie grew up in Long Island, NY and is one of 9 children (3 out of 9 have CF – one sister Valerie passed away and Jen Davison is doing well and recently did a podcast)
          
          - Richie grew up in Baldwin, NY.
          - Diagnosed at birth "I was a purple baby?
          - Richie was very active growing up playing football, baseball, and golf.
          - "I started getting sick around 18 years of age and had pancreas surgery at age 30? states Richie.
          - The biggest challenge Richie faces is that his breathing has gotten tougher, the complications that develop from CF, and all the time involved doing medications.
          - Complications that Richie has experienced include: diabetes, pancreatitis, and osteoporosis (broke over 30 ribs)
          - Richie states: "living with CF is tough but I love life and CF has taught me to respect life?
          - Richie has been married for 18 years to his wonderful wife Maryanne – she is a "special person? he states.
          - Listed for a double lung transplant Richie's dog "gets me off my butt? and keeps him active prior to transplant.
          - Richie's advice: "keep your chin up, enjoy life, and take the time to get your lungs moving to keep them clear?
          ]]> Title: Richie Keane recommendation to all people with CF: "Stay Clear?… Jerry Cahill interviews Richie Keane who is 49 years old and "loving and respecting life? Richie grew up in Long Island, NY and is one of 9 children (3 out of 9 have CF – one sister Valerie passed away and Jen Davison is doing well and recently did a podcast) - Richie grew up in Baldwin, NY. - Diagnosed at birth "I was a purple baby? - Richie was very active growing up playing football, baseball, and golf. - "I started getting sick around 18 years of age and had pancreas surgery at age 30? states Richie. - The biggest challenge Richie faces is that his breathing has gotten tougher, the complications that develop from CF, and all the time involved doing medications. - Complications that Richie has experienced include: diabetes, pancreatitis, and osteoporosis (broke over 30 ribs) - Richie states: "living with CF is tough but I love life and CF has taught me to respect life? - Richie has been married for 18 years to his wonderful wife Maryanne – she is a "special person? he states. - Listed for a double lung transplant Richie's dog "gets me off my butt? and keeps him active prior to transplant. - Richie's advice: "keep your chin up, enjoy life, and take the time to get your lungs moving to keep them clear?
          ]]> 46:37 false full Episode #0035: April Biggs Keeps on Dancing after Double Lung Transplant Thu, 11 May 2006 18:00:00 +0000 Title: April Biggs "Keeps on Dancing? after Double Lung Transplant
          
          April Biggs is 31 years old and received the gift of a double lung transplant on August 15th 2004 at New York Presbyterian Hospital in New York City.
          
          -     April grew up in Jacksonville, Florida and was diagnosed with cystic fibrosis at one years old.
          
          -     Growing up the doctors told her parents "Treat April like a healthy person and to live as fully as she can?
          
          -     April started dancing at 5 years of age and is still dancing and choreographing post transplant.
          
          -     April attended Florida State University.
          
          -     "CF causes a lot of alienation due to the fear of catching germs from others with cystic fibrosis and that's a drag? states April
          
          -     "People with CF have a strong will to live and usually do pretty well getting through lung transplants? states April
          
          -     "My family is a GREAT support system? states April
          
          -     April's FEV's dropped from 85% to 30% and had a lot of hemoptosis which expedited the need for a transplant.
          
          -     April's recommendation to anyone with CF and anyone facing a lung transplant: "exercise and if you can't run, walk!? also… "live your life to the fullest and do it!?
          ]]> Title: April Biggs "Keeps on Dancing? after Double Lung Transplant April Biggs is 31 years old and received the gift of a double lung transplant on August 15th 2004 at New York Presbyterian Hospital in New York City. - April grew up in Jacksonville, Florida and was diagnosed with cystic fibrosis at one years old. - Growing up the doctors told her parents "Treat April like a healthy person and to live as fully as she can? - April started dancing at 5 years of age and is still dancing and choreographing post transplant. - April attended Florida State University. - "CF causes a lot of alienation due to the fear of catching germs from others with cystic fibrosis and that's a drag? states April - "People with CF have a strong will to live and usually do pretty well getting through lung transplants? states April - "My family is a GREAT support system? states April - April's FEV's dropped from 85% to 30% and had a lot of hemoptosis which expedited the need for a transplant. - April's recommendation to anyone with CF and anyone facing a lung transplant: "exercise and if you can't run, walk!? also… "live your life to the fullest and do it!?
          ]]> 50:42 false full Episode #0034: CFRI - Cystic Fibrosis Research Inc. Wed, 03 May 2006 19:17:00 +0000 Title: CFRI (Cystic Fibrosis Research Inc.) A great organization!

          CFRI is a very caring and committed organization to cystic fibrosis

          - CFRI started 31 years ago by parents of children with CF to give support and raise money locally on the west coast for research and to make a difference for people living with CF.

          - Carroll Jenkins, Executive Director, states: CFRI is a small group of 4 people and a few volunteers that wear many hats.

          - CFRI address: 2672 Bayshore Parkway, Mountain View CA 94043

          - Phone: 650-404-9975

          - http://www.cfri.org

          - cfri@cfri.org

           

          - Mission Statement: Cystic Fibrosis Research Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

          - Carroll Jenkins states: We believe in the value of collaboration with other organizations for one cause, and each organization can build on each others strengths. 

          - CFRI does both educational and fundraising events

          1.) 19^th Annual Educational Conference: August 4^th- 6^th,  2006, a three day event for adults with CF, caregivers, researchers, health care providers, family members, as well as the non-research community. Focus for this year's seminar: THE CYSTIC FIBROSIS JOURNEY: ALL AGES, ALL STAGES

          2.) Teen/Adult Day Retreat: August 6^th - 11^th 2006, for individuals with CF and their significant other. The goal is education, support, and fun

          3.) 22^nd Annual Golf Fundraising Tournament: August 7^th 2006 @ Cinnabar Hills Golf Club, San Jose CA.

          4.) Mother's Day Tea: May 14^th 2006. Ã Warmest appeal to connect people and the largest avenue of fundraising for CFRI.  You can get more info and donate at: cfri@cfri.org or call: 650-404-9981

          Carroll Jenkins states:  I am honored to work with CF. People with CF are amazing, not only do people with CF appreciate and value life, they appreciate the moment.

          ]]> Title: CFRI (Cystic Fibrosis Research Inc.) A great organization!

          CFRI is a very caring and committed organization to cystic fibrosis

          - CFRI started 31 years ago by parents of children with CF to give support and raise money locally on the west coast for research and to make a difference for people living with CF.

          - Carroll Jenkins, Executive Director, states: CFRI is a small group of 4 people and a few volunteers that wear many hats.

          - CFRI address: 2672 Bayshore Parkway, Mountain View CA 94043

          - Phone: 650-404-9975

          - http://www.cfri.org

          - cfri@cfri.org

          - Mission Statement: Cystic Fibrosis Research Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

          - Carroll Jenkins states: We believe in the value of collaboration with other organizations for one cause, and each organization can build on each others strengths.

          - CFRI does both educational and fundraising events

          1.) 19th Annual Educational Conference: August 4th- 6th, 2006, a three day event for adults with CF, caregivers, researchers, health care providers, family members, as well as the non-research community. Focus for this year's seminar: THE CYSTIC FIBROSIS JOURNEY: ALL AGES, ALL STAGES

          2.) Teen/Adult Day Retreat: August 6th - 11th 2006, for individuals with CF and their significant other. The goal is education, support, and fun

          3.) 22nd Annual Golf Fundraising Tournament: August 7th 2006 @ Cinnabar Hills Golf Club, San Jose CA.

          4.) Mother's Day Tea: May 14th 2006. Ã Warmest appeal to connect people and the largest avenue of fundraising for CFRI. You can get more info and donate at: cfri@cfri.org or call: 650-404-9981

          Carroll Jenkins states: I am honored to work with CF. People with CF are amazing, not only do people with CF appreciate and value life, they appreciate the moment.

          ]]> 07:43 false full Episode #0033 Bonnie Strangio Educational Scholarship Mon, 17 Apr 2006 19:03:00 +0000 Bonnie Strangio $2500 Education Scholarship
          
          

          Application Deadline: June 30, 2006
          
          The Bonnie Strangio Education Scholarship was established in 2005 to honor the memory of Bonnie Strangio. The scholarship will be awarded to a person living with cystic fibrosis who, like Bonnie, has an upbeat personality and a "can-do" attitude and shows a tremendous passion for life in achieving their goals despite battling CF.
          
          Bonnie loved life and everything in it. She appreciated family, friends, and people in general. She always offered a patient ear to listen to friends. Bonnie held a B.A. in Psychology and Masters in Teaching that took her down the career path of a special education teacher in a New Jersey high school where she focused on allowing learning disabled students to integrate in mainstream society. Strong, brave, and giving, she never felt sorry for herself but strove to make the best of everything. Everyone, young and old, loved her!
          
          CRITERIA
          An undergraduate or graduate student who has cystic fibrosis and whose service and commitment to the prevention and cure of cystic fibrosis is exemplary.
          
          SELECTION PROCESS
          - Candidate will complete an application.
          - Candidate will submit all necessary documentation including:
          - Essay on post graduation goals.
          - Recent photo.
          - Letter from physician confirming CF diagnosis.
          - Most recent W2 form verification for both parents.
          - Transcript (high school, college, or graduate).
          - Letter of acceptance from academic institution.
          - The committee will choose finalists who will be interviewed thereafter.
          - The award recipient will be chosen by a majority vote.
          
          
          SELECTION TIME PARAMETERS
          Fall term
          
          APPLICATION
          Available at the Boomer Esiason Foundation web site: http://www.esiason.org
          
          Available at: http://www.cfscholarships.com/bonnie_strangio_scholarship.html
          
          
          CONTACT
          
          Boomer Esiason Foundation
          c/o Jerry Cahill
          417 Fifth Avenue, 2nd Floor
          New York, NY 10016
          Phone: 646-344-3661
          Fax: 646-344-3757
          
          EMAIL QUESTIONS TO: jcahill@esiason.org

          ]]> Bonnie Strangio $2500 Education Scholarship

          Application Deadline: June 30, 2006 The Bonnie Strangio Education Scholarship was established in 2005 to honor the memory of Bonnie Strangio. The scholarship will be awarded to a person living with cystic fibrosis who, like Bonnie, has an upbeat personality and a "can-do" attitude and shows a tremendous passion for life in achieving their goals despite battling CF. Bonnie loved life and everything in it. She appreciated family, friends, and people in general. She always offered a patient ear to listen to friends. Bonnie held a B.A. in Psychology and Masters in Teaching that took her down the career path of a special education teacher in a New Jersey high school where she focused on allowing learning disabled students to integrate in mainstream society. Strong, brave, and giving, she never felt sorry for herself but strove to make the best of everything. Everyone, young and old, loved her! CRITERIA An undergraduate or graduate student who has cystic fibrosis and whose service and commitment to the prevention and cure of cystic fibrosis is exemplary. SELECTION PROCESS - Candidate will complete an application. - Candidate will submit all necessary documentation including: - Essay on post graduation goals. - Recent photo. - Letter from physician confirming CF diagnosis. - Most recent W2 form verification for both parents. - Transcript (high school, college, or graduate). - Letter of acceptance from academic institution. - The committee will choose finalists who will be interviewed thereafter. - The award recipient will be chosen by a majority vote. SELECTION TIME PARAMETERS Fall term APPLICATION Available at the Boomer Esiason Foundation web site: http://www.esiason.org Available at: http://www.cfscholarships.com/bonnie_strangio_scholarship.html CONTACT Boomer Esiason Foundation c/o Jerry Cahill 417 Fifth Avenue, 2nd Floor New York, NY 10016 Phone: 646-344-3661 Fax: 646-344-3757 EMAIL QUESTIONS TO: jcahill@esiason.org

          ]]> 03:52 false full Episode 0032: Jennifer Davison Interview Wed, 29 Mar 2006 23:31:00 +0000 NO LIMITS!!!!
          
          
          Jerry Cahill interviews Jennifer Davison who is 37 years old and living strong, succeeding and NOT letting cystic fibrosis get in her way. Jennifer grew up in Long Island, New York and is a registered nurse at Long Island Jewish/North Shore Medical Center.
          
          1. Jennifer is one of 9 children, 3 with CF.
          2. Jennifer attended Fashion Institute of Technology (FIT) and after working in the fashion industry decided to focus her career in the health field of nursing
          3. Married to Tim and with a beautiful daughter – Dara – Jennifer "juggles 3 jobs - career, family, and health?
          "I was treated NORMAL growing up – with a big family there was no time to feeling sorry for yourself? states
          4. Jennifer "we just got off our butt and lived?
          5. Jennifer's first hospitalization came at age 17 years old.
          6. "Being active is the key to good quality of life – I ski, play racquetball and ride my bike? states Jennifer.
          7. Jennifer states: "CF is part of who I am but does not define me?
          8. "CF does NOT stop me from living – I just get out there and LIVE?
          9. Jennifer recommends that ALL people with CF should "get up at out and enjoy life and do not put restrictions on yourself?
          ]]> NO LIMITS!!!! Jerry Cahill interviews Jennifer Davison who is 37 years old and living strong, succeeding and NOT letting cystic fibrosis get in her way. Jennifer grew up in Long Island, New York and is a registered nurse at Long Island Jewish/North Shore Medical Center. 1. Jennifer is one of 9 children, 3 with CF. 2. Jennifer attended Fashion Institute of Technology (FIT) and after working in the fashion industry decided to focus her career in the health field of nursing 3. Married to Tim and with a beautiful daughter – Dara – Jennifer "juggles 3 jobs - career, family, and health? "I was treated NORMAL growing up – with a big family there was no time to feeling sorry for yourself? states 4. Jennifer "we just got off our butt and lived? 5. Jennifer's first hospitalization came at age 17 years old. 6. "Being active is the key to good quality of life – I ski, play racquetball and ride my bike? states Jennifer. 7. Jennifer states: "CF is part of who I am but does not define me? 8. "CF does NOT stop me from living – I just get out there and LIVE? 9. Jennifer recommends that ALL people with CF should "get up at out and enjoy life and do not put restrictions on yourself?
          ]]> 33:52 false full Episode 0031: 2006 Boomer Esiason Foundation Booming Celebration Tue, 14 Mar 2006 02:54:00 +0000 07:38 false full Episode #0030: 2005 Sacks For CF Scholarship Winners Thu, 09 Mar 2006 20:18:00 +0000 Sacks for CF Scholarship Program 2005 Winners

          Sacks for CF will award scholarships to the following 15 people with CF who are striving for therapy adherence and academic success.

           

           

          
           

          Name	City	College
          John Anthony	Erie, PA	Mercyhurst College
          Bailey Broadbent	Canton, OH	Kent State
          April Christensen	Parker, SD	University of Nebraska
          Keith Connolly	Cincinnati, OH	Xavier University
          Jessica Coulter	Winston-Salem, NC	Salem College
          Nicole Ellis	Islamorada, FL	Stetson University
          Phillip Fett	Dripping Springs, TX	Saint Edward's University
          Michelle Green	Medina, OH	Ohio State University
          Philip Griffin	Pottsville, PA	Embry Riddle Aeronautical
          Erin Keitges	Allen, NE	Morningside College
          John Meadows	Pickerington, OH	University of Cincinnati
          Charlotte Reardon	Olney, MD	University of Rochester
          Kristina Swecker	Cleveland, WV	West Virginia Wesleyan
          Jessica Weiner	Amherst, MA	Mount Holyoke College
          Matthew Weinshenker	Manalapan, NJ	Rider University

          Sacks for CF is a scholarship program funded by CHIRON CORP. the makers of TOBI for inhalation.

          Congratulations on a job well done!!!

           

           

          ]]> Sacks for CF Scholarship Program 2005 Winners

          Sacks for CF will award scholarships to the following 15 people with CF who are striving for therapy adherence and academic success.

          Name City College John Anthony Erie, PA Mercyhurst College Bailey Broadbent Canton, OH Kent State April Christensen Parker, SD University of Nebraska Keith Connolly Cincinnati, OH Xavier University Jessica Coulter Winston-Salem, NC Salem College Nicole Ellis Islamorada, FL Stetson University Phillip Fett Dripping Springs, TX Saint Edward's University Michelle Green Medina, OH Ohio State University Philip Griffin Pottsville, PA Embry Riddle Aeronautical Erin Keitges Allen, NE Morningside College John Meadows Pickerington, OH University of Cincinnati Charlotte Reardon Olney, MD University of Rochester Kristina Swecker Cleveland, WV West Virginia Wesleyan Jessica Weiner Amherst, MA Mount Holyoke College Matthew Weinshenker Manalapan, NJ Rider University

          Sacks for CF is a scholarship program funded by CHIRON CORP. the makers of TOBI for inhalation.

          Congratulations on a job well done!!!

          ]]> 02:51 false full Episode #0029: iPod Video- Exercise For Life Tue, 28 Feb 2006 10:33:00 +0000 TITLE: Exercise for Life
          
          Jerry Cahill, 49 with cystic fibrosis, discusses the importance of exercise and explains the "gadgets? he uses while jogging.
          
          1. "The single most important therapy in my life that keeps me healthy is exercise? states Jerry
          
          2. Jerry believes that being outdoors in the fresh air is much better than being locked inside on a treadmill
          
          3. "I try to exercise outdoors even when I am on IV antibiotics as it helps clear out my congestion?
          Jerry jogs with a small oxygen tank, prescribed by his doctor due to shortness of breath. I use a "camelbak? backpack that is       normally used by bikers for hydration. http://www.camelbak.com
          
          4. "I believe in training smart so I use a Polar Heart Rate Monitor to time my walking/jogging and keep track of my heart rate and exercise training zones. http://www.polarusa.com
          
          5. "When I exercise I need to wear an oximeter that measures the oxygen saturation in your blood since my oxygen levels sometimes drop below 90%. The oximeter (WristOx 3100) keeps me in check so I do not hurt myself and get the full benefit of exercising my lungs, which are muscles and need to be worked? http://www.nonin.com
          
          6. "I have been exercising and jogging since I was 9 years old and it has improved my quality of life living with CF. I believe everyone with CF can and should do some form of exercise daily – even if you start with walking and build up to jogging…?
          ]]> TITLE: Exercise for Life Jerry Cahill, 49 with cystic fibrosis, discusses the importance of exercise and explains the "gadgets? he uses while jogging. 1. "The single most important therapy in my life that keeps me healthy is exercise? states Jerry 2. Jerry believes that being outdoors in the fresh air is much better than being locked inside on a treadmill 3. "I try to exercise outdoors even when I am on IV antibiotics as it helps clear out my congestion? Jerry jogs with a small oxygen tank, prescribed by his doctor due to shortness of breath. I use a "camelbak? backpack that is normally used by bikers for hydration. http://www.camelbak.com 4. "I believe in training smart so I use a Polar Heart Rate Monitor to time my walking/jogging and keep track of my heart rate and exercise training zones. http://www.polarusa.com 5. "When I exercise I need to wear an oximeter that measures the oxygen saturation in your blood since my oxygen levels sometimes drop below 90%. The oximeter (WristOx 3100) keeps me in check so I do not hurt myself and get the full benefit of exercising my lungs, which are muscles and need to be worked? http://www.nonin.com 6. "I have been exercising and jogging since I was 9 years old and it has improved my quality of life living with CF. I believe everyone with CF can and should do some form of exercise daily – even if you start with walking and build up to jogging…?
          ]]> 05:02 false full Episode #0028 Detroit Rocks Cystic Fibrosis ! Tue, 21 Feb 2006 22:28:00 +0000 Detroit Rocks Cystic Fibrosis !
          
          Detroit Rocks CF is the first album put out by the Detroit run Rock CF Foundation. The CD features twelve of Detroit's finest rock bands. Each band donated one track to the album that will sell for $10. with all proceeds going to the Cystic Fibrosis Foundation.
          
          1. The album will officially be released at this years Just Let Me Breathe benefit for Cystic Fibrosis.
          2. This year's benefit show will be Friday, February 24th 2006 at the Royal Oak Music Theatre in Royal Oak, Michigan.
          3. The idea for Detroit Rocks CF was thought of by Emily Schaller, drummer for the band Hellen.
          4. Emily, 24, has cystic fibrosis, a genetic disorder that affects 30,000 Americans
          5. Emily states: "The thought of bringing a dozen of the best Detroit bands together on one CD all in the name of CF is amazing! It means so much to me that the people of Detroit care and are willing to help such a great cause."
          6. Visit www.letsrockcf.org for more information and to order a copy of the CD
          ]]> Detroit Rocks Cystic Fibrosis ! Detroit Rocks CF is the first album put out by the Detroit run Rock CF Foundation. The CD features twelve of Detroit's finest rock bands. Each band donated one track to the album that will sell for $10. with all proceeds going to the Cystic Fibrosis Foundation. 1. The album will officially be released at this years Just Let Me Breathe benefit for Cystic Fibrosis. 2. This year's benefit show will be Friday, February 24th 2006 at the Royal Oak Music Theatre in Royal Oak, Michigan. 3. The idea for Detroit Rocks CF was thought of by Emily Schaller, drummer for the band Hellen. 4. Emily, 24, has cystic fibrosis, a genetic disorder that affects 30,000 Americans 5. Emily states: "The thought of bringing a dozen of the best Detroit bands together on one CD all in the name of CF is amazing! It means so much to me that the people of Detroit care and are willing to help such a great cause." 6. Visit www.letsrockcf.org for more information and to order a copy of the CD
          ]]> 05:02 false full New Logo - CF Podcast Thu, 16 Feb 2006 22:55:00 +0000

          Hey everyone, Stacey Wu just completed my new logo

          Thanks, Stacey!

          ]]> Hey everyone, Stacey Wu just completed my new logo Thanks, Stacey!]]> full Episode #0027 Charlotte Reardon Interview Wed, 15 Feb 2006 00:19:00 +0000 Title: Reardon Runs With CF – Not From It!
          
          Jerry Cahill interviews Charlotte Reardon and states " I enjoyed meeting Charlotte – she is a selfless young woman that is full of passion and hope?
          
          Charlotte is 20 years old with cystic fibrosis and is Living, Breathing and Running to stay healthy. Currently attending the University of Rochester in Rochester, NY and studying psychology in Austria for the spring semester.
          
          1.    Charlotte grew up in Olney, Maryland and was diagnosed at 2 weeks of age and has 3 sisters.
          2.    In the hospital a lot for iv antibiotic therapy during grade school, Charlotte also had a feeding tube inserted in 7th     grade.
          3.    After some of her CF clinic friends died – Charlotte decided to "take control of her disease?
          4.    "Exercise is my main form of therapy? states Charlotte.
          5.    Ms. Reardon attributes her success to her father, John Reardon, who first pushed her into running.
          6.    "In all honesty I'm kind of in denial,? states Charlotte. "I like to think of myself as someone who's healthy. I have CF, but at the same time I am determined to do anything I want to do?
          7.    "CF is a cross in life but it made me tough!? states Charlotte.
          8.    Charlotte believes "Doctors need to stress exercise to their CF patients and everyone with CF needs to get out there and do something?
          9.    'Breathing [while running] is harder for me than it is for other people, Reardon said. But the more running I do, the easier I can breathe and the better I feel.?
          10.    Charlotte's advice to others with CF "Don't let it stop you – just get out there and live!?
          ]]> Title: Reardon Runs With CF – Not From It! Jerry Cahill interviews Charlotte Reardon and states " I enjoyed meeting Charlotte – she is a selfless young woman that is full of passion and hope? Charlotte is 20 years old with cystic fibrosis and is Living, Breathing and Running to stay healthy. Currently attending the University of Rochester in Rochester, NY and studying psychology in Austria for the spring semester. 1. Charlotte grew up in Olney, Maryland and was diagnosed at 2 weeks of age and has 3 sisters. 2. In the hospital a lot for iv antibiotic therapy during grade school, Charlotte also had a feeding tube inserted in 7th grade. 3. After some of her CF clinic friends died – Charlotte decided to "take control of her disease? 4. "Exercise is my main form of therapy? states Charlotte. 5. Ms. Reardon attributes her success to her father, John Reardon, who first pushed her into running. 6. "In all honesty I'm kind of in denial,? states Charlotte. "I like to think of myself as someone who's healthy. I have CF, but at the same time I am determined to do anything I want to do? 7. "CF is a cross in life but it made me tough!? states Charlotte. 8. Charlotte believes "Doctors need to stress exercise to their CF patients and everyone with CF needs to get out there and do something? 9. 'Breathing [while running] is harder for me than it is for other people, Reardon said. But the more running I do, the easier I can breathe and the better I feel.? 10. Charlotte's advice to others with CF "Don't let it stop you – just get out there and live!?
          ]]> 34:08 false full Heroes of Hope Award - Living With CF Mon, 06 Feb 2006 23:00:00 +0000 Pictured on Right (Left to Right) Jerry Cahill with Lisa Yourman, Dr. Joan Germana and Boomer Esiason.

           

           

           

          Heroes of Hope Award Photo Gallery

          share.shutterfly.com/action/welcome?sid=8AbOW7Fq4buXFg

           

          This Story appeared in Heroes of Hope Blog...

           

          Heroes of Hope – Living with CF
          
          49-Year-Old Brooklyn, New York Resident with Cystic Fibrosis Receives National Award
          
          The Heroes of Hope TM Living with CF Program Advisory Panel is pleased to announce Jerry Cahill as the January 2006 award recipient in recognition of his positive attitude and tenacious spirit, The Heroes of Hope program honors people with cystic fibrosis (CF) who give hope to others. Jerry was chosen from a nationwide pool of candidates for his ability to inspire others with CF through his positive attitude, commitment to proactively manage his health, determination, community outreach, and achievement.
          
          Jerry states:
          "I wanted to thank the Heroes of Hope Committee and Genentech – makers of Pulmozyme – for this honor?
          
          "I also wanted to thank my family, friends, doctors, and the Boomer Esiason Foundation for ALL your support?
          
          "I share this award with every person with cystic fibrosis that is living, breathing, and fighting everyday to win the battle with this disease?
          
          
          For questions regarding the Heroes of Hope – Living with CF program, please call 1-866-288-1893
          Or visit the web site: http://www.pulmozyme.com/hoh/hoh_landing.jsp

          Jerry's Speech

          HEROES OF HOPE (Living with CF)
          
          I wanted to thank the HEROES OF HOPE Committee and Genentech – makers of Pulmozyme - for this honor…
          
          I also wanted to thank my family & friends, doctors, and the Boomer Esiason Foundation for all your support…
          
          In the past I have received awards for pole vaulting over 16'0? and increasing sales volume from $26M to $29M but it is a little eye-opening to get an award related to "living with a disease?… so I thought about it and looked up the definition of "HERO? in my Webster's pocket dictionary.
          
          Hero – one that is much admired or shows great courage.
          
          This award needs to be shared with many…
          
          1.) I share this with every person with cystic fibrosis that is living, breathing, and fighting for survival as it takes a lot of courage & work both physically and emotionally.
          
          2.) My family, in particular my MOM, they are all heroes as they had to deal with a lot on a daily basis growing up…I remember being diagnosed at age 11 and the doctors telling my parents "you are lucky if your son lives to be 18 years old?, WELL… I am 49 and still here today and don't plan on loosing the battle with CF any day soon. I owe a lot to my family because they never put me in a bubble and kept me very involved in sports – I thank you…
          
          3.) My sister Laurie and friend Mike who help me out alot when I need extra physical therapy when I am sick and really should be in the hospital – thank you
          
          4.) My doctors… I had and have many – one past away, one retired, and some never partnered up with me so I moved on
          
          Dr. Schulman, who I have been with for over 7 years - he has been a great partner and deals with a lot of issues – he has his hands full with me as I am not an easy patient – I thank you, it's a delight working with you as a doctor – I consider you a friend
          
          5.) The Boomer Esiason Foundation for your support and giving me a "safe haven? by letting me volunteer and empowering me as I await a Lung transplant.
          
          That leads me to the definition of HOPE...
          
          HOPE – desire with expectation of fulfillment
          
          In receiving this award, my hope is that PARENTS of children with CF will NOT feel guilty and NOT cover their loved one in bubble wrap but let them live life to the fullest!
          
          And for individuals living with CF my hope is that ALL will be very compliant to there medications/therapies and get involved in VIGOROUS EXERCISE on a daily basis.
          
          I believe, that through daily exercise, everyone with cystic fibrosis will be LIVING, BREATHING PROOF that can have a full and productive life while we wait for a cure.
          
          THANK YOU

          ]]> Pictured on Right (Left to Right) Jerry Cahill with Lisa Yourman, Dr. Joan Germana and Boomer Esiason.

          Heroes of Hope Award Photo Gallery

          share.shutterfly.com/action/welcome?sid=8AbOW7Fq4buXFg

          This Story appeared in Heroes of Hope Blog...

          Heroes of Hope – Living with CF 49-Year-Old Brooklyn, New York Resident with Cystic Fibrosis Receives National Award The Heroes of Hope TM Living with CF Program Advisory Panel is pleased to announce Jerry Cahill as the January 2006 award recipient in recognition of his positive attitude and tenacious spirit, The Heroes of Hope program honors people with cystic fibrosis (CF) who give hope to others. Jerry was chosen from a nationwide pool of candidates for his ability to inspire others with CF through his positive attitude, commitment to proactively manage his health, determination, community outreach, and achievement. Jerry states: "I wanted to thank the Heroes of Hope Committee and Genentech – makers of Pulmozyme – for this honor? "I also wanted to thank my family, friends, doctors, and the Boomer Esiason Foundation for ALL your support? "I share this award with every person with cystic fibrosis that is living, breathing, and fighting everyday to win the battle with this disease? For questions regarding the Heroes of Hope – Living with CF program, please call 1-866-288-1893 Or visit the web site: http://www.pulmozyme.com/hoh/hoh_landing.jsp

          Jerry's Speech

          HEROES OF HOPE (Living with CF) I wanted to thank the HEROES OF HOPE Committee and Genentech – makers of Pulmozyme - for this honor… I also wanted to thank my family & friends, doctors, and the Boomer Esiason Foundation for all your support… In the past I have received awards for pole vaulting over 16'0? and increasing sales volume from $26M to $29M but it is a little eye-opening to get an award related to "living with a disease?… so I thought about it and looked up the definition of "HERO? in my Webster's pocket dictionary. Hero – one that is much admired or shows great courage. This award needs to be shared with many… 1.) I share this with every person with cystic fibrosis that is living, breathing, and fighting for survival as it takes a lot of courage & work both physically and emotionally. 2.) My family, in particular my MOM, they are all heroes as they had to deal with a lot on a daily basis growing up…I remember being diagnosed at age 11 and the doctors telling my parents "you are lucky if your son lives to be 18 years old?, WELL… I am 49 and still here today and don't plan on loosing the battle with CF any day soon. I owe a lot to my family because they never put me in a bubble and kept me very involved in sports – I thank you… 3.) My sister Laurie and friend Mike who help me out alot when I need extra physical therapy when I am sick and really should be in the hospital – thank you 4.) My doctors… I had and have many – one past away, one retired, and some never partnered up with me so I moved on Dr. Schulman, who I have been with for over 7 years - he has been a great partner and deals with a lot of issues – he has his hands full with me as I am not an easy patient – I thank you, it's a delight working with you as a doctor – I consider you a friend 5.) The Boomer Esiason Foundation for your support and giving me a "safe haven? by letting me volunteer and empowering me as I await a Lung transplant. That leads me to the definition of HOPE... HOPE – desire with expectation of fulfillment In receiving this award, my hope is that PARENTS of children with CF will NOT feel guilty and NOT cover their loved one in bubble wrap but let them live life to the fullest! And for individuals living with CF my hope is that ALL will be very compliant to there medications/therapies and get involved in VIGOROUS EXERCISE on a daily basis. I believe, that through daily exercise, everyone with cystic fibrosis will be LIVING, BREATHING PROOF that can have a full and productive life while we wait for a cure. THANK YOU

          ]]> full Sacks For CF Application (PDF) Thu, 26 Jan 2006 00:13:00 +0000 00 false full Episode #0026: Sacks For CF Scholarship Program Wed, 25 Jan 2006 23:46:00 +0000 Sacks for CF Scholarship Program 
          • Sacks for CF is a scholarship program funded by CHIRON CORP. – the manufacturers of TOBI® for inhalation.
          • Jerry states: "TOBI® has made a major impact on treating respiratory infections and has given me a better quality of life?
          • CHIRON CORP has given a charitable grant of over $170,000. To the Boomer Esiason Foundation Grant Program.
          • Sacks for CF will award 15 scholarships to people with CF who strive for therapy adherence and academic success.
          • Scholarship details and applications are available at: www.sacksforcf.com

          More information is available by visiting the Boomer Esiason web site: www.esiason.org
          Deadline for ALL applications: Friday, February 24th 2006
          Winners announced: Friday, March 10th 2006

          ]]> Sacks for CF Scholarship Program
          • Sacks for CF is a scholarship program funded by CHIRON CORP. – the manufacturers of TOBI® for inhalation.
          • Jerry states: "TOBI® has made a major impact on treating respiratory infections and has given me a better quality of life?
          • CHIRON CORP has given a charitable grant of over $170,000. To the Boomer Esiason Foundation Grant Program.
          • Sacks for CF will award 15 scholarships to people with CF who strive for therapy adherence and academic success.
          • Scholarship details and applications are available at: www.sacksforcf.com

          More information is available by visiting the Boomer Esiason web site: www.esiason.org Deadline for ALL applications: Friday, February 24th 2006 Winners announced: Friday, March 10th 2006

          ]]> 03:03 false full Daily Source Code Promo Wed, 18 Jan 2006 19:59:00 +0000 02:30 false full Episode #0025 Alison Cain Podcast Tue, 10 Jan 2006 19:52:00 +0000 Alison Cain Podcast
          
          
          Title:
          Allison Cain can finally breathe after transplant and no more "CF boot camp?
          
          
          Jerry Cahill interviews Alison Cain who is 34 years old and had a double lung transplant at New York Presbyterian Hospital in NYC 1 ½ years ago due to progression of cystic fibrosis. Alison grew up in Connecticut and has returned to work teaching high school Spanish.
          
          - Alison was diagnosed at 1 ½ years of age due to a "strange cough? and "failure to thrive?
          - Alison attended Fordham University in New York.
          - Sports kept Alison healthy for a long time prior to transplant: "I was a competitive swimmer from age 4 to 13 years of age. I also played soccer, softball, and ran cross country track?
          - Alison was never hospitalized for cystic fibrosis until the age of 19.
          - At age 28 Alison developed CF related diabetes.
          - June 16, 2004 Alison had a double lung transplant that lasted 6 hours and was hospitalized for 10 days.
          - Alison believes, after many years of battling CF, that a transplant is the only true cure for CF and that her life is so much happier now.
          - Alison's advice: "Be compliant to therapy/med.'s and don't give up hope.
          ]]> Alison Cain Podcast Title: Allison Cain can finally breathe after transplant and no more "CF boot camp? Jerry Cahill interviews Alison Cain who is 34 years old and had a double lung transplant at New York Presbyterian Hospital in NYC 1 ½ years ago due to progression of cystic fibrosis. Alison grew up in Connecticut and has returned to work teaching high school Spanish. - Alison was diagnosed at 1 ½ years of age due to a "strange cough? and "failure to thrive? - Alison attended Fordham University in New York. - Sports kept Alison healthy for a long time prior to transplant: "I was a competitive swimmer from age 4 to 13 years of age. I also played soccer, softball, and ran cross country track? - Alison was never hospitalized for cystic fibrosis until the age of 19. - At age 28 Alison developed CF related diabetes. - June 16, 2004 Alison had a double lung transplant that lasted 6 hours and was hospitalized for 10 days. - Alison believes, after many years of battling CF, that a transplant is the only true cure for CF and that her life is so much happier now. - Alison's advice: "Be compliant to therapy/med.'s and don't give up hope.
          ]]> 40:13 false full Merry Christmas Sat, 24 Dec 2005 17:12:00 +0000 Holiday Photo Album
          ]]> Holiday Photo Album
          ]]> full Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference Sat, 24 Dec 2005 01:17:00 +0000 Laurie McDonald Podcast
          
          
          Title:
          Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference
          
          
          Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.
          • Laurie is involved in lung, heart, liver, and kidney transplant social work.
          • Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
          • "Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and family? states Laurie
          • UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
          • Laurie recommends setting up a "fundraising team? ASAP once you are listed to help ease the financial burden of unexpected expenses.
          • Laurie's advice:
            1. "Live everyday /minute of your life and don't count on transplant to turn your life around?
            2. "Prepare Financially?
            3. "Exercise – the surgery and recovery will go smoother?

            
            
            
             

          ]]> Laurie McDonald Podcast Title: Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.
          • Laurie is involved in lung, heart, liver, and kidney transplant social work.
          • Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
          • "Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and family? states Laurie
          • UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
          • Laurie recommends setting up a "fundraising team? ASAP once you are listed to help ease the financial burden of unexpected expenses.
          • Laurie's advice: 1. "Live everyday /minute of your life and don't count on transplant to turn your life around? 2. "Prepare Financially? 3. "Exercise – the surgery and recovery will go smoother?

          ]]> 36:50 false full Al Iannello Gives the "Gift of Breath? this Holiday Season Wed, 14 Dec 2005 17:19:00 +0000 Al Iannello Gives the "Gift of Breath? this Holiday Season
          
          Jerry Cahill interviews Al Iannello.
          
          Al is 41 years old with cystic fibrosis and another adult "living, breathing, and succeeding with CF. Al Iannello recently donated a therapy vest to another individual in need with CF.
          
          * Al Iannello was diagnosed at birth after he "died at birth?
          * Al has 1 brother and 2 sisters and his older sister also has CF and is 48 years old
          * Growing up Al was very involved in baseball, football, and basketball.
          * Al states: " I just deal with my condition and live a normal life?
          * "I come from a very close family and they ALWAYS are by my side?
          * Al is always positive and a fighter - "having CF is not the end of the world?
          * "Don't live in the North Pole and be isolated, you should be part of and get involved in the community? states Al Iannello.
          * Al's recommendation: "Do what you have to do to stay healthy and move forward in life!?
          ]]> Al Iannello Gives the "Gift of Breath? this Holiday Season Jerry Cahill interviews Al Iannello. Al is 41 years old with cystic fibrosis and another adult "living, breathing, and succeeding with CF. Al Iannello recently donated a therapy vest to another individual in need with CF. * Al Iannello was diagnosed at birth after he "died at birth? * Al has 1 brother and 2 sisters and his older sister also has CF and is 48 years old * Growing up Al was very involved in baseball, football, and basketball. * Al states: " I just deal with my condition and live a normal life? * "I come from a very close family and they ALWAYS are by my side? * Al is always positive and a fighter - "having CF is not the end of the world? * "Don't live in the North Pole and be isolated, you should be part of and get involved in the community? states Al Iannello. * Al's recommendation: "Do what you have to do to stay healthy and move forward in life!?
          ]]> 18:57 false full Scott Johnson: The Tri-Athlete Mon, 28 Nov 2005 20:02:00 +0000 Scott Johnson: The Tri-Athlete (swim, bike, run)
          
          
          
          Jerry Cahill interviews Scott Johnson about training for an "Ironman? Triathlon
          
          Scott Johnson at age 33 has been living with CF, living 4 years out with a double lung transplant, and now living with the accomplishment of competing in over 18 triathlons.
          
          Scott recently competed in the FLORIDA IRONMAN – the most elite of triathlon competitions – on November 5th in Panama City, Florida.
          • IRONMAN Triathlon consists of swimming 2.4 miles, biking 112 miles, and finishing with a 26.2 mile run
          • Scott states: "Prior to my transplant, I made a list of things I'd like to accomplish and a triathlon was one of my wishes?
          • "One year after my double lung transplant I started training hard?
          • Scott is sponsored by the Wilmington YMCA
          • Scott trains 6 days a week for a total of 30 hours.
          • Additional nutritional supplements include pre-natal vitamins and protein shakes.
          • "Life is precious and I am living it to the fullest? states Scott
          ]]> Scott Johnson: The Tri-Athlete (swim, bike, run) Jerry Cahill interviews Scott Johnson about training for an "Ironman? Triathlon Scott Johnson at age 33 has been living with CF, living 4 years out with a double lung transplant, and now living with the accomplishment of competing in over 18 triathlons. Scott recently competed in the FLORIDA IRONMAN – the most elite of triathlon competitions – on November 5th in Panama City, Florida.
          • IRONMAN Triathlon consists of swimming 2.4 miles, biking 112 miles, and finishing with a 26.2 mile run
          • Scott states: "Prior to my transplant, I made a list of things I'd like to accomplish and a triathlon was one of my wishes?
          • "One year after my double lung transplant I started training hard?
          • Scott is sponsored by the Wilmington YMCA
          • Scott trains 6 days a week for a total of 30 hours.
          • Additional nutritional supplements include pre-natal vitamins and protein shakes.
          • "Life is precious and I am living it to the fullest? states Scott
          ]]> 28:45 false full Scott Johnson: The Double Lung Transplant (Part II) Mon, 14 Nov 2005 17:03:00 +0000
          
          Jerry Cahill interviews Scott Johnson about his double lung transplant
          
          
          Scott Johnson is 33 years old with cystic fibrosis and had a double lung transplant 4 years ago on September 15th 2001 at University North Carolina Medical Center in Chapel Hill, North Carolina.
          • Scott grew up in Jacksonville, North Carolina
          • At 27 years old with a sinus infection Scott's lung x-rays looked like a "blizzard?
          • Scott was listed for 2 years, the surgery was 9 hours, and he was hospitalized for 17 days.
          • Scott prepared for the transplant by exercising on a treadmill and weights and going to support groups.
          • "Exercise and a Positive Attitude? helped Scott make it through the surgery
          • Scott states: "My quality of life with my new lungs is better than living with CF?.
          • Scott words of encouragement for others listed for a transplant: "Maintain a positive outlook and keep exercising!?

            
             

          ]]>
          • Scott grew up in Jacksonville, North Carolina
          • At 27 years old with a sinus infection Scott's lung x-rays looked like a "blizzard?
          • Scott was listed for 2 years, the surgery was 9 hours, and he was hospitalized for 17 days.
          • Scott prepared for the transplant by exercising on a treadmill and weights and going to support groups.
          • "Exercise and a Positive Attitude? helped Scott make it through the surgery
          • Scott states: "My quality of life with my new lungs is better than living with CF?.
          • Scott words of encouragement for others listed for a transplant: "Maintain a positive outlook and keep exercising!?

          ]]> 25:23 false full Scott Johnson: Growing up with CF (Part I) Fri, 04 Nov 2005 19:32:00 +0000 Scott Johnson: Growing up with CF (part 1)
          
          
          Jerry Cahill interviews Scott Johnson in 3 parts:
          1. Growing up with CF
          2. The Double Lung Transplant
          3. The Triathlete
          
          
          Scott Johnson is 33 years old with cystic fibrosis and training hard in sports regardless of the fact that he has CF and underwent a double lung transplant 4 years ago at UNC Chapel Hill, North Carolina.
          • Scott grew up in Jacksonville, North Carolina
          • Diagnosed with CF at 2 months due to pneumonia and a lung collapsing
          • Scott was always embarrassed about hi coughing growing up but still was very involved in sports.
          • Scott states: "CF has shaped and played a MOJOR role in my life growing up – people with CF don't make plans for the future…?
          • "Exercise and a Positive Attitude? these are Scott's most important factors to maintaining Scott's health.
          • Scott states: "The biggest challenges facing adults with CF is insurance and medical expenses as people are living a lot longer with cystic fibrosis?
          • Scott believes, "you have to own it and manage your CF?
          • "I have CF but it does NOT have me…  
          ]]> Scott Johnson: Growing up with CF (part 1) Jerry Cahill interviews Scott Johnson in 3 parts: 1. Growing up with CF 2. The Double Lung Transplant 3. The Triathlete Scott Johnson is 33 years old with cystic fibrosis and training hard in sports regardless of the fact that he has CF and underwent a double lung transplant 4 years ago at UNC Chapel Hill, North Carolina.
          • Scott grew up in Jacksonville, North Carolina
          • Diagnosed with CF at 2 months due to pneumonia and a lung collapsing
          • Scott was always embarrassed about hi coughing growing up but still was very involved in sports.
          • Scott states: "CF has shaped and played a MOJOR role in my life growing up – people with CF don't make plans for the future…?
          • "Exercise and a Positive Attitude? these are Scott's most important factors to maintaining Scott's health.
          • Scott states: "The biggest challenges facing adults with CF is insurance and medical expenses as people are living a lot longer with cystic fibrosis?
          • Scott believes, "you have to own it and manage your CF?
          • "I have CF but it does NOT have me…
          ]]> 20:05 false full National Transplant Assistance Fund – "The Financial Link to Transplantation Fri, 21 Oct 2005 17:02:00 +0000 National Transplant Assistance Fund -The Financial Link to Transplantation
          
          
          Jerry Cahill interviews Lynne Samson, the Executive Director of the NTAF on how they can help with fundraising for a costly lung transplant.
          
          Mission Statement: To help raise funds for transplant and catastrophic injury patients by providing compassionate support, education and expertise to them, their families and communities.
          • NTAF is a nonprofit 501 (c) 3 charitable organization and contributions to NTAF are tax-deductible. NTAF was founded in 1983
          • Lynne states: "it's better to start fundraising as soon as you are listed at a transplant center"
          • Lynn states: "people in the community love to support a cause and this gives emotional support to the patient and family going through the crisis"
          • Fundraising events include: golf outings, spaghetti dinners, chicken fries, dances, and car washes,  to name a few.
          • Money can be used for insurance co-pays, medications, re-locating for a transplant, meals, lodging, and living donor costs.
          • NTAF has over 1200 active patient accounts and has risen over $4 million this year.
          • "The goal of NTAF is to help the patient and family feel financially, emotionally, and mentally secure and that through the community support they will feel cared for"

          National Transplant Assistance Fund

          ]]> National Transplant Assistance Fund -The Financial Link to Transplantation Jerry Cahill interviews Lynne Samson, the Executive Director of the NTAF on how they can help with fundraising for a costly lung transplant. Mission Statement: To help raise funds for transplant and catastrophic injury patients by providing compassionate support, education and expertise to them, their families and communities.
          • NTAF is a nonprofit 501 (c) 3 charitable organization and contributions to NTAF are tax-deductible. NTAF was founded in 1983
          • Lynne states: "it's better to start fundraising as soon as you are listed at a transplant center"
          • Lynn states: "people in the community love to support a cause and this gives emotional support to the patient and family going through the crisis"
          • Fundraising events include: golf outings, spaghetti dinners, chicken fries, dances, and car washes, to name a few.
          • Money can be used for insurance co-pays, medications, re-locating for a transplant, meals, lodging, and living donor costs.
          • NTAF has over 1200 active patient accounts and has risen over $4 million this year.
          • "The goal of NTAF is to help the patient and family feel financially, emotionally, and mentally secure and that through the community support they will feel cared for"

          National Transplant Assistance Fund

          ]]> 38:42 false full Jump Drive Template - CF Patients can get a Medical Jump Drive from the Boomer Esiason Foundation Fri, 14 Oct 2005 17:24:00 +0000 00 false full "Jump Drive? for Better Health Care Thu, 06 Oct 2005 17:32:00 +0000 "Jump Drive? for Better Health Care
           
          Jerry Cahill interviews Dr. Jamie Wells on putting medical information on a "jump drive?
          • "Jump Drive?: also know as a USB drive or flash drive is a "plug-and-play? portable storage device that is lightweight enough to attach to a key chain that cost under $20.
          • Dr. Wells states: "jump drives empowers us in our health care and enables patients to be their own advocates
          • Medical information & records can be stored on a "jump drive? and this is extremely important to someone with a chronic disease or medical condition for doctor visits and emergency room visits.
          • "Jump Drives? contain such information as emergency contacts, physicians contacts, past medical history, allergies/adverse effects, current medications, and laboratory test information.
          • The BOOMER ESIASON FOUNDATION  will be putting a "Jump Drive? Medical Template up on their site (www.esiason.org) and offering the drives to individuals with CF with proper documentation.
             
          ]]> "Jump Drive? for Better Health Care Jerry Cahill interviews Dr. Jamie Wells on putting medical information on a "jump drive?
          • "Jump Drive?: also know as a USB drive or flash drive is a "plug-and-play? portable storage device that is lightweight enough to attach to a key chain that cost under $20.
          • Dr. Wells states: "jump drives empowers us in our health care and enables patients to be their own advocates
          • Medical information & records can be stored on a "jump drive? and this is extremely important to someone with a chronic disease or medical condition for doctor visits and emergency room visits.
          • "Jump Drives? contain such information as emergency contacts, physicians contacts, past medical history, allergies/adverse effects, current medications, and laboratory test information.
          • The BOOMER ESIASON FOUNDATION will be putting a "Jump Drive? Medical Template up on their site (www.esiason.org) and offering the drives to individuals with CF with proper documentation.
          ]]> 41:26 false full The "Pod Daddy? wants to hear your comments on the Cystic Fibrosis Podcast Wed, 21 Sep 2005 16:49:00 +0000 The "Pod Daddy? wants to hear your comments on the Cystic Fibrosis Podcast.
          
          
          
          Please click on comments or email me at jcahill@esiason.org and let me know your thoughts and what you want to hear more about.
          
          
          
          Recent comments:
          
          I really love the podcasts! These things are exactly what kids and young adults with CF need to see and hear. I can't tell you how often I fell alone in my fight with CF. Your site, I think, is out there to give the same support that I found in my family. This site has so much hope in it! (Ohio)
          
          
          I really like your site – it's very informative. (Louisiana)
          
          
          I am impressed with the podcasts and would like to hear more about CF individuals with digestive, kidney, and liver issues.
          
          I found the podcasts 'fascinating? It was wonderful to listen to the inspirational stories of others LIVING with cystic fibrosis. I found it incredible how open and honest the people you interviewed were.
          
          "WOW!?
          ]]> The "Pod Daddy? wants to hear your comments on the Cystic Fibrosis Podcast. Please click on comments or email me at jcahill@esiason.org and let me know your thoughts and what you want to hear more about. Recent comments: I really love the podcasts! These things are exactly what kids and young adults with CF need to see and hear. I can't tell you how often I fell alone in my fight with CF. Your site, I think, is out there to give the same support that I found in my family. This site has so much hope in it! (Ohio) I really like your site – it's very informative. (Louisiana) I am impressed with the podcasts and would like to hear more about CF individuals with digestive, kidney, and liver issues. I found the podcasts 'fascinating? It was wonderful to listen to the inspirational stories of others LIVING with cystic fibrosis. I found it incredible how open and honest the people you interviewed were. "WOW!?
          ]]> full Dylan Mortimer, at 25 Thu, 08 Sep 2005 17:04:00 +0000 Dylan Mortimer, at 25 "Keeps the Faith",in Battling CF and Focuses on Being an Artist and Graduate School
          
          Jerry Cahill interviews Dylan Mortimer
          
          * Diagnosed at 6 months of age in St. Louis
          * Dylan also has a 23 year old brother with cystic fibrosis
          * Growing up Dylan had a cough and was not hospitalized for a "tune up" until age 17.
          * Dylan exercises at a gym doing the treadmill and weight training
          * Dylan moved to NYC about a year ago and is attending the School of Visual Arts Graduate School and got married in May 2005
          A newlywed Dylan believes "Love transcends all, even cystic fibrosis"
          * "Although living with CF brings a lot more baggage and weighs you down, it makes you appreciate life "states Dylan.
          * Dylan states: "My Faith in God helps me accept CF and gives me the energy to fight the battle"
          ]]> Dylan Mortimer, at 25 "Keeps the Faith",in Battling CF and Focuses on Being an Artist and Graduate School Jerry Cahill interviews Dylan Mortimer * Diagnosed at 6 months of age in St. Louis * Dylan also has a 23 year old brother with cystic fibrosis * Growing up Dylan had a cough and was not hospitalized for a "tune up" until age 17. * Dylan exercises at a gym doing the treadmill and weight training * Dylan moved to NYC about a year ago and is attending the School of Visual Arts Graduate School and got married in May 2005 A newlywed Dylan believes "Love transcends all, even cystic fibrosis" * "Although living with CF brings a lot more baggage and weighs you down, it makes you appreciate life "states Dylan. * Dylan states: "My Faith in God helps me accept CF and gives me the energy to fight the battle"
          ]]> 49:07 false full Newsweek Article on Living into Adulthood Tue, 06 Sep 2005 18:24:00 +0000 full Live to Run and Run to Live Mon, 29 Aug 2005 19:43:00 +0000 Jerry Cahill interviews Cris Dopher

          "I live to Run and Run to Live" States Cris Dopher, 34 Years Old, Who is Taking Cystic Fibrosis by the Throat and Taking Control of His Life.

          • Diagnosed at 4 years old due to "failure to thrive?
          • Cris grew up in Southern California and Missouri prior to moving to NYC
          • "My parents did not panic when they heard the news about my diagnosis with CF?
          • Cris has 2 sisters and I brother
          • Attended Missouri State University as an undergraduate and New York University for graduate work in Fine Arts.
          • Mount Sinai in New York is Cris' CF Center
          • Biggest challenge: "Time spent on treatments?
          • "Although having CF is a major wake-up call… I try to see things in a more positive way and that opens up new doors and possibilities…?
          • Cris believes the most important factors that keep him healthy are: "Family support, great doctors, and his motivation to research?
          • Cris completed the Flying Pig Marathon in Cincinnati, Ohio in a time of 5 hours 25 minutes.
          • Cris plans on running the New York City Marathon in 2006 and his goal is sub 5 hours
          • "You are not alone with CF and therefore I like to contribute to the CF community.
          ]]> Jerry Cahill interviews Cris Dopher

          "I live to Run and Run to Live" States Cris Dopher, 34 Years Old, Who is Taking Cystic Fibrosis by the Throat and Taking Control of His Life.

          • Diagnosed at 4 years old due to "failure to thrive?
          • Cris grew up in Southern California and Missouri prior to moving to NYC
          • "My parents did not panic when they heard the news about my diagnosis with CF?
          • Cris has 2 sisters and I brother
          • Attended Missouri State University as an undergraduate and New York University for graduate work in Fine Arts.
          • Mount Sinai in New York is Cris' CF Center
          • Biggest challenge: "Time spent on treatments?
          • "Although having CF is a major wake-up call… I try to see things in a more positive way and that opens up new doors and possibilities…?
          • Cris believes the most important factors that keep him healthy are: "Family support, great doctors, and his motivation to research?
          • Cris completed the Flying Pig Marathon in Cincinnati, Ohio in a time of 5 hours 25 minutes.
          • Cris plans on running the New York City Marathon in 2006 and his goal is sub 5 hours
          • "You are not alone with CF and therefore I like to contribute to the CF community.
          ]]> 01:15:33 false full Jerry Cahill Talks with Former Co-worker Maggie Talboy about Working as a VP of Sales and Living with Cystic Fibrosis. Wed, 17 Aug 2005 00:44:00 +0000 Maggie Talboy interviews Jerry Cahill - "Better Living Through Chemistry"
          • "My life is not about the cystic fibrosis… it's about living and enjoying everyday!?
          • Jerry was diagnosed at age 11 after several hospitalizations for pneumonia.
          • Jerry comes from a very athletic family that includes 4 brothers and 1 sister.
          • Jerry attended Xaverian High School in Brooklyn, NY and then went on to the University of Connecticut where he competed in varsity track &  field specializing in the pole vault.
          • CF is a challenge and a competition… I will beat it as best I can because life is NOT a controlled experience?
          • Jerry states: "I do not have time to sit around with IMPENDING DOOM – go out and experience life and manage your disease?
          • Jerry "exercises for life? and believes that "exercise can slow down the progression of the disease?
          • Jerry believes in being pro-active with his health and is very involved in NUTRITION including: I.V. vitamin drips, "lot's of vitamins and juicing? and of course "exercise?
          • Listed for a double lung transplant at NEW YORK PRESBYTERIAN and also seen at UNIVERSITY of NORTH CAROLINA at CHAPEL HILL – Jerry is very happy with his TEAM of doctors.
          • Maggie asked Jerry what keeps him going...? "A passion for life and being involved with people, watching people grow and most important giving of yourself – not materialistic things.
          • Jerry states: "I have my FULL METAL JACKET on and am ready for the transplant…!

            
             

          ]]> Maggie Talboy interviews Jerry Cahill - "Better Living Through Chemistry"
          • "My life is not about the cystic fibrosis… it's about living and enjoying everyday!?
          • Jerry was diagnosed at age 11 after several hospitalizations for pneumonia.
          • Jerry comes from a very athletic family that includes 4 brothers and 1 sister.
          • Jerry attended Xaverian High School in Brooklyn, NY and then went on to the University of Connecticut where he competed in varsity track & field specializing in the pole vault.
          • CF is a challenge and a competition… I will beat it as best I can because life is NOT a controlled experience?
          • Jerry states: "I do not have time to sit around with IMPENDING DOOM – go out and experience life and manage your disease?
          • Jerry "exercises for life? and believes that "exercise can slow down the progression of the disease?
          • Jerry believes in being pro-active with his health and is very involved in NUTRITION including: I.V. vitamin drips, "lot's of vitamins and juicing? and of course "exercise?
          • Listed for a double lung transplant at NEW YORK PRESBYTERIAN and also seen at UNIVERSITY of NORTH CAROLINA at CHAPEL HILL – Jerry is very happy with his TEAM of doctors.
          • Maggie asked Jerry what keeps him going...? "A passion for life and being involved with people, watching people grow and most important giving of yourself – not materialistic things.
          • Jerry states: "I have my FULL METAL JACKET on and am ready for the transplant…!

          ]]> 57:25 false full Dr. Jamie Wells is More Than "Just a Doctor" By Giving Patients a "Positive Experience and Making Things a Little Easier..." Tue, 09 Aug 2005 03:02:00 +0000 Jerry Cahill interviews Dr. Jamie Wells
          • Dr. Wells grew up in Philadelphia before attending YALE UNIVERSITY majoring in American Studies.
          • Dr. Wells attending JEFFERSON MEDICAL SCHOOL in Philadelphia where she started out specializing in brain surgery prior to focusing on
            pediatrics.
          • "Medical school = one paragraph on cystic fibrosis… all training comes from hands on at a CF Center? states Dr. Wells
          • As an infant with CF: "Burden on parents to understand and deal with everything all at once?
          • Dr. Wells states: "The teenage years are the most challenging as the typical teenager is not compliant?
          • "Doctors and CF patients must have a PARTNERSHIP?
          • Dr. Jamie Wells states: Due to the prognosis of the disease, "cystic fibrosis patients are dynamic and grow up very very quickly…?
          • Dr. Wells strongly believes: "People with CF need someone to look up to and see that there are people living at age 49…?
          • Regarding Stem Cell Research: "I am an advocate of anything that is going to advance science?
          • Dr, Wells Rx for people with CF: "Be consistent with med.'s and therapy, even when you are feeling well, and maintain an optimal nutritional state so you can fight infection?
          • "I am honored and privileged to know patients and their families with this disease… people with CF really get what is about to be alive!?
          ]]> Jerry Cahill interviews Dr. Jamie Wells
          • Dr. Wells grew up in Philadelphia before attending YALE UNIVERSITY majoring in American Studies.
          • Dr. Wells attending JEFFERSON MEDICAL SCHOOL in Philadelphia where she started out specializing in brain surgery prior to focusing on pediatrics.
          • "Medical school = one paragraph on cystic fibrosis… all training comes from hands on at a CF Center? states Dr. Wells
          • As an infant with CF: "Burden on parents to understand and deal with everything all at once?
          • Dr. Wells states: "The teenage years are the most challenging as the typical teenager is not compliant?
          • "Doctors and CF patients must have a PARTNERSHIP?
          • Dr. Jamie Wells states: Due to the prognosis of the disease, "cystic fibrosis patients are dynamic and grow up very very quickly…?
          • Dr. Wells strongly believes: "People with CF need someone to look up to and see that there are people living at age 49…?
          • Regarding Stem Cell Research: "I am an advocate of anything that is going to advance science?
          • Dr, Wells Rx for people with CF: "Be consistent with med.'s and therapy, even when you are feeling well, and maintain an optimal nutritional state so you can fight infection?
          • "I am honored and privileged to know patients and their families with this disease… people with CF really get what is about to be alive!?
          ]]> 01:16:08 false full Michael Antenucci Awarded the Heidi Norris Memorial Scholarship Tue, 02 Aug 2005 02:37:00 +0000 The Boomer Esiason Foundation and the Ohio Society for Respiratory Care award $1500 in memory of Heidi Norris RRT.

          Heidi Norris was a Registered Respiratory Therapist who passed away in 2004 after a long hard battle with cystic fibrosis that included a double lung transplant in 1999.

          Michael will be attending Youngstown State University in Ohio and majoring in tge field of Respiratory Care "Sharing the Breath of Life with Others"

          ]]> The Boomer Esiason Foundation and the Ohio Society for Respiratory Care award $1500 in memory of Heidi Norris RRT.

          Heidi Norris was a Registered Respiratory Therapist who passed away in 2004 after a long hard battle with cystic fibrosis that included a double lung transplant in 1999.

          Michael will be attending Youngstown State University in Ohio and majoring in tge field of Respiratory Care "Sharing the Breath of Life with Others"

          ]]> 02:43 false full Winning Championship Races on her Track Team in Allen, Nebraska and Winning the Battle with CF through Exercise Sat, 16 Jul 2005 05:15:00 +0000 Jerry Cahill Interviews Erin Keitges
           
          Erin was diagnosed with CF at 3 months due to "failure to thrive"
          Erin's mom, dad, older brother and sister are very supportive
          Growing up Erin's mom states: "Erin was treated like everyone else in the family" and not put in a glass jar"
          Academically Erin is ranked #1 in her class
          Erin is involved in high school varsity basketball, volleyball, band, choir, and has mastered Track & Field in both the 3200meters and 1600meters where she won and set school records in May 2005
          "Multi-tasking!" that is the key to Erin's success and fitting a lot of living into a single day
          Living with CF? Erin states: "some days are harder than others but I live my life and go on..."
          ]]> Erin was diagnosed with CF at 3 months due to "failure to thrive"
          Erin's mom, dad, older brother and sister are very supportive
          Growing up Erin's mom states: "Erin was treated like everyone else in the family" and not put in a glass jar"
          Academically Erin is ranked #1 in her class
          Erin is involved in high school varsity basketball, volleyball, band, choir, and has mastered Track & Field in both the 3200meters and 1600meters where she won and set school records in May 2005
          "Multi-tasking!" that is the key to Erin's success and fitting a lot of living into a single day
          Living with CF? Erin states: "some days are harder than others but I live my life and go on..."
          ]]> 24:19 false full Coming Soon: Erin Keitges Interview Fri, 15 Jul 2005 13:48:00 +0000 full UNC Adult CF Center Tue, 12 Jul 2005 01:29:00 +0000 full Jerry Interviews Ashley White Thu, 07 Jul 2005 05:16:00 +0000 Ashley White, Awaiting a Double Lung Transplant at Duke Medical Center, Looks Forward to Being Able to "Breathe Again"
          
          Jerry Cahill interviews Ashley White
          • Ashley White was diagnosed with cystic fibrosis at 4 months of age.
          • Ashley has 4 sisters and 2 brothers, one brother also has CF.
          • Ashley attends home school daily.
          • Medication, therapy, more medication, and more therapy Ashley spends many hours a day being compliant to here routine trying to stay healthy along with nightly tube feeding.
          • Ashley enjoys scrap booking and spending time with her friends and family.
          • Listed for a double lung transplant in March 2005 after being on oxygen 24/7 and when her FEVs dropped below 24.
          • Ashley, along with her mom, had to face and make the big decision regarding the double lung transplant surgery.
          • My Mom has been the biggest influence on my life
          • KEEP GOING! Ashleys advice to others with CF and facing a transplant.
          • Without my Mom, who pushes me, I may have giving up
            
             
          ]]> Ashley White, Awaiting a Double Lung Transplant at Duke Medical Center, Looks Forward to Being Able to "Breathe Again" Jerry Cahill interviews Ashley White
          • Ashley White was diagnosed with cystic fibrosis at 4 months of age.
          • Ashley has 4 sisters and 2 brothers, one brother also has CF.
          • Ashley attends home school daily.
          • Medication, therapy, more medication, and more therapy Ashley spends many hours a day being compliant to here routine trying to stay healthy along with nightly tube feeding.
          • Ashley enjoys scrap booking and spending time with her friends and family.
          • Listed for a double lung transplant in March 2005 after being on oxygen 24/7 and when her FEVs dropped below 24.
          • Ashley, along with her mom, had to face and make the big decision regarding the double lung transplant surgery.
          • My Mom has been the biggest influence on my life
          • KEEP GOING! Ashleys advice to others with CF and facing a transplant.
          • Without my Mom, who pushes me, I may have giving up
          ]]> 21:21 false full Jerry Interviews Lisa White Fri, 01 Jul 2005 11:00:00 +0000 Lisa White's Daughter Awaits a Double Lung Transplant at Duke Medical Center and Her Faith & Family Give Her Strength
          
          Jerry Cahill interviews Lisa White
          • Lisa's daughter is awaiting a double lung transplant at Duke Medical Center in Durham, North Carolina.
          • Lisa has the endless support from her family, friends, and faith.
          • Lisa stresses? "Stay positive? and keep on "living life? regardless of the obstacles.
          • "Keep researching EVERYTHING on cystic fibrosis and lung transplants? and most of all be "PRO-ACTIVE? and "VIGILANT?
          • Lisa states: "Ashley and I never give up, you must have the SURVIVAL INSTINCT or LIFE WILL STOP!?
          ]]> Lisa White's Daughter Awaits a Double Lung Transplant at Duke Medical Center and Her Faith & Family Give Her Strength Jerry Cahill interviews Lisa White
          • Lisa's daughter is awaiting a double lung transplant at Duke Medical Center in Durham, North Carolina.
          • Lisa has the endless support from her family, friends, and faith.
          • Lisa stresses? "Stay positive? and keep on "living life? regardless of the obstacles.
          • "Keep researching EVERYTHING on cystic fibrosis and lung transplants? and most of all be "PRO-ACTIVE? and "VIGILANT?
          • Lisa states: "Ashley and I never give up, you must have the SURVIVAL INSTINCT or LIFE WILL STOP!?
          ]]> 42:54 false full Ashley White Awaits Double Lung Transplant at Duke Medical Center Mon, 27 Jun 2005 03:51:00 +0000 full Amy Purdy, Social Worker at St. Vincent's CF Center in New York, is Passionate about her Work! Mon, 06 Jun 2005 04:41:22 +0000 Jerry Cahill interviews Amy Purdy
          
          
          Amy Purdy has been a social worker at Saint Vincent's CF Center, in New York City, for over 8 years and "loves helping people?
          • Amy grew up in Long Island, NY
          • SUNY Albany undergraduate degree
          • Adelphi University graduate degree in Social Work
          • St. Vincent's has over 170 cystic fibrosis patients where Amy works full time for the center.
          • Amy has great relationships with her patients and knows "what there favorite flavor is in bubble gum?
          • Amy deals with various issues including; medical insurance, medication compliance, educating families on CF, transplant issues, and "just being there? for the patients?.
          • Amy states: "Teen years are critical for medication/therapy compliance, as this sets the stage for your future health?.
          • St. Vincent's has a "phone a friend? program for CF teens to speak to adults with CF
          • Amy's goal: "Take the burden off the young adults by becoming like a personal assistant?
          • Amy's advice to families: "Use ALL the resources at your CF Center?
          ]]> Jerry Cahill interviews Amy Purdy Amy Purdy has been a social worker at Saint Vincent's CF Center, in New York City, for over 8 years and "loves helping people?
          • Amy grew up in Long Island, NY
          • SUNY Albany undergraduate degree
          • Adelphi University graduate degree in Social Work
          • St. Vincent's has over 170 cystic fibrosis patients where Amy works full time for the center.
          • Amy has great relationships with her patients and knows "what there favorite flavor is in bubble gum?
          • Amy deals with various issues including; medical insurance, medication compliance, educating families on CF, transplant issues, and "just being there? for the patients?.
          • Amy states: "Teen years are critical for medication/therapy compliance, as this sets the stage for your future health?.
          • St. Vincent's has a "phone a friend? program for CF teens to speak to adults with CF
          • Amy's goal: "Take the burden off the young adults by becoming like a personal assistant?
          • Amy's advice to families: "Use ALL the resources at your CF Center?
          ]]> 26:26 false full CF Sucks! Wed, 01 Jun 2005 18:21:59 +0000 I just received my new T-shirt that says "CF Sucks" and it does...
          I have been on iv antibiotics for over 4 weeks and still have a lot of congestion... I am at the point these medications don't work - WE NEED NEW DRUGS!!!
          ]]> I just received my new T-shirt that says "CF Sucks" and it does... I have been on iv antibiotics for over 4 weeks and still have a lot of congestion... I am at the point these medications don't work - WE NEED NEW DRUGS!!!
          ]]> full Kristy Denninger Enjoying Life at age 28 with Cystic Fibrosis Tue, 24 May 2005 21:14:25 +0000 Kristy Denninger Enjoying Life at age 28 with Cystic Fibrosis
          
          Jerry Cahill Interviews Kristy Denninger
          
          Kristy Denninger is 28 years old and has a phenomenal support team of family, boyfriend, and friends.
          • Kristy was diagnosed with CF at 3 months do to "failure to thrive?.
          • Kristy at age 14 also diagnosed with Diabetes.
          • Degree in Social Work from St. Thomas College in New York.
          • Kristy enjoys: "Family, Friends, and Vacationing?
          • "Relaxing on the Beach is great for my Spiritual and Physical Health?.
          • Kristy raised over $10,000 this year for CFF "Great Strides?.
          • Kristy states: "Exercising on the treadmill for 20 minutes per day helps keep me healthy?.
          • Kristy believes in "staying positive? and is empowered by the online Cystic-L Support Group.
          ]]> Kristy Denninger Enjoying Life at age 28 with Cystic Fibrosis Jerry Cahill Interviews Kristy Denninger Kristy Denninger is 28 years old and has a phenomenal support team of family, boyfriend, and friends.
          • Kristy was diagnosed with CF at 3 months do to "failure to thrive?.
          • Kristy at age 14 also diagnosed with Diabetes.
          • Degree in Social Work from St. Thomas College in New York.
          • Kristy enjoys: "Family, Friends, and Vacationing?
          • "Relaxing on the Beach is great for my Spiritual and Physical Health?.
          • Kristy raised over $10,000 this year for CFF "Great Strides?.
          • Kristy states: "Exercising on the treadmill for 20 minutes per day helps keep me healthy?.
          • Kristy believes in "staying positive? and is empowered by the online Cystic-L Support Group.
          ]]> 30:09 false full Upcoming Interviews Sat, 21 May 2005 03:06:54 +0000 full Jerry's Update on Benefits of Home Infusion Wed, 11 May 2005 02:13:16 +0000 08:37 false full Laura Cianci Home Infusion Nurse Mon, 09 May 2005 19:26:27 +0000 Jerry Cahill interviews Laura Cianci
          
          
          Laura Cianci has been a Home Infusion Nurse for the past 16 years working with patients with acute illnesses. Home infusion therapy offers flexibility to both the patient and the nurse.
          • Laura has many CF patients that receive numerous antibiotics and steroids by IV.
            Patients can start home infusion care as young as 18 months
          • "I love my patients, they are the reason why I do what I do?
          • Laura states: "It's important to mobilize the secretions, not only through IV antibiotics but also through postural drainage?
          • Laura believes CF patients need to be more pro-active in their care.
          • "I have learned to appreciate life more after working with my patients and seeing the fortitude they have for life…
          • Laura states: CF has an effect on the entire family

             

          ]]> Jerry Cahill interviews Laura Cianci Laura Cianci has been a Home Infusion Nurse for the past 16 years working with patients with acute illnesses. Home infusion therapy offers flexibility to both the patient and the nurse.
          • Laura has many CF patients that receive numerous antibiotics and steroids by IV. Patients can start home infusion care as young as 18 months
          • "I love my patients, they are the reason why I do what I do?
          • Laura states: "It's important to mobilize the secretions, not only through IV antibiotics but also through postural drainage?
          • Laura believes CF patients need to be more pro-active in their care.
          • "I have learned to appreciate life more after working with my patients and seeing the fortitude they have for life…
          • Laura states: CF has an effect on the entire family

          ]]> 23:42 false full IV Antibiotic Therapy Fri, 06 May 2005 14:46:00 +0000 full Upcoming interviews Tue, 03 May 2005 17:43:38 +0000 full Michael Marten's Lung Transplant Interview Fri, 29 Apr 2005 21:23:12 +0000 Cystic Fibrosis Podcast Intro (38:05 Minutes)
          
          Jerry Cahill Interviews Michael Marten
          
          About three years ago Michael Marten received a double lung transplant at Duke University. In this interview Michael discusses his life experiences both pre and post transplant with host Jerry Cahill.

          Michael Marten Background Information

          • Age 45 -will be 46 in May
          •  Those crazy "Mist Tents"
          • 4 Years Old when diagnosed
          • Fairly normal life until graduate school (St. Johns University).
          • 1991- Graduated Grad School
          • 1993- Started to Repeated infections (Disability from work)
          • 1996- First put on oxygen
          • 1999- Put on oxygen full-time
          • 2001- Duke University Evaluation
          • 2002 -July, Michael Moves to North Carolina with Family
          • 2002-August 1, Goes to hospital for transplant
          • 3 Years Post Transplant-Still Going Strong

          Importance of Family Support Mechanism
          
          Jerry Interview Questions
          
          

          ]]> Cystic Fibrosis Podcast Intro (38:05 Minutes) Jerry Cahill Interviews Michael Marten About three years ago Michael Marten received a double lung transplant at Duke University. In this interview Michael discusses his life experiences both pre and post transplant with host Jerry Cahill.

          Michael Marten Background Information

          • Age 45 -will be 46 in May
          • Those crazy "Mist Tents"
          • 4 Years Old when diagnosed
          • Fairly normal life until graduate school (St. Johns University).
          • 1991- Graduated Grad School
          • 1993- Started to Repeated infections (Disability from work)
          • 1996- First put on oxygen
          • 1999- Put on oxygen full-time
          • 2001- Duke University Evaluation
          • 2002 -July, Michael Moves to North Carolina with Family
          • 2002-August 1, Goes to hospital for transplant
          • 3 Years Post Transplant-Still Going Strong

          Importance of Family Support Mechanism Jerry Interview Questions

          ]]> 37:59 false full Allergy Season Tue, 26 Apr 2005 17:32:32 +0000 full Double Lung Transplant Interview Mon, 25 Apr 2005 14:37:50 +0000 full Aspergillus - a common fungus... Fri, 22 Apr 2005 04:25:16 +0000 full Cystic Fibrosis Podcast 4-20-2005 Wed, 20 Apr 2005 18:47:54 +0000 Show Notes 4-20-2005

          
          1. DISCLAIMER:
          The views expressed on the Cystic Fibrosis Podcast are those of Jerry Cahill and his guests, and not necessarily of the Boomer Esiason Foundation.
          
          NOTHING ON THE CFPODCAST SHOULD BE CONSIDERED MEDICAL ADVICE.
          SUCH ADVICE CAN ONLY BE GIVEN BY A PHYSICIAN WHO IS EXPERIENCED WITH CYSTIC FIBROSIS.
          THE CONTRIBUTORS ON THIS PODCAST CANNOT BE HELD RESPONSIBLE FOR ANY DAMAGE WHICH MAY RESULT FROM USING THE INFORMATION ON THIS PODCAST WITHOUT PERMISSION OF THEIR MEDICAL DOCTOR
          
          2. Dave Rimington Intro
          Introducing Jerry Cahill and Natalie Stout
          
          3. Intro-Jerry Cahill's Cystic Fibrosis Podcast
          
          4. About Jerry:
          Jerry and Natalie discuss Jerry's background and his involvement with the Boomer Esiason Foundation.

          5. For more information on cystic fibrosis go to: www.esiason.org

          6. Email Comments/Questions to podcast@esiason.org

          ]]> Show Notes 4-20-2005

          1. DISCLAIMER: The views expressed on the Cystic Fibrosis Podcast are those of Jerry Cahill and his guests, and not necessarily of the Boomer Esiason Foundation. NOTHING ON THE CFPODCAST SHOULD BE CONSIDERED MEDICAL ADVICE. SUCH ADVICE CAN ONLY BE GIVEN BY A PHYSICIAN WHO IS EXPERIENCED WITH CYSTIC FIBROSIS. THE CONTRIBUTORS ON THIS PODCAST CANNOT BE HELD RESPONSIBLE FOR ANY DAMAGE WHICH MAY RESULT FROM USING THE INFORMATION ON THIS PODCAST WITHOUT PERMISSION OF THEIR MEDICAL DOCTOR 2. Dave Rimington Intro Introducing Jerry Cahill and Natalie Stout 3. Intro-Jerry Cahill's Cystic Fibrosis Podcast 4. About Jerry: Jerry and Natalie discuss Jerry's background and his involvement with the Boomer Esiason Foundation.

          5. For more information on cystic fibrosis go to: www.esiason.org

          6. Email Comments/Questions to podcast@esiason.org

          ]]> 23:42 false full Welcome Mon, 18 Apr 2005 17:57:53 +0000 full Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference Wed, 31 Dec 1969 23:59:59 +0000 Laurie McDonald Podcast
          
          
          Title:
          Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference
          
          
          Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.
          • Laurie is involved in lung, heart, liver, and kidney transplant social work.
          • Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
          • "Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and family? states Laurie
          • UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
          • Laurie recommends setting up a "fundraising team? ASAP once you are listed to help ease the financial burden of unexpected expenses.
          • Laurie's advice:
            1. "Live everyday /minute of your life and don't count on transplant to turn your life around?
            2. "Prepare Financially?
            3. "Exercise – the surgery and recovery will go smoother?

            
            
            
             

          ]]> Laurie McDonald Podcast Title: Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.
          • Laurie is involved in lung, heart, liver, and kidney transplant social work.
          • Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
          • "Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and family? states Laurie
          • UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
          • Laurie recommends setting up a "fundraising team? ASAP once you are listed to help ease the financial burden of unexpected expenses.
          • Laurie's advice: 1. "Live everyday /minute of your life and don't count on transplant to turn your life around? 2. "Prepare Financially? 3. "Exercise – the surgery and recovery will go smoother?

          ]]> 01:00 false full Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference Wed, 31 Dec 1969 23:59:59 +0000 Laurie McDonald Podcast
          
          
          Title:
          Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference
          
          
          Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.
          • Laurie is involved in lung, heart, liver, and kidney transplant social work.
          • Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
          • "Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and family? states Laurie
          • UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
          • Laurie recommends setting up a "fundraising team? ASAP once you are listed to help ease the financial burden of unexpected expenses.
          • Laurie's advice:
            1. "Live everyday /minute of your life and don't count on transplant to turn your life around?
            2. "Prepare Financially?
            3. "Exercise – the surgery and recovery will go smoother?

            
            
            
             

          ]]> Laurie McDonald Podcast Title: Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.
          • Laurie is involved in lung, heart, liver, and kidney transplant social work.
          • Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
          • "Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and family? states Laurie
          • UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
          • Laurie recommends setting up a "fundraising team? ASAP once you are listed to help ease the financial burden of unexpected expenses.
          • Laurie's advice: 1. "Live everyday /minute of your life and don't count on transplant to turn your life around? 2. "Prepare Financially? 3. "Exercise – the surgery and recovery will go smoother?

          ]]> 46 false full